Re: Getting kind of worried

February 16, 2005

Oh, Jen.. I'm so sorry you've got this worry. Our shoulders are

always here for you.. I know you are concerned, especially given her

past experience.. it makes sense that you'd be extra watchful and

worried.. I would be too.

I guess I would advise what you are already doing .. to keep a

careful eye on it, hoping that it doesn't get worse and might resolve

and go away. Maybe it is a fleeting thing.. related to a growth

spurt? I know I've occasionally noticed things that worry me, which

later seems to have gone away with time. It's encouraging that when

you check her outward motion and dorsiflexion that they are still

good.

If you do get to the point of sending off some pictures..

I wonder if you could instead send some video .. since it might not

be apparent in a still picture.

Hang in there.. the worry WILL stop some day!

Write any time you need to..

and Claire

> As most of you may remember, Livie is still wearing her brace 16

hours a day at 3 years and 4 month old because she had a relapse.

She relapsed because she was removed from the brace altogether at 1.5

years old due to loose ligaments. She was recasted at 2.5 years

old. Dr. Ponseti was able to recorrect her foot, but not to the

degree that it was before. He seemed concerned after the cast that

she might eventually need to have the ATTT surgery. At our 6 month

follow-up after the cast, he was pleased with her correction and

didn't mention again the ATTT. We are scheduled to go back to see

him in May.

>

> Within the last few weeks I have noticed Livie pointing her foot in

occasionally when she is running or walking. It has only happened

less than a handful of times, but it still has got me worried. This

is how her relapse started the last time. She turned her foot in

occasionally, most often when she was wearing shoes.

>

> I know that I should snap some pictures and send them off to Dr. P

immediately, but part of me thinks I'm overreacting to nothing. Last

time I was sure there was a problem and I was right, but this time

I'm not so sure. Besides, when she is just standing, it looks

perfectly fine. I've checked her outward rotation the way Dr.

Ponseti showed me and also her dorsiflexion and she doesn't seem to

have lost anything, but I'm still worried.

>

> I guess I'm just looking for a shoulder to cry on from somebody who

understands. Is there ever going to come a day when I don't have to

worry about this child's foot? Will I ever be able to watch her walk

or run without analyzing every single step? Ugh.

>

> I've decided to keep a close eye on it in the next few weeks. If

it continues to happen or gets worse, I will call Dr. Ponseti.

>

> Thanks for listening,

>

> Jen & Livie (10-18-01 severe left clubfoot)

>

February 16, 2005

Aw you poor thing. Not knowing is the worst but isn't it best to err on the

side of caution? Could you video it or something and send that to him?

As far as a day when you stop worrying.....eventually it 'll come. I remember

the days of obcessing over 's feet. One day it suddenly occured to me I

hadn't thought about them in a few days. I had that scare a while back where

one night they suddenly hurt so bad he was whithering and crying - but that

appears to have been a very isolated case for an unknown reason.

hang in there, we have plenty of shoulders to go around.

s.

Getting kind of worried

As most of you may remember, Livie is still wearing her brace 16 hours a day at

3 years and 4 month old because she had a relapse. She relapsed because she was

removed from the brace altogether at 1.5 years old due to loose ligaments. She

was recasted at 2.5 years old. Dr. Ponseti was able to recorrect her foot, but

not to the degree that it was before. He seemed concerned after the cast that

she might eventually need to have the ATTT surgery. At our 6 month follow-up

after the cast, he was pleased with her correction and didn't mention again the

ATTT. We are scheduled to go back to see him in May.

Within the last few weeks I have noticed Livie pointing her foot in occasionally

when she is running or walking. It has only happened less than a handful of

times, but it still has got me worried. This is how her relapse started the

last time. She turned her foot in occasionally, most often when she was wearing

shoes.

I know that I should snap some pictures and send them off to Dr. P immediately,

but part of me thinks I'm overreacting to nothing. Last time I was sure there

was a problem and I was right, but this time I'm not so sure. Besides, when she

is just standing, it looks perfectly fine. I've checked her outward rotation

the way Dr. Ponseti showed me and also her dorsiflexion and she doesn't seem to

have lost anything, but I'm still worried.

I guess I'm just looking for a shoulder to cry on from somebody who understands.

Is there ever going to come a day when I don't have to worry about this child's

foot? Will I ever be able to watch her walk or run without analyzing every

single step? Ugh.

I've decided to keep a close eye on it in the next few weeks. If it continues

to happen or gets worse, I will call Dr. Ponseti.

Thanks for listening,

Jen & Livie (10-18-01 severe left clubfoot)

February 16, 2005

Thanks ee! I already thought of sending a video, but it happens so seldom

that I would probably have to video for days on end to actually catch her doing

it! I probably should do it anyway since Dr. Posneti would be able to see

things that I may not be seeing.

Thanks for the shoulder.

Getting kind of worried

As most of you may remember, Livie is still wearing her brace 16 hours a day

at 3 years and 4 month old because she had a relapse. She relapsed because she

was removed from the brace altogether at 1.5 years old due to loose ligaments.

She was recasted at 2.5 years old. Dr. Ponseti was able to recorrect her foot,

but not to the degree that it was before. He seemed concerned after the cast

that she might eventually need to have the ATTT surgery. At our 6 month

follow-up after the cast, he was pleased with her correction and didn't mention

again the ATTT. We are scheduled to go back to see him in May.

Within the last few weeks I have noticed Livie pointing her foot in

occasionally when she is running or walking. It has only happened less than a

handful of times, but it still has got me worried. This is how her relapse

started the last time. She turned her foot in occasionally, most often when she

was wearing shoes.

I know that I should snap some pictures and send them off to Dr. P

immediately, but part of me thinks I'm overreacting to nothing. Last time I was

sure there was a problem and I was right, but this time I'm not so sure.

Besides, when she is just standing, it looks perfectly fine. I've checked her

outward rotation the way Dr. Ponseti showed me and also her dorsiflexion and she

doesn't seem to have lost anything, but I'm still worried.

I guess I'm just looking for a shoulder to cry on from somebody who

understands. Is there ever going to come a day when I don't have to worry about

this child's foot? Will I ever be able to watch her walk or run without

analyzing every single step? Ugh.

I've decided to keep a close eye on it in the next few weeks. If it continues

to happen or gets worse, I will call Dr. Ponseti.

Thanks for listening,

Jen & Livie (10-18-01 severe left clubfoot)

February 16, 2005

Thanks ,

If it becomes worrisome enough that I feel a call to Dr. Ponseti is warranted

then I will probably send a video. Like I said to ee, at this point I

would probably have to video for days on end to catch her doing it, but your

point is well taken that he would be able to see things that are not so apparent

to me.

Thanks again for the shoulder!

Jen & Livie