Another reason to love the Ponseti method (might be a long one!)

February 18, 2005

I forgot to tell everybody this story...

In December we went to visit my BIL & SIL in Ohio. I have other

friends, Jen & that live out there who we had dinner with

while visiting. Jen had called me after Ava was born to tell me

that her SIL had twin boys, both with CF, so if I needed someone to

talk to she would give me her number. I took the number, but never

called her because I found this group & felt like I had all the

support & info I needed. Anyway, December was the first time Jen &

had seen Ava and right away asked what the thing was on her

feet! Of course, their nephews had been treated surgically, so had

never had a DBB. Well that got me started on the whole Ponseti

thing, explaining the method & I even showed them her foot. They

were absolutely AMAZED! They couldn't believe how good her foot

looked! They said the 2 boys had both had numerous surgeries, one

walks with a limp and is going to need more surgery, and both their

feet look deformed. They're only 5 years old! I felt so sad for

them, almost bad talking about how the Ponseti method could have

prevented all that! And I'm kind of glad that I never called their

mom & talked to her...I probably would have been scared to death

that Ava's foot would end up deformed or with her needing lots of

surgery! It was the first time that I personally got to see someone

compare the difference between a good CF treatment & a bad one. It

really made my husband & I count our blessings. We laid in bed that

night talking about it, how sad it was for those boys, and how

fortunate we were with Ava to have just fallen into the Ponseti

method to treat her. Just thought I'd share!

, mommy of:

Guinevere, on, Ava 8/4/04 right CF DBB 23/7 (only 6 days

left!!)

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