Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Celia I'm not sure how old you are, but our bodies seem to age faster that many. We often have stiffness, arthritis, etc. as older people normally experience. I have had the stiffness for several years. Today my calves are very tight and stiff because I did more walking than normal on Wed. I get the quivering, but not all over. I do get cramps all over, but usually at different times during the day and night. The quivering and jerking are usually due to nerves which are not staying calm as they should, but fire for no reason. My jerking (myoclonus) is almost gone with taking Lamictal. Other anti-convulsants also help with this nerve " junk " . Since this is probably nerve related, a visit to the neurologist might be in order. I hope you can find some help. laurie > dear Groupies, i must apologize for being so absent from this site for > so long. it's sort of a combination of my husband retiring and being > home all the time (not so much time to loll in front of the computor) > and being so discouraged medically in my docs, who can't figure out > what is wrong with me and prefer to say it is all in my head. Anyway, > i have been more or less going along with my usual problems (except > for the gastroparesis, but I have a great doc there) but lately an > existing problem is getting worse and I'm not sure what I should do. I > have posted before about " muscle quiverings " and spasms, for which I > take flexeril once a day (as per Laurie's suggestion, docotr's > prescription). now I find that with only minimal effort my whole body > seems to develop into this quiverying mass.( at least that is what is > feels like, only a few actual bigger spasms are visible to the eye) My > whole body feels tight and hard to move. The sensation does go away- > very gradually if I take extra flexeril. Is this what I should be > doing? What is causing this. it is most disconserting. it is only my > family doc who is giving tme the flexeril, so she doesn;t really know > what is up.is fleseril the best way to handle this.? Should I ask to > go back to the neurologist for another assessment. I do have an > appointmnet for evoked potentials in late october. Anyway, I would > really appreciate any light shed on this subject. Thanks so much. I'm > sorry I've been such a bad member of the group, Celia > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Celia, it definately sounds like you need more answers from either a good neurologist ( maybe a second opinion ) or even a good primary doc. Realistically, your symptoms can be caused by anything from electrolyte imbalances, dehydration, fatigue, deconditioning / overuse or thyroid disease, to neurological or neuromuscular disease. Extensive labs and clinical history from a qualified medical professional should ultimately rule these things out and potentially lead to a diagnosis. Best of luck, bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 -Dear laurie, Thanks for the answer. the quiverings, and i should have said they are accompanied by cramping at various parts of my body, are not joint stiffness (which i also have and feels quite different). oi hate to add more drugs to an alreeady large cocktail, but maybe i will have to with this. it is really an awful feeling, Thanks again, celia-- In , Laurie Fitzgerald wrote: > Celia > > I'm not sure how old you are, but our bodies seem to age faster that > many. We often have stiffness, arthritis, etc. as older people > normally experience. I have had the stiffness for several years. Today > my calves are very tight and stiff because I did more walking than > normal on Wed. > > I get the quivering, but not all over. I do get cramps all over, but > usually at different times during the day and night. The quivering and > jerking are usually due to nerves which are not staying calm as they > should, but fire for no reason. My jerking (myoclonus) is almost gone > with taking Lamictal. Other anti-convulsants also help with this nerve > " junk " . Since this is probably nerve related, a visit to the > neurologist might be in order. > > I hope you can find some help. > > laurie > > > > dear Groupies, i must apologize for being so absent from this site for > > so long. it's sort of a combination of my husband retiring and being > > home all the time (not so much time to loll in front of the computor) > > and being so discouraged medically in my docs, who can't figure out > > what is wrong with me and prefer to say it is all in my head. Anyway, > > i have been more or less going along with my usual problems (except > > for the gastroparesis, but I have a great doc there) but lately an > > existing problem is getting worse and I'm not sure what I should do. I > > have posted before about " muscle quiverings " and spasms, for which I > > take flexeril once a day (as per Laurie's suggestion, docotr's > > prescription). now I find that with only minimal effort my whole body > > seems to develop into this quiverying mass.