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Yesterday I saw a little boy who had been gfcf for a few months. He

went from being in his own world and making noises to talking, even

joking, and playing with other kids. I'd heard that he was

regressing and was sad to see him again just making sounds, no eye

contact, etc. The mom blamed recent antibiotics and asked me what to

do about his brain fog. I talked about nystatin, but it turns out he

hasn't even been gfcf recently. Too hard, she said. She works FT

and doesn't have time to cook, etc. I pointed out that there's a

list of prepared foods. Too expensive, she said. The HFS is too far

away...isn't there a pill instead...you get the idea. I told her

that she knows what to do to get the boy back, and single moms all

over the world are doing it with less income than her. (Hey, me for

example!)

I still feel sick to my stomach about this. At least she is pursuing

chelation and yeast treatment, but he was so much better on the

diet....and now he's gone again. I could cry. Sorry, just needed

to " talk " .

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In a message dated 3/30/01 3:56:06 PM Eastern Standard Time, nulani@...

writes:

> Too hard, she said. She works FT

> and doesn't have time to cook, etc. I pointed out that there's a

> list of prepared foods. Too expensive, she said. The HFS is too far

> away...isn't there a pill instead...you get the idea. I told her

> that she knows what to do to get the boy back, and single moms all

> over the world are doing it with less income than her. (Hey, me for

> example!)

>

You know, I was struck by her comment that it was " too hard. " Every time I

get down and think that this is too hard I imagine how hard it would be to

look my grown son and his siblings in the eyes and say " I didn't do

everything I could to make you well because it was too hard. " I couldn't

live with myself.

Praying for this boy and for his mom to find strength and a sense of mission

that she will need to heal her son,

M

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Oh, , I have an acquaintance like that. She wants a magic pill or the

school to do it all. But this is even worse to see a child recovering and

his mom not to have the time. This is so sad. What I would not give for

Evan to be talking and joking. He has not gone that far, he is just more

involved with us and understand more. I would not want to give that much

up, let along losing this much. Hopefully, she will turn around. The diet

is not easy but it is not impossible.

Betty

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Unfortunately so many people are like that. I have found so many people in

the past year who's children have some sort of problem and instead of giving

the diet a chance they have decided to use medications. They've seen the

progress in my son but it is too difficult for them or they just don't want

to use up their time on a diet that is so restricted. I used to be so

willing to share my info. about the diet to all these people who it might

work for but I've found out that I'm usually just wasting my breath. Just

thank God that all of us are doing it and sticking to it. At least we are

making the difference in our child's lives.

MA (with this stinky weather I wish I was in Hawaii)

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On Sat, 31 Mar 2001 10:11:20 EST barbeetofloyd@... writes:

> Unfortunately so many people are like that. I have found so many

> people in

> the past year who's children have some sort of problem and instead

> of giving

> the diet a chance they have decided to use medications. > out that I'm

usually just wasting my breath.

> Just

> thank God that all of us are doing it and sticking to it. At least

> we are

> making the difference in our child's lives.

> MA (with this stinky weather I wish I was in Hawaii)

>

saved me the typing, as my letter would have been the exact as

hers. My son is doing excellent on this diet and it will be 1 year this

April.

in New York (we could all pack and go visitm, and bring the

kids cause she can make GFCF for all) Hawaii here we come

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My older son belongs to a social skills group and I'm the only parent of

the four children there who has even heard of the diet, much less tried

it for my child. Most of the parents are comfortable putting their kids

on medication, which is ok with me since it's their choice, but when I

mention that I'm doing a dietary intervention, you would think I was

transported here from Mars. Most just nod politely, but one guy seems to

think it's all voodoo and has no scientific basis and therefore is just

quackery. I have not gotten into any big battles over this, but it

amazes me that when presented with this option, they just think it's too

much effort - sort of " why bother when there's a pill that can fix it " .

As far as the money spent, I've heard that excuse as well, but they never

seem to have problems coming up with a trip to Disney World or a brand

new SUV or an addition on their house. I'm all for people enjoying their

money, but I'm convinced more and more that too many parents have their

priorities all mixed up. I have never regretted doing this diet and,

yes, it costs us a bundle. My food bill has tripled, but so what? We're

seeing wonderful results and I don't have to worry about side effects of

medication. Just my 2 cents.

( & Malachi's mom)

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Sounds good to me as long as she doesn't mind us coming. My son will also be

having his 1 year anniversary of being gfcf in April. Anyone else having a 1

year coming up?

MA

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>

> I still feel sick to my stomach about this.

> , but he was so much better on the

> diet....and now he's gone again. I could cry. Sorry, just needed

> to " talk " .

>

I know how you feel! I get so very frustrated with people who won't

give the diet a chance or give up on it b/c its too hard. My daughter

was diagnosed ASD a year ago at 2 1/2. She had her evaluation again

last week and they said that if they didn't know the history of this

child they wouldn't have guessed ASD! She is that normal now. I put

her on the diet the day I read Karyn Seroussi's artice about the diet

and autism in Parents magazine, that was before we even had a

dianosis. Now, 13 months after she started the diet she is doing

super fabulous. She attends normal preschool and they have no clue

that she had been diagnosed ASD. This diet saved my little girl, and

I thing its criminal that more children aren't saved by this diet b/c

its too hard. I have a diabetic stepson, and insulin is hard too,

but we sure don't think about scrapping that!! POWER TO THE DIET!

(and all us parents that care enough about our kids to get past

the " its hard " argument!)

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