Re: Surprise! - email from Dr Ponseti re bracing protocol

[Guest guest]

Hello everyone

I received this email from Dr Ponseti today:

" After 3 months of full time brace wear, we usually gradually wean

the babies out of the brace, starting with 4 hours a day out for one

month, then 8 hours a day out. We try to have the babies wear the

brace at night and naptime for a total of 16-18 hours and once they

are walking wear it at least 14 hours. We used to recommend bracing

continue to age 3, but since we have seen some relapses, we now

recommend 3 1/2 to 4 years of age.

I.V. Ponseti, M.D. "

I hadn't heard this before so thought I'd post it here.

Our son had a check up yesterday. He's been in the s

for 2 months. Our consultant was very pleased with his progress. His

feet have improved so much since being in the sandals. His right

foot in particular looks so much better and is a lot less stiff. So

we are delighted and are so grateful to our consultant, Dr Ponseti,

this forum, and the steps forum in the UK. We have learnt, and

continue to learn and feel reassured when reading about everyone

else's experiences. Thank you all!

Stella

's Mum dob 28/07/04 - 6 months today! in mitchells 23/7

> > Well Dr. Feldman has said I can take 's hours down to

12! He

> said that was pretty much standard. I am totally weary of that,

and i

> think I will still go with 18. What do you think? I asked him what

> 's severity was, and he said he had very severe clubfeet.

They

> are atypical as well. He said that if this had been 5 years ago,

> before he was doing the Ponseti method, would most

definitely

> have needed surgery, probably around 3 months old. Thank God for

Dr.

> Ponseti! However his feet are really beautiful now, and very

supple. I

> am terrified of him relapsing. Dr. Feldman also mentioned that

> may possibly still need surgery around 3 years. He has

said

> this before too, so I am really weary of too much time out of the

DBB.

> Am I just being paranoid?

> >

> > I must say though, it is lovely to hold and cuddle him out of his

> brace. He is funny when he sits - has his legs straight out with

his

> feet as far apart as the brace would be holding them! He has found

his

> toes, and is sitting playing with them.

> >

> > Am I mistaken about the hours here?

> >

> > and 06/24/04 s ??/7

> >

> > __________________________________________________

> >

[Guest guest]

Stella, thanks for posting this! I think that this is something

that should be posted in the 'files' section for future reference!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> > > Well Dr. Feldman has said I can take 's hours down to

> 12! He

> > said that was pretty much standard. I am totally weary of that,

> and i

> > think I will still go with 18. What do you think? I asked him

what

> > 's severity was, and he said he had very severe

clubfeet.

> They

> > are atypical as well. He said that if this had been 5 years ago,

> > before he was doing the Ponseti method, would most

> definitely

> > have needed surgery, probably around 3 months old. Thank God for

> Dr.

> > Ponseti! However his feet are really beautiful now, and very

> supple. I

> > am terrified of him relapsing. Dr. Feldman also mentioned that

> > may possibly still need surgery around 3 years. He has

> said

> > this before too, so I am really weary of too much time out of

the

> DBB.

> > Am I just being paranoid?

> > >

> > > I must say though, it is lovely to hold and cuddle him out of

his

> > brace. He is funny when he sits - has his legs straight out

with

> his

> > feet as far apart as the brace would be holding them! He has

found

> his

> > toes, and is sitting playing with them.

> > >

> > > Am I mistaken about the hours here?

> > >

> > > and 06/24/04 s ??/7

> > >

> > > __________________________________________________

> > >

[Guest guest]

Stella, thanks so much for this posting. I've been looking for a

message with a word of wisdom from Dr. P.

thanks

idit- mom to oshri, 17 month. bl club.