( at least that is what is > > feels like, only a few actual bigger spasms are visible to the eye) My > > whole body feels tight and hard to move. The sensation does go away- > > very gradually if I take extra flexeril. Is this what I should be > > doing? What is causing this. it is most disconserting. it is only my > > family doc who is giving tme the flexeril, so she doesn;t really know > > what is up.is fleseril the best way to handle this.? Should I ask to > > go back to the neurologist for another assessment. I do have an > > appointmnet for evoked potentials in late october. Anyway, I would > > really appreciate any light shed on this subject. Thanks so much. I'm > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 Dear Bug, Thanks for the reply. My hydration is pretty good, although it could be due to potassium lack, due to a diuretic and a poor (gp related ) diet. it definitely occurs with muscle overuse. I guess I will have to raise the issue with my family doc, Celia-- In , " venomvw " wrote: > Celia, it definately sounds like you need more answers from either a > good neurologist ( maybe a second opinion ) or even a good primary > doc. Realistically, your symptoms can be caused by anything from > electrolyte imbalances, dehydration, fatigue, deconditioning / overuse > or thyroid disease, to neurological or neuromuscular disease. > Extensive labs and clinical history from a qualified medical > professional should ultimately rule these things out and potentially > lead to a diagnosis. Best of luck, > > bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 A diuretic is very possibly the cause. You probably have an electrolyte imbalance ( ie potassium or the like ). If your diet is poor, maybe you should re-evaluate what your eating and whether that's really in your best interest. Keep in mind, if you drink pop instead of water for example, your very likely to be dehydrated from the sugar and caffine. Sodium causes water retention too. I believe highly in the power of water and good nutrition...not to mention exercise. Without a good diet and regular exercise, it would be hard to get a proper diagnosis if something else is going on medically. It's like a smoker with a cough. bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 I tremble easily, but the worst " shakes " I got were when I had pneumonia and didn't know it - no fever, no cough, but when I went to the doctor for the shaking, my lungs were rattly and full of fluid. Take care, RH > > > dear Groupies, i must apologize for being so absent from this site for > > > so long. it's sort of a combination of my husband retiring and being > > > home all the time (not so much time to loll in front of the computor) > > > and being so discouraged medically in my docs, who can't figure out > > > what is wrong with me and prefer to say it is all in my head. Anyway, > > > i have been more or less going along with my usual problems (except > > > for the gastroparesis, but I have a great doc there) but lately an > > > existing problem is getting worse and I'm not sure what I should do. I > > > have posted before about " muscle quiverings " and spasms, for which I > > > take flexeril once a day (as per Laurie's suggestion, docotr's > > > prescription). now I find that with only minimal effort my whole body > > > seems to develop into this quiverying mass.( at least that is what is > > > feels like, only a few actual bigger spasms are visible to the eye) My > > > whole body feels tight and hard to move. The sensation does go away- > > > very gradually if I take extra flexeril. Is this what I should be > > > doing? What is causing this. it is most disconserting. it is only my > > > family doc who is giving tme the flexeril, so she doesn;t really know > > > what is up.is fleseril the best way to handle this.? Should I ask to > > > go back to the neurologist for another assessment. I do have an > > > appointmnet for evoked potentials in late october. Anyway, I would > > > really appreciate any light shed on this subject. Thanks so much. I'm > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > contained herein are not necessarily those of the list moderators. The > author of this e mail is entirely responsible for its content. List > members are reminded of their responsibility to evaluate the content > of the postings and consult with their physicians regarding changes in > their own treatment. > > > > > > Personal attacks are not permitted on the list and anyone who > sends one is automatically moderated or removed depending on the > severity of the attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 I'm not a medical doctor, but a blood test for albumin level might indicate if there is a dehydration problem, regardless of how much you drink. Electrolytes are good to test as others said. Take care, RH > A diuretic is very possibly the cause. You probably have an > electrolyte