Re: Re: Dolores KU

[Guest guest]

Dolores,

I guess my brother would not be much of a help. He is short and I am not sure

how well he could help if you started to fall. One thing I did think of but I

am not sure if it is available, is a home health nurse that could help you. I

am working a temp job adding health care providers and noticed that in quite a

few cases the insurance plans pay for home health nurses to help a patient. I

don't actually process the claims, just get the providers tax id numbers and

addresses but we process for many plans, blue cross blue shield, american health

group, and many others. Maybe your current insurance would pay for such a

person. I am not sure if medicare will or not.

Janet Sample

Re: Re: Dolores KU

I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic is,

so I am told. With me not getting around good and tiring easily I would need a

" nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I had a

bloody looking spot on my shirt sleeve and there was this sort of " gunky "

blood oozing out of this place on my arm. So far it isn't getting any bigger

than in the beginning but it sort of burns like a skined knee. The place on my

leg still only has two raw " icky " looking places and I just hope they don't

break open again as I am very tired of it not healing. They don't itch they

just burn ir sting?? My son drives to kansas City every day but he told me to

make a backup appt at Springfield as that is probably where we would end up. He

simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

[Guest guest]

I don't think Cigna will take care of anything like that and the rest of this

year EDS (Fiscal Agent for KS Medicaid) is kindly allowing me to be classified

as a " Non-working " employee so I can be eligible for " company benefits " which is

my Cigna Insurance (which EDS pays a portion) my 401K and additional retirement,

as I am a retired EDS employee. As of 2006 I HAVE to go on Medicare whether I

want to or not, I am 69 so I should have been on Medicare long ago but have

managed to stay with a group plan instead. About the only thing I am eligible

for thru ee County Home Health is a Home Health Aide comes on Thursdays,

runs the vacuum while I take a bath, and makes my bed for me. I have my sheets

already washed and in the dryer by the time she gets here at 7:15 and it only

costs me $8.40 per week. I can inquire of my case manager at Dept of Aging or

the RN in charge of my case. Heck, anything is worth a try and thanks for the

idea as I sure would never have thought of anything

like that. Thanks so much and I'll let you know what I find out. Dolores

Janet Sample thesamples@...> wrote:Dolores,

I guess my brother would not be much of a help. He is short and I am not sure

how well he could help if you started to fall. One thing I did think of but I

am not sure if it is available, is a home health nurse that could help you. I

am working a temp job adding health care providers and noticed that in quite a

few cases the insurance plans pay for home health nurses to help a patient. I

don't actually process the claims, just get the providers tax id numbers and

addresses but we process for many plans, blue cross blue shield, american health

group, and many others. Maybe your current insurance would pay for such a

person. I am not sure if medicare will or not.

Janet Sample

Re: Re: Dolores KU

I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic is,

so I am told. With me not getting around good and tiring easily I would need a

" nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I had a

bloody looking spot on my shirt sleeve and there was this sort of " gunky "

blood oozing out of this place on my arm. So far it isn't getting any bigger

than in the beginning but it sort of burns like a skined knee. The place on my

leg still only has two raw " icky " looking places and I just hope they don't

break open again as I am very tired of it not healing. They don't itch they

just burn ir sting?? My son drives to kansas City every day but he told me to

make a backup appt at Springfield as that is probably where we would end up. He

simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

[Guest guest]

Doris,

Yes anything is worth a try. I only know one person there who handles claims

well enough to ask them about Cigna. She is off till I think next week sometime

though. I do not have access to all the plans and networks and stuff, only see

them occasionally but I can try to see if Cigna is one of the plans we process

for.

