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Re: Re: otc pain meds

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RH

I wasn't on much in the way of supplements, but Dr. Shoffner wanted me

off of them for a month. Maybe this was because I had had several

frozen biopsies that we inconclusive.

laurie

> Opinion light on - I personally find it a bit silly to stop any

> medications (*except* for potential blood thinners) before a muscle

> biopsy, and I only stopped mine for a day before mine. I don't think

> Dr. Shoffner's office asked for more than a week of stopping

> medications and supplements, the most important ones to stop would be

> things like Vitamin E and garlic that could lead to extra bleeding.

> I'm not a medical doctor, and please others who have seen Dr.

> Shoffner correct me if my memory is faulty. I remember having a

> conversation with him at the pre-op visit, where I said " I only

> stopped my supplements and vitamins for today " (the day before the

> surgery) and he said " Okay " like it wasn't going to stop the muscle

> biopsy. If you recall, I mentioned that my muscle biopsy showed a

> complete lack of Complex I activity, in addition to a few other fun

> things that may or may not be related to mito (necrosis, increases in

> odd fibers), so it didn't seem to affect my results (can't get lower

> than zero, LOL!).

>

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Laurie and RH,

I have heard different things from different people. Most of the people I

heard from all said that Dr. Shoffner said to stay on the supplements

because it doesn't make a difference. Only about 2 or 3 people I know or

spoke to said that he wanted them off of the supplements for a week to a month.

I wonder if he has gathered information (through the years) from the

biopsies that may indicate that staying on the supplements do make a

difference(in the results or the % of activity) and is now suggesting at

least a week or so off of them. Or maybe he is going on a patient by

patient basis according to their medical records, how many inconclusive

biopsies they have, etc.... Just a thought....

To me this would be a hard decision to make. It makes no sense to take

yourself off of the supplements if they are indeed working for you b/c you

will end up in a metabolic crash. But yet if you need a biopsy you would

certainly want the best possibly results so that you wouldn't have to have

another biopsy done.

Hugs,

Ann-Marie

At 11:58 AM 7/7/2005, you wrote:

>RH

>

>I wasn't on much in the way of supplements, but Dr. Shoffner wanted me

>off of them for a month. Maybe this was because I had had several

>frozen biopsies that we inconclusive.

>

>laurie

>

> > Opinion light on - I personally find it a bit silly to stop any

> > medications (*except* for potential blood thinners) before a muscle

> > biopsy, and I only stopped mine for a day before mine. I don't think

> > Dr. Shoffner's office asked for more than a week of stopping

> > medications and supplements, the most important ones to stop would be

> > things like Vitamin E and garlic that could lead to extra bleeding.

> > I'm not a medical doctor, and please others who have seen Dr.

> > Shoffner correct me if my memory is faulty. I remember having a

> > conversation with him at the pre-op visit, where I said " I only

> > stopped my supplements and vitamins for today " (the day before the

> > surgery) and he said " Okay " like it wasn't going to stop the muscle

> > biopsy. If you recall, I mentioned that my muscle biopsy showed a

> > complete lack of Complex I activity, in addition to a few other fun

> > things that may or may not be related to mito (necrosis, increases in

> > odd fibers), so it didn't seem to affect my results (can't get lower

> > than zero, LOL!).

> >

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