imbalance ( ie potassium or the like ). If your diet is > poor, maybe you should re-evaluate what your eating and whether that's > really in your best interest. Keep in mind, if you drink pop instead > of water for example, your very likely to be dehydrated from the sugar > and caffine. Sodium causes water retention too. I believe highly in > the power of water and good nutrition...not to mention exercise. > Without a good diet and regular exercise, it would be hard to get a > proper diagnosis if something else is going on medically. It's like a > smoker with a cough. > > bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 When my Grandson showed me how much sodium was in a piece of steak like my son brings me after he cooks out. When Jeff pointed out the difference on the amount sodium in a steak and pork chops I called my son and told him if he grills steak NO do not share with me but if he grills pork OK to continue to bring me a care package now and again. Now it takes me twice as long to buy groceries as I read every label but Jeff is very patient if the baby is fussy he takes my list and checks out the labels himself then the three year year old helps her seven year old sister bring the items to me and the three year old tells me that Daddy said that " Mammo can eat this " . They are darling and I do so appreciate Jeff's help and patience with me. Take care all, Dolores venomvw pamcroy@...> wrote:A diuretic is very possibly the cause. You probably have an electrolyte imbalance ( ie potassium or the like ). If your diet is poor, maybe you should re-evaluate what your eating and whether that's really in your best interest. Keep in mind, if you drink pop instead of water for example, your very likely to be dehydrated from the sugar and caffine. Sodium causes water retention too. I believe highly in the power of water and good nutrition...not to mention exercise. Without a good diet and regular exercise, it would be hard to get a proper diagnosis if something else is going on medically. It's like a smoker with a cough. bug Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 I have muscle fascilations, the muscles quiver or crawl. They occur in all my muscles, sometimes muscle cramping can occur at the same time. When I described these as tremors, they told me I had Parkinsons, which was not the case. Although my hands can tremor if I'm holding something, guess that's from weakness. Caffiene, or stress can make this worse. The mito cocktail has helped. Marla > > > > dear Groupies, i must apologize for being so absent from this > site for > > > > so long. it's sort of a combination of my husband retiring and > being > > > > home all the time (not so much time to loll in front of the > computor) > > > > and being so discouraged medically in my docs, who can't figure > out > > > > what is wrong with me and prefer to say it is all in my head. > Anyway, > > > > i have been more or less going along with my usual problems > (except > > > > for the gastroparesis, but I have a great doc there) but lately > an > > > > existing problem is getting worse and I'm not sure what I > should do. I > > > > have posted before about " muscle quiverings " and spasms, for > which I > > > > take flexeril once a day (as per Laurie's suggestion, docotr's > > > > prescription). now I find that with only minimal effort my > whole body > > > > seems to develop into this quiverying mass.( at least that is > what is > > > > feels like, only a few actual bigger spasms are visible to the > eye) My > > > > whole body feels tight and hard to move. The sensation does go > away- > > > > very gradually if I take extra flexeril. Is this what I should > be > > > > doing? What is causing this. it is most disconserting. it is > only my > > > > family doc who is giving tme the flexeril, so she doesn;t > really know > > > > what is up.is fleseril the best way to handle this.? Should I > ask to > > > > go back to the neurologist for another assessment. I do have an > > > > appointmnet for evoked potentials in late october. Anyway, I > would > > > > really appreciate any light shed on this subject. Thanks so > much. I'm > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list moderators. > The > > author of this e mail is entirely responsible for its content. List > > members are reminded of their responsibility to evaluate the content > > of the postings and consult with their physicians regarding changes > in > > their own treatment. > > > > > > > > Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 A neurologist shouldn't just say you have Parkinson's from tremors - my dad had a differential diagnosis done for Parkinson's and he and several in his family have " benign familial essential tremor " . His tremors are worse if he tries to do something, like pick up a penny. They are sometimes noticeable at rest, but do get much worse when he tries to do something. This is in contrast to Parkinson's, where tremors are worse