RE: Are you using Growth Hormone?[Scanned]

[Guest guest]

>>We are trying to decide whether to start our 6 year old son with RSS

on Growth Hormone. What have been your experiences?

We started Greg on GHT in August 2002, when he had just turned 4.

Positives:

He eats now!

Height increase from 4th centile to just below 50th centile.

Hypoglycaemic issues are much reduced.

Negatives:

Having to give a nightly injection, which he still doesn't like/accept

(we use a needle free device).

Having to ensure we don't run out! (Getting the drugs requires 2 trips

to the doctors, a phone call to the pharmacy to order the drugs, and a

trip to pick them up)

Having to keep the drugs cold when travelling.

Not having anybody else (e.g. grandparents) who can/will give injections

if for any reason we can't be there to do it.

I think you will agree that the positives win, as the negative are all

really trivial in comparison :-)

Hope this helps,

Craig.