SV: What should I look for when there's a diet infringement?

[Guest guest]

I suggest you check out these pages:

www.gfcfdiet.com - SURVEY pages - You should download and read both the main

report and the infringement report. The infringement report will tell you what

to look for, and the main report will tell you roughly how long people normally

wait for results. (My son was a slower responder than most, it seems).

www.advimoss.no/GFCF_results.htm - there are sections here on both how fast to

expect results, how to interpret results, and infringements. These pages are

based on our own experience with the diet (>9 years now). There is also a page

there about peptide tests.

Peptide tests are sometimes unreliable. Most of the critisism seems to be about

false negatives: Tests showing nothing abnormal, but children improving on the

diet all the same. I've always recommended the kind of test run by researchers

Cade, Reichelt and Shattock, because these are fairly accurate. If the diet is

100% successful, you don't need it. But if the diet results are difficult to

interpret, it can be useful to do a second test and compare with what things

were like before the diet.

Maybe the simplest way of taking care of this opportunity is to take a sample

before starting the diet, and keep it deep frozen until one finds out whether

it's needed or not. Comparing two tests from the same individual, from

different periods, is easier than comparing one test from one patient with the

abstract " norm " .

Good news: Even better tests will be available in the future.

Yours

n Klaveness

www.advimoss.no

-----Opprinnelig melding-----

Fra: donnak@... donnak@...>

Til: GFCFKids GFCFKids >

Dato: 9. april 2001 08:14

Emne: What should I look for when there's a diet infringement?

>Hi, I hope it's not obnoxious to post this again, but I only got one

>response and I am really in need of answers. Thanks!

>

>My son, age 3.9, has been gf/cf since March 3. Dh did let him eat a

>very small piece of pizza crust the first week but since then we have

>been consistent. I read labels carefully & if there's any doubt, I

>just don't use a particular item. I've reviewed mentally all the ways

>we could be messing up, and don't think we have. We are doing the

>diet under the supervision of a DAN doctor and one of the reasons we

>started this...although it was always in the back of my mind...was

>that my son's behavior began to steadily regress since December. He

>has not lost or forgotten skills, just getting more stimmy, more

>talking to himself, rigid, easily upset and perseverative. This has

>not changed since starting the diet.

>

>Anyway, we had an infringement today. My son got hold of some

>pretzels at a party when I had my back turned (changing my other

>son's diaper). I don't know how much he had before I caught him.

>

>My question: what type of indication should we look for that this

>might cause a problem for him...especially since overall I don't

>really see the diet helping? Does it mean anything that in the early

>days of the diet, my son didn't seem to miss the stuff he couldn't

>have but now is asking for bread and almost pounced on a piece of

>cheese he saw? Does that mean he really is addicted to these foods

>or just that he likes them and misses them? Also, do we have to

>consider ourselves as being back at square one in terms of the time

>we need to stay on the diet to determine if it makes a difference?

>Our doctor wanted us to try for 3 months and see what happens...even

>though he felt it was most likely that if it would help, it would be

>evident before that. Do we now start over and go for three months

>from today?

>

>BTW, our doctor has not done any testing for peptides or antibodies

>to casein or gluten. He says the tests are not always reliable and it

>is a better indicator to just go on the diet...but then I read that

>it could take a whole year to see results. After that much time, how

>would you know it's the diet and not just maturity or other therapies?

>I don't want to stay on this diet indefinitely without SOME indicator

>that it makes a difference.

>

>Thanks,

>Donna