at rest, for example: http://www.hmc.psu.edu/healthinfo/t/tremor.htm Interestingly enough, I convinced my dad to try sublingual NADH, and they decrease his tremors significantly (when he remembers to take it). I assume it is because we have the same mito defect (his only neuro symptom is tremors, but his brother had very similar symptoms to me), YMMV. I guess I assume that tremors are usually limited to one set of muscles, the head or the hands, and are really movements. When I get the shakes, it's the whole body, and fasciculations can be local but are kind of like watching jello quiver instead of actual movements. HTH! Take care, RH > > > > > dear Groupies, i must apologize for being so absent from > this > > site for > > > > > so long. it's sort of a combination of my husband retiring > and > > being > > > > > home all the time (not so much time to loll in front of the > > computor) > > > > > and being so discouraged medically in my docs, who can't > figure > > out > > > > > what is wrong with me and prefer to say it is all in my > head. > > Anyway, > > > > > i have been more or less going along with my usual problems > > (except > > > > > for the gastroparesis, but I have a great doc there) but > lately > > an > > > > > existing problem is getting worse and I'm not sure what I > > should do. I > > > > > have posted before about " muscle quiverings " and spasms, for > > which I > > > > > take flexeril once a day (as per Laurie's suggestion, > docotr's > > > > > prescription). now I find that with only minimal effort my > > whole body > > > > > seems to develop into this quiverying mass.( at least that > is > > what is > > > > > feels like, only a few actual bigger spasms are visible to > the > > eye) My > > > > > whole body feels tight and hard to move. The sensation does > go > > away- > > > > > very gradually if I take extra flexeril. Is this what I > should > > be > > > > > doing? What is causing this. it is most disconserting. it is > > only my > > > > > family doc who is giving tme the flexeril, so she doesn;t > > really know > > > > > what is up.is fleseril the best way to handle this.? Should > I > > ask to > > > > > go back to the neurologist for another assessment. I do have > an > > > > > appointmnet for evoked potentials in late october. Anyway, I > > would > > > > > really appreciate any light shed on this subject. Thanks so > > much. I'm > > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > > contained herein are not necessarily those of the list > moderators. > > The > > > author of this e mail is entirely responsible for its content. > List > > > members are reminded of their responsibility to evaluate the > content > > > of the postings and consult with their physicians regarding > changes > > in > > > their own treatment. > > > > > > > > > > Personal attacks are not permitted on the list and anyone who > > > sends one is automatically moderated or removed depending on the > > > severity of the attack. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 RH I have both - myoclonus and tremors. The myoclonue tends to be in bigger muscles, but I now have them in my hands. My tremors are intention tremors as are my sons. These could be mito or familial tremors. I can get both anywhere in my body, but intention tremors are usually fine motor or trying to use big muscles in a fine way, such as getting your foot onto a smallish rock. laurie > A neurologist shouldn't just say you have Parkinson's from tremors - > my dad had a differential diagnosis done for Parkinson's and he and > several in his family have " benign familial essential tremor " . His > tremors are worse if he tries to do something, like pick up a penny. > They are sometimes noticeable at rest, but do get much worse when he > tries to do something. This is in contrast to Parkinson's, where > tremors are worse at rest, for example: > > http://www.hmc.psu.edu/healthinfo/t/tremor.htm > > Interestingly enough, I convinced my dad to try sublingual NADH, and > they decrease his tremors significantly (when he remembers to take > it). I assume it is because we have the same mito defect (his only > neuro symptom is tremors, but his brother had very similar symptoms > to me), YMMV. > > I guess I assume that tremors are usually limited to one set of > muscles, the head or the hands, and are really movements. When I get > the shakes, it's the whole body, and fasciculations can be local but > are kind of like watching jello quiver instead of actual movements. > HTH! > > Take care, > RH > > > > > > > > > > dear Groupies, i must apologize for being so absent from > > this > > > site for > > > > > > so long. it's sort of a combination of my husband retiring > > and > > > being > > > > > > home all the time (not so much time to loll in front of the > > > computor) > > > > > > and being so discouraged medically in my docs, who can't > > figure > > > out > > > > > > what is wrong with me and prefer to say it is all in my > > head. > > > Anyway, > > > > > > i have been more or less going along with my usual problems > > > (except > > > > > > for the gastroparesis, but I have a great doc there) but > > lately > > > an > > > > > > existing problem is getting worse and I'm not sure what I > > > should do. I > > > > > > have posted before about " muscle quiverings " and spasms, > for > > > which I > > > > > > take flexeril once a day (as per Laurie's suggestion, > > docotr's > > > > > > prescription). now I find that with only minimal effort my > > > whole body > > > > > > seems to develop into this quiverying mass.