Janet

Re: Re: Dolores KU

I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic is,

so I am told. With me not getting around good and tiring easily I would need a

" nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I had a

bloody looking spot on my shirt sleeve and there was this sort of " gunky "

blood oozing out of this place on my arm. So far it isn't getting any bigger

than in the beginning but it sort of burns like a skined knee. The place on my

leg still only has two raw " icky " looking places and I just hope they don't

break open again as I am very tired of it not healing. They don't itch they

just burn ir sting?? My son drives to kansas City every day but he told me to

make a backup appt at Springfield as that is probably where we would end up. He

simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

[Guest guest]

Delores

If you are getting services through the senior services program for

your cleaning and bed changing, you should be able to get a volunteer

to take you to an appointment and stay with you while there. I know

this is available in this area. Another idea would be to have a high

school or college student who needs to provide community service go

with you.

laurie

> Doris,

>

> Yes anything is worth a try. I only know one person there who handles claims

well enough to ask them about Cigna. She is off till I think next week sometime

though. I do not have access to all the plans and networks and stuff, only see

them occasionally but I can try to see if Cigna is one of the plans we process

for.

>

> Janet

> Re: Re: Dolores KU

>

>

> I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic

is, so I am told. With me not getting around good and tiring easily I would

need a " nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I had a

> bloody looking spot on my shirt sleeve and there was this sort of " gunky "

blood oozing out of this place on my arm. So far it isn't getting any bigger

than in the beginning but it sort of burns like a skined knee. The place on my

leg still only has two raw " icky " looking places and I just hope they don't

break open again as I am very tired of it not healing. They don't itch they

just burn ir sting?? My son drives to kansas City every day but he told me to

make a backup appt at Springfield as that is probably where we would end up. He

simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

>

>

>

>

[Guest guest]

Thanks so much for all your help and ideas. If you find out anything let me

know and in the meantime I'll try to find out what I can thru KDOA so I'll have

all my facts together when I see my neuro in August. It's so wonderful to have

all of you out there with the info each of you have to be able to assist the

rest of us. Thanks again to all of you, I don't feel so all alone with all of

you at my fingertips. My Grandson was so right when he insisted I get the

computer. It has really made a difference in a lot of ways. Dolores

Laurie Fitzgerald laurie.fitzgerald@...> wrote:Delores

If you are getting services through the senior services program for

your cleaning and bed changing, you should be able to get a volunteer

to take you to an appointment and stay with you while there. I know

this is available in this area. Another idea would be to have a high

school or college student who needs to provide community service go

with you.

laurie

> Doris,

>

> Yes anything is worth a try. I only know one person there who handles claims

well enough to ask them about Cigna. She is off till I think next week sometime

though. I do not have access to all the plans and networks and stuff, only see

them occasionally but I can try to see if Cigna is one of the plans we process

for.

>

> Janet

> Re: Re: Dolores KU

>

>

> I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic

is, so I am told. With me not getting around good and tiring easily I would

need a " nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I

had a

> bloody looking spot on my shirt sleeve and there was this sort of " gunky "

blood oozing out of this place on my arm. So far it isn't getting any bigger

than in the beginning but it sort of burns like a skined knee. The place on my

leg still only has two raw " icky " looking places and I just hope they don't

break open again as I am very tired of it not healing. They don't itch they

just burn ir sting?? My son drives to kansas City every day but he told me to

make a backup appt at Springfield as that is probably where we would end up. He

simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

>

>

>

>

[Guest guest]

Laurie gave me an idea--in the city I work in (Green Bay) is a nursing school.

Maybe a nursing student could somehow help you out. Heck maybe there is even

someplace close to you for doctors in training. They could learn about mito!

Janet Sample

Re: Re: Dolores KU

>

>

> I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic

is, so I am told. With me not getting around good and tiring easily I would

need a " nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I

had a

> bloody looking spot on my shirt sleeve and there was this sort of

" gunky " blood oozing out of this place on my arm. So far it isn't getting any

bigger than in the beginning but it sort of burns like a skined knee. The place

on my leg still only has two raw " icky " looking places and I just hope they

don't break open again as I am very tired of it not healing. They don't itch

they just burn ir sting?? My son drives to kansas City every day but he told me

to make a backup appt at Springfield as that is probably where we would end up.

He simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

>

>

>

>

[Guest guest]

St. Francis hospital had a van to transport mainly cancer patients (I think)

from outlying areas and even trassportated my husband during his first round of

chemo, but then they said it was too costly and quit even for the outlying

areas, so there is no transportation services offered any longer. I even have

to pay to get transportation for out-patient serices, but good thought, keep a;;

ideaas coming as one might work out. Thanks a bunch, Dolores

ohgminion rakshasis@...> wrote:Our local hospital has volunteers to

take people to appointments, no

charge to the patient. It might be worth a call to the place you are

having the appointment, even if it is a doctor's office maybe the

hospital can coordinate a driver for you.

Take care,

RH

Dolores,

> >

> > I guess my brother would not be much of a help. He is short

and I am not sure how well he could help if you started to fall. One

thing I did think of but I am not sure if it is available, is a home

health nurse that could help you. I am working a temp job adding

health care providers and noticed that in quite a few cases the

insurance plans pay for home health nurses to help a patient. I

don't actually process the claims, just get the providers tax id

numbers and addresses but we process for many plans, blue cross blue

shield, american health group, and many others. Maybe your current

insurance would pay for such a person. I am not sure if medicare

will or not.

> >

> > Janet Sample

> >

> >

> > Re: Re: Dolores KU

> >

> >

> > I'm in Topeka, KS and KU is in Kansas City. That is where an

MDA clinic is, so I am told. With me not getting around good and

tiring easily I would need a " nurse " of some sorts to get me around

the hospital and they don't rovide some-such-things. Just about

everyone I know who doesn't have a family and works full-time + and

anyone else is my age and don't get around much better thatn I do.

My one friend just fell on the steps to her apt and is still having a

hard time getting around. As for the " sores " or whatever they are I

have always had a difficult healing even after surgery, there were

times when my incision would just start to open up after as much as a

week later. The place on my arm is where I cut a corner too short

turning from the living area into the hallway and thought it was just

going to be one of those nasty looking little red blotches (sort of

like a large blood blister) that eventually just turns into a

brown " age/liver spot " then the next thing I knew I had a

> > bloody looking spot on my shirt sleeve and there was this

sort of " gunky " blood oozing out of this place on my arm. So far it

isn't getting any bigger than in the beginning but it sort of burns

like a skined knee. The place on my leg still only has two

raw " icky " looking places and I just hope they don't break open again

as I am very tired of it not healing. They don't itch they just burn

ir sting?? My son drives to kansas City every day but he told me to

make a backup appt at Springfield as that is probably where we would

end up. He simply takes the interstate to his turnoff and goes to

the Argentine Yards to show up and they transport them to and from

the area where the tracks are in ill repair.

> >

> >

> >

> >

[Guest guest]

At one time they did have Stormont School of Nursing, but that has gone by the

wayside and most training is done at Vo-tech or 's where you learn

everything from being a travel agent to nursng school? I know that both MDA and

UMDF have told me their clinics are both thru KU Med Ctr. I have ruled out Home

Health but I am still going to give Dept of Aging a call. Who knows, but keep

the ideas coming, all are welcome as we might just hit on something yet.

Thanks, Dolores

Janet Sample thesamples@...> wrote:

Laurie gave me an idea--in the city I work in (Green Bay) is a nursing school.

Maybe a nursing student could somehow help you out. Heck maybe there is even

someplace close to you for doctors in training. They could learn about mito!

Janet Sample

Re: Re: Dolores KU

>

>

> I'm in Topeka, KS and KU is in Kansas City. That is where an MDA clinic

is, so I am told. With me not getting around good and tiring easily I would

need a " nurse " of some sorts to get me around the hospital and they don't rovide

some-such-things. Just about everyone I know who doesn't have a family and

works full-time + and anyone else is my age and don't get around much better

thatn I do. My one friend just fell on the steps to her apt and is still having

a hard time getting around. As for the " sores " or whatever they are I have

always had a difficult healing even after surgery, there were times when my

incision would just start to open up after as much as a week later. The place

on my arm is where I cut a corner too short turning from the living area into

the hallway and thought it was just going to be one of those nasty looking

little red blotches (sort of like a large blood blister) that eventually just

turns into a brown " age/liver spot " then the next thing I knew I

had a

> bloody looking spot on my shirt sleeve and there was this sort of

" gunky " blood oozing out of this place on my arm. So far it isn't getting any

bigger than in the beginning but it sort of burns like a skined knee. The place

on my leg still only has two raw " icky " looking places and I just hope they

don't break open again as I am very tired of it not healing. They don't itch

they just burn ir sting?? My son drives to kansas City every day but he told me

to make a backup appt at Springfield as that is probably where we would end up.

