Re: our story/support group

[Guest guest]

Joanne,

who are you referring to here? Not Dr. H I'm sure!

And where did you post those flyers anyway? That's great you caught some

people! How long have they been up and did you get the call or did they

call Dr. H from the info on your flyers? Very cool indeed!

Kori

At 07:35 PM 1/28/2005, you wrote:

> The irony is that he is

>giving out my name and number to his patients and doesn't remember who I am!

>I hope he doesn't catch on or decides to figure out what he's doing wrong

>(besides using AFOs).

[Guest guest]

The doctor is a local doc here in Virginia, definitely not Dr.

Herzenberg!

My contact info is on the fliers, so people are calling me.

Shook came up with the flyer, and she and I have been posting them

for the past couple months at an orthotics shop, the doctors'

offices, pediatrician's offices.

It was hard to talk with the moms and inform them that AFOs are not

effective and suggest they get a second opinion. They were glad to

have learned before it's (hopefully) too late, but it was a shock,

much like when people join the list and learn that their child's

foot may not be corrected and are told they should go to Iowa...

At least Dr. Herzenberg is less than 2 hours away!

Best, Joanne

> > The irony is that he is

> >giving out my name and number to his patients and doesn't

remember who I am!

> >I hope he doesn't catch on or decides to figure out what he's

doing wrong

> >(besides using AFOs).

[Guest guest]

Joanne, all the best to you and ! You are in a perfect

position to be able to do this, especially with Zoe being your

perfect footed little model! Please let us know how the event goes!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi New Members!

>

> I try to read the messages as much as possible and reply whenever

it seems

> that no one has replied already... Lately, the replies have been

so numerous

> and quicker than mine because I'm on digest version, so I just

wanted to

> post the link to my daughter's website in order to share our story

to those

> just starting out...

>

> My daughter is now 3 3/4 years old. She had a mild right clubfoot.

We are

> now on our third doctor, Herzenberg in Baltimore. For more

details, check

> out:

> www.geocities.com/joannewalton2003/clubfootstory.html

>

> We are having our first local support group tomorrow in Fairfax VA

at

> Borders at 1 pm. I know Shook posted a reminder about this,

but

> figured I would mention that as a result of posting a few signs,

there are

> now several local babies whose parents did not find this list and

have

> switched to Dr. Herzenberg after receiving substandard treatment

by a local

> doctor just starting out with the Ponseti method... The irony is

that he is

> giving out my name and number to his patients and doesn't remember

who I am!

> I hope he doesn't catch on or decides to figure out what he's

doing wrong

> (besides using AFOs). We have a lot to talk about tomorrow!

>

> I highly recommend starting a local group. My daughter is very

excited to go

> show off her fixed foot tomorrow for the babies! I will be

bringing some

> handouts as well...

>

> Best, Joanne W. mom to Zoe, 3-25-01, right clubfoot