( at least that > > is > > > what is > > > > > > feels like, only a few actual bigger spasms are visible to > > the > > > eye) My > > > > > > whole body feels tight and hard to move. The sensation does > > go > > > away- > > > > > > very gradually if I take extra flexeril. Is this what I > > should > > > be > > > > > > doing? What is causing this. it is most disconserting. it > is > > > only my > > > > > > family doc who is giving tme the flexeril, so she doesn;t > > > really know > > > > > > what is up.is fleseril the best way to handle this.? Should > > I > > > ask to > > > > > > go back to the neurologist for another assessment. I do > have > > an > > > > > > appointmnet for evoked potentials in late october. Anyway, > I > > > would > > > > > > really appreciate any light shed on this subject. Thanks so > > > much. I'm > > > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > > > contained herein are not necessarily those of the list > > moderators. > > > The > > > > author of this e mail is entirely responsible for its content. > > List > > > > members are reminded of their responsibility to evaluate the > > content > > > > of the postings and consult with their physicians regarding > > changes > > > in > > > > their own treatment. > > > > > > > > > > > > Personal attacks are not permitted on the list and anyone > who > > > > sends one is automatically moderated or removed depending on the > > > > severity of the attack. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 -dear Dawn, Now I have a heep of things to ask my family doc at my next appointment. i wil ask her to check my potassium level. I forgot, just how helpful all you groupies are, Thanks, Celia- - In , " venomvw " wrote: > A diuretic is very possibly the cause. You probably have an > electrolyte imbalance ( ie potassium or the like ). If your diet is > poor, maybe you should re-evaluate what your eating and whether that's > really in your best interest. Keep in mind, if you drink pop instead > of water for example, your very likely to be dehydrated from the sugar > and caffine. Sodium causes water retention too. I believe highly in > the power of water and good nutrition...not to mention exercise. > Without a good diet and regular exercise, it would be hard to get a > proper diagnosis if something else is going on medically. It's like a > smoker with a cough. > > bug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 -Hi, I don';t hink i have pneumonia or anything like that. These shakes seem to occur when i overdo it, although the last episode was when I have sat in the same position socializing for about three hours, Celia-- In , " ohgminion " wrote: > I tremble easily, but the worst " shakes " I got were when I had > pneumonia and didn't know it - no fever, no cough, but when I went to > the doctor for the shaking, my lungs were rattly and full of fluid. > > Take care, > RH > > > > > > dear Groupies, i must apologize for being so absent from this > site for > > > > so long. it's sort of a combination of my husband retiring and > being > > > > home all the time (not so much time to loll in front of the > computor) > > > > and being so discouraged medically in my docs, who can't figure > out > > > > what is wrong with me and prefer to say it is all in my head. > Anyway, > > > > i have been more or less going along with my usual problems > (except > > > > for the gastroparesis, but I have a great doc there) but lately > an > > > > existing problem is getting worse and I'm not sure what I > should do. I > > > > have posted before about " muscle quiverings " and spasms, for > which I > > > > take flexeril once a day (as per Laurie's suggestion, docotr's > > > > prescription). now I find that with only minimal effort my > whole body > > > > seems to develop into this quiverying mass.