He simply takes the interstate to his turnoff and goes to the Argentine Yards to

show up and they transport them to and from the area where the tracks are in ill

repair.

>

>

>

>

[Guest guest]

I think I just got this answered, but checkfor sure. I have a friend a Holton

that works at a nursing facility and her time off is valuable to her to be with

ther grandchildren (which I can fully understand). She lost a grandaughter to

Aplastic Anemia several years ago and she is kind enough to take care of my

greataunt's gravesite for me at Netawaka, KS where both her grandaughter and my

greataunt are buried. She is the only one that I know of that knows her way to

and around KU as her grandaught was there so many, many times when her

grandaughter was ill but that is approx 70 miles roundtrip just to and fro

Holton without counting approx 75 miles to KC proper not counting getting to KU.

I have even inquired about bus service, I would have to take a cab from where

the bus station is to KU, so ??? Thanks and keep thinnking as one of you might

just hit on something that will work. Dolores

ohgminion rakshasis@...> wrote:I think contacting a volunteer

organization in your neighborhood

might help you find other sources for rides. There is a self-help

clearinghouse that a friend of ours used to work for, but I think it

was local to our state.

Could you call the United Way in your area, or the volunteer center

at your local hospital? They might point you in the right

direction. We have " rural transportation " in our area, which is

heavily discounted for people with disabilities - they'll go right to

your door. Unfortunately, if you need to go out of county, they'd

have to bring you to a bus stop for further travel.

Take care,

RH

Dolores,

> > >

> > > I guess my brother would not be much of a help. He is short

> and I am not sure how well he could help if you started to fall.

One

> thing I did think of but I am not sure if it is available, is a

home

> health nurse that could help you. I am working a temp job adding

> health care providers and noticed that in quite a few cases the

> insurance plans pay for home health nurses to help a patient. I

> don't actually process the claims, just get the providers tax id

> numbers and addresses but we process for many plans, blue cross

blue

> shield, american health group, and many others. Maybe your current

> insurance would pay for such a person. I am not sure if medicare

> will or not.

> > >

> > > Janet Sample

> > >

> > >

> > > Re: Re: Dolores KU

> > >

> > >

> > > I'm in Topeka, KS and KU is in Kansas City. That is where

an

> MDA clinic is, so I am told. With me not getting around good and

> tiring easily I would need a " nurse " of some sorts to get me around

> the hospital and they don't rovide some-such-things. Just about

> everyone I know who doesn't have a family and works full-time + and

> anyone else is my age and don't get around much better thatn I do.

> My one friend just fell on the steps to her apt and is still having

a

> hard time getting around. As for the " sores " or whatever they are

I

> have always had a difficult healing even after surgery, there were

> times when my incision would just start to open up after as much as

a

> week later. The place on my arm is where I cut a corner too short

> turning from the living area into the hallway and thought it was

just

> going to be one of those nasty looking little red blotches (sort of

> like a large blood blister) that eventually just turns into a

> brown " age/liver spot " then the next thing I knew I had a

> > > bloody looking spot on my shirt sleeve and there was this

> sort of " gunky " blood oozing out of this place on my arm. So far

it

> isn't getting any bigger than in the beginning but it sort of burns

> like a skined knee. The place on my leg still only has two

> raw " icky " looking places and I just hope they don't break open

again

> as I am very tired of it not healing. They don't itch they just

burn

> ir sting?? My son drives to kansas City every day but he told me

to

> make a backup appt at Springfield as that is probably where we

would

> end up. He simply takes the interstate to his turnoff and goes to

> the Argentine Yards to show up and they transport them to and from

> the area where the tracks are in ill repair.

> > >

> > >

> > >

> > >