Re: Barefoot walking issues

[Guest guest]

hi everyone!

quick up-date- I lost my password and finally got a new one-

I wrote in Nov upset over baby's shoes - 8 months rcf- but they seemed

to be ok after all...anyhow just before Christmas baby ripped the bar off the

shoe,scattering little screws. His sibling was badly scratched trying to take

the rest of it off him. Turns out they had put the bar on with SHEET METAL

SCREWS! even though there is s socket for a flat topped safety screw. I took my

problem to the " other " orthotics place here and they took pictures as were doing

an inservice with the surgeons early in Jan and wanted to show them. We were so

thankful was supervised at the time and didn't swallow the nasty sharp

things or be scratched. So I was right about something being wrong....

tell me about walking please. I went through and searched 5000 emails to get

some background so I know our kiddies have certain issues: sensitive feet, loss

of " training " , muscle weakness etc.but 's walk is really strange!

our sit'n: baby was casted from 2 days to five months, then out for 3 weeks,

surgery (heel tendon), then cast x 1 month, out x 3 weeks, then DBB for almost 3

months. I was super good for 2 1/2 months but now have it off for at least 1

hour mornings and evenings. He made NO effort to mobilize at all until I

started this after Christmas. Now he will flop onto his tummy, even with the

bar, and move in a circle to reach toys. He rolled over before Sept and surgery

but doesn't if in bar, so wakes up consistantly at night to be shifted. There is

no interest in crawling. My other kids walked independently from 9 months to 12

1/2 months and none of the 7 ever did the stuff he does with his feet and legs.

We call it " russian ballet " . He lifts a leg up high and makes crazy circles and

points it and waves it then flops it down heel first, anywhere. Lots of

scissoring, stepping on his own feet, but he's wildly excited. He thinks he's

cruising!! This has gone on since Christmas when we

began standing him up when he was out of shoes. The right leg (CF) has no

muscle, just flab and he prefers to weight bear on left leg. We go to see

surgeon in a couple of weeks and I need to know what to ask. Does physio help?

We have no insurance coverage so I would do it IF it is truly a benefit.

Maybe it's just because I'm a little concerned but he seems behind in all his

gross motor skills but is ok with fine motor (pinching, transferring, grasping

etc) Even with sitting he falls over a lot when wearing the brace. He's 10

months old now and the family treasure!

---------------------------------

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[Guest guest]

Margaret,

Is it possible that has some additional issues with

missing/underdeveloped nerves that might be causing the issues?

Have any of your doctors ruled out hypotonia (I think this is the

correct term for " floppy " babies- weak muscle tone)?

The thing that I would suggest is video taping a lot of footage of

's different behaviors/movements and have that analyzed by

one or more doctors. It's often frustrating as a mother when *you*

see a certain behavior and know that something isn't quite right-

but then you cannot demonstrate it or explain it well enough for the

doctor at the appointment.

Hopefully it's nothing and your little guy just needs some time

to " practice " .....but my best suggestion would be to document as

much as you can on video tape. If nothing else, it will give you a

baseline to compare to a few months down the road so you can check

his progress!

Good to hear from you-

& (3-16-00)

left clubfoot

> hi everyone!

> quick up-date- I lost my password and finally got a new one-

> I wrote in Nov upset over baby's shoes - 8 months rcf-

but they seemed to be ok after all...anyhow just before Christmas

baby ripped the bar off the shoe,scattering little screws. His

sibling was badly scratched trying to take the rest of it off him.

Turns out they had put the bar on with SHEET METAL SCREWS! even

though there is s socket for a flat topped safety screw. I took my

problem to the " other " orthotics place here and they took pictures

as were doing an inservice with the surgeons early in Jan and wanted

to show them. We were so thankful was supervised at the

time and didn't swallow the nasty sharp things or be scratched. So

I was right about something being wrong....

> tell me about walking please. I went through and searched 5000

emails to get some background so I know our kiddies have certain

issues: sensitive feet, loss of " training " , muscle weakness etc.but

's walk is really strange!

> our sit'n: baby was casted from 2 days to five months, then out

for 3 weeks, surgery (heel tendon), then cast x 1 month, out x 3

weeks, then DBB for almost 3 months. I was super good for 2 1/2

months but now have it off for at least 1 hour mornings and

evenings. He made NO effort to mobilize at all until I started this

after Christmas. Now he will flop onto his tummy, even with the

bar, and move in a circle to reach toys. He rolled over before Sept

and surgery but doesn't if in bar, so wakes up consistantly at night

to be shifted. There is no interest in crawling. My other kids

walked independently from 9 months to 12 1/2 months and none of the

7 ever did the stuff he does with his feet and legs. We call

it " russian ballet " . He lifts a leg up high and makes crazy circles

and points it and waves it then flops it down heel first, anywhere.

Lots of scissoring, stepping on his own feet, but he's wildly

excited. He thinks he's cruising!! This has gone on since

Christmas when we

> began standing him up when he was out of shoes. The right leg

(CF) has no muscle, just flab and he prefers to weight bear on left

leg. We go to see surgeon in a couple of weeks and I need to know

what to ask. Does physio help? We have no insurance coverage so I

would do it IF it is truly a benefit.

> Maybe it's just because I'm a little concerned but he seems behind

in all his gross motor skills but is ok with fine motor (pinching,

transferring, grasping etc) Even with sitting he falls over a lot

when wearing the brace. He's 10 months old now and the family

treasure!

>

>

>

>

>

> ---------------------------------

> Post your free ad now! Yahoo! Canada Personals

>

>

>