( at least that is > what is > > > > feels like, only a few actual bigger spasms are visible to the > eye) My > > > > whole body feels tight and hard to move. The sensation does go > away- > > > > very gradually if I take extra flexeril. Is this what I should > be > > > > doing? What is causing this. it is most disconserting. it is > only my > > > > family doc who is giving tme the flexeril, so she doesn;t > really know > > > > what is up.is fleseril the best way to handle this.? Should I > ask to > > > > go back to the neurologist for another assessment. I do have an > > > > appointmnet for evoked potentials in late october. Anyway, I > would > > > > really appreciate any light shed on this subject. Thanks so > much. I'm > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list moderators. > The > > author of this e mail is entirely responsible for its content. List > > members are reminded of their responsibility to evaluate the content > > of the postings and consult with their physicians regarding changes > in > > their own treatment. > > > > > > > > Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 -dear marla, Your description of " crawling " quivering muscles sounds like what I am experiencing. I think I';ll look up fascilations on the internet. My hands do tremor when I am using my hands, though not all the time, Celia -- In , " Marla " wrote: > I have muscle fascilations, the muscles quiver or crawl. They occur > in all my muscles, sometimes muscle cramping can occur at the same > time. When I described these as tremors, they told me I had > Parkinsons, which was not the case. Although my hands can tremor if > I'm holding something, guess that's from weakness. Caffiene, or > stress can make this worse. The mito cocktail has helped. > Marla > > > > > > > > dear Groupies, i must apologize for being so absent from > this > > site for > > > > > so long. it's sort of a combination of my husband retiring > and > > being > > > > > home all the time (not so much time to loll in front of the > > computor) > > > > > and being so discouraged medically in my docs, who can't > figure > > out > > > > > what is wrong with me and prefer to say it is all in my > head. > > Anyway, > > > > > i have been more or less going along with my usual problems > > (except > > > > > for the gastroparesis, but I have a great doc there) but > lately > > an > > > > > existing problem is getting worse and I'm not sure what I > > should do. I > > > > > have posted before about " muscle quiverings " and spasms, for > > which I > > > > > take flexeril once a day (as per Laurie's suggestion, > docotr's > > > > > prescription). now I find that with only minimal effort my > > whole body > > > > > seems to develop into this quiverying mass.( at least that > is > > what is > > > > > feels like, only a few actual bigger spasms are visible to > the > > eye) My > > > > > whole body feels tight and hard to move. The sensation does > go > > away- > > > > > very gradually if I take extra flexeril. Is this what I > should > > be > > > > > doing? What is causing this. it is most disconserting. it is > > only my > > > > > family doc who is giving tme the flexeril, so she doesn;t > > really know > > > > > what is up.is fleseril the best way to handle this.? Should > I > > ask to > > > > > go back to the neurologist for another assessment. I do have > an > > > > > appointmnet for evoked potentials in late october. Anyway, I > > would > > > > > really appreciate any light shed on this subject. Thanks so > > much. I'm > > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > > contained herein are not necessarily those of the list > moderators. > > The > > > author of this e mail is entirely responsible for its content. > List > > > members are reminded of their responsibility to evaluate the > content > > > of the postings and consult with their physicians regarding > changes > > in > > > their own treatment. > > > > > > > > > > Personal attacks are not permitted on the list and anyone who > > > sends one is automatically moderated or removed depending on the > > > severity of the attack. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 I am having more tremors these days and it sounds similar to what you are experiencing. I wish i had more insight to offer. ann Re: muscle quiverings -Hi, I don';t hink i have pneumonia or anything like that. These shakes seem to occur when i overdo it, although the last episode was when I have sat in the same position socializing for about three hours, Celia-- In , " ohgminion " wrote: > I tremble easily, but the worst " shakes " I got were when I had > pneumonia and didn't know it - no fever, no cough, but when I went to > the doctor for the shaking, my lungs were rattly and full of fluid. > > Take care, > RH > > > > > > dear Groupies, i must apologize for being so absent from this > site for > > > > so long. it's sort of a combination of my husband retiring and > being > > > > home all the time (not so much time to loll in front of the > computor) > > > > and being so discouraged medically in my docs, who can't figure > out > > > > what is wrong with me and prefer to say it is all in my head. > Anyway, > > > > i have been more or less going along with my usual problems > (except > > > > for the gastroparesis, but I have a great doc there) but lately > an > > > > existing problem is getting worse and I'm not sure what I > should do. I > > > > have posted before about " muscle quiverings " and spasms, for > which I > > > > take flexeril once a day (as per Laurie's suggestion, docotr's > > > > prescription). now I find that with only minimal effort my > whole body > > > > seems to develop into this quiverying mass.( at least that is > what is > > > > feels like, only a few actual bigger spasms are visible to the > eye) My > > > > whole body feels tight and hard to move. The sensation does go > away- > > > > very gradually if I take extra flexeril. Is this what I should > be > > > > doing? What is causing this. it is most disconserting. it is > only my > > > > family doc who is giving tme the flexeril, so she doesn;t > really know > > > > what is up.is fleseril the best way to handle this.? Should I > ask to > > > > go back to the neurologist for another assessment. I do have an > > > > appointmnet for evoked potentials in late october. Anyway, I > would > > > > really appreciate any light shed on this subject. Thanks so > much. I'm > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained herein are not necessarily those of the list moderators. > The > > author of this e mail is entirely responsible for its content. List > > members are reminded of their responsibility to evaluate the content > > of the postings and consult with their physicians regarding changes > in > > their own treatment. > > > > > > > > Personal attacks are not permitted on the list and anyone who > > sends one is automatically moderated or removed depending on the > > severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 The way I look at it, either the NADH treats " essential tremor " , or my dad has " mito tremors " . Thank goodness he responds to the NADH, my grandmother had them and they were very debilitating, especially the head ones. Take care, RH > > > > > > > dear Groupies, i must apologize for being so absent from > > > this > > > > site for > > > > > > > so long. it's sort of a combination of my husband retiring > > > and > > > > being > > > > > > > home all the time (not so much time to loll in front of the > > > > computor) > > > > > > > and being so discouraged medically in my docs, who can't > > > figure > > > > out > > > > > > > what is wrong with me and prefer to say it is all in my > > > head. > > > > Anyway, > > > > > > > i have been more or less going along with my usual problems > > > > (except > > > > > > > for the gastroparesis, but I have a great doc there) but > > > lately > > > > an > > > > > > > existing problem is getting worse and I'm not sure what I > > > > should do. I > > > > > > > have posted before about " muscle quiverings " and spasms, > > for > > > > which I > > > > > > > take flexeril once a day (as per Laurie's suggestion, > > > docotr's > > > > > > > prescription). now I find that with only minimal effort my > > > > whole body > > > > > > > seems to develop into this quiverying mass.( at least that > > > is > > > > what is > > > > > > > feels like, only a few actual bigger spasms are visible to > > > the > > > > eye) My > > > > > > > whole body feels tight and hard to move. The sensation does > > > go > > > > away- > > > > > > > very gradually if I take extra flexeril. Is this what I > > > should > > > > be > > > > > > > doing? What is causing this. it is most disconserting. it > > is > > > > only my > > > > > > > family doc who is giving tme the flexeril, so she doesn;t > > > > really know > > > > > > > what is up.is fleseril the best way to handle this.? Should > > > I > > > > ask to > > > > > > > go back to the neurologist for another assessment. I do > > have > > > an > > > > > > > appointmnet for evoked potentials in late october. Anyway, > > I > > > > would > > > > > > > really appreciate any light shed on this subject. Thanks so > > > > much. I'm > > > > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > > > > contained herein are not necessarily those of the list > > > moderators. > > > > The > > > > > author of this e mail is entirely responsible for its content. > > > List > > > > > members are reminded of their responsibility to evaluate the > > > content > > > > > of the postings and consult with their physicians regarding > > > changes > > > > in > > > > > their own treatment. > > > > > > > > > > > > > > Personal attacks are not permitted on the list and anyone > > who > > > > > sends one is automatically moderated or removed depending on the > > > > > severity of the attack. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Darn socializing You have to stop being a social butterfly LOL! I do get tired after talking for a long time, like at a meeting or a presentation. I almost collapsed after my doctoral defense, luckily there was a short flight of stairs with a rail to help me get back up to get my results. Take care, RH > > > > > dear Groupies, i must apologize for being so absent from this > > site for > > > > > so long. it's sort of a combination of my husband retiring and > > being > > > > > home all the time (not so much time to loll in front of the > > computor) > > > > > and being so discouraged medically in my docs, who can't figure > > out > > > > > what is wrong with me and prefer to say it is all in my head. > > Anyway, > > > > > i have been more or less going along with my usual problems > > (except > > > > > for the gastroparesis, but I have a great doc there) but lately > > an > > > > > existing problem is getting worse and I'm not sure what I > > should do. I > > > > > have posted before about " muscle quiverings " and spasms, for > > which I > > > > > take flexeril once a day (as per Laurie's suggestion, docotr's > > > > > prescription). now I find that with only minimal effort my > > whole body > > > > > seems to develop into this quiverying mass.( at least that is > > what is > > > > > feels like, only a few actual bigger spasms are visible to the > > eye) My > > > > > whole body feels tight and hard to move. The sensation does go > > away- > > > > > very gradually if I take extra flexeril. Is this what I should > > be > > > > > doing? What is causing this. it is most disconserting. it is > > only my > > > > > family doc who is giving tme the flexeril, so she doesn;t > > really know > > > > > what is up.is fleseril the best way to handle this.? Should I > > ask to > > > > > go back to the neurologist for another assessment. I do have an > > > > > appointmnet for evoked potentials in late october. Anyway, I > > would > > > > > really appreciate any light shed on this subject. Thanks so > > much. I'm > > > > > sorry I've been such a bad member of the group, Celia > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > > contained herein are not necessarily those of the list moderators. > > The > > > author of this e mail is entirely responsible for its content. List > > > members are reminded of their responsibility to evaluate the content > > > of the postings and consult with their physicians regarding changes > > in > > > their own treatment. > > > > > > > > > > Personal attacks are not permitted on the list and anyone who > > > sends one is automatically moderated or removed depending on the > > > severity of the attack. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 Celia, i have had for the last 6 years a " buzzing " or " noise " in my muscles that can only be felt by me. these are called fibrillations. over the last year, they have developed into the " crawling " or " twitching " of localized contractions ( " spasms " ) of larger muscles that are called fasiculations. these get worse with over-exertion for me and go into actual cramps or into the prolonged tightness but not complete cramping of the entire muscle which is called myoclonus. these can be symptoms of many diseases. besides mito, my team of docs is looking into IBM, which is 10 times rarer than mito, but that is because i am a middle aged white male, which makes IBM more likely. they have not been able to give me an actual disgnosis, yet, however. the muscle relaxant, tizanidine (Zanaflex) helps me sleep through these symptoms (see a separate post). i have had emgs with evoked potentials more than once, but the value of these depends on the skill of the person performing and evaluating them. case in point, i had a definite fasciculation while one neuro was using the emg needles. when i told him what had just happened, he said it was only " insertional activity " . i, however, know my own body and he doesn't. needless (or needleless) to say, that doc is no longer part of my team. hope some of this helps. kent > dear Groupies, i must apologize for being so absent from this site for > so long. it's sort of a combination of my husband retiring and being > home all the time (not so much time to loll in front of the computor) > and being so discouraged medically in my docs, who can't figure out > what is wrong with me and prefer to say it is all in my head. Anyway, > i have been more or less going along with my usual problems (except > for the gastroparesis, but I have a great doc there) but lately an > existing problem is getting worse and I'm not sure what I should do. I > have posted before about " muscle quiverings " and spasms, for which I > take flexeril once a day (as per Laurie's suggestion, docotr's > prescription). now I find that with only minimal effort my whole body > seems to develop into this quiverying mass.( at least that is what is > feels like, only a few actual bigger spasms are visible to the eye) My > whole body feels tight and hard to move. The sensation does go away- > very gradually if I take extra flexeril. Is this what I should be > doing? What is causing this. it is most disconserting. it is only my > family doc who is giving tme the flexeril, so she doesn;t really know > what is up.is fleseril the best way to handle this.? Should I ask to > go back to the neurologist for another assessment. I do have an > appointmnet for evoked potentials in late october. Anyway, I would > really appreciate any light shed on this subject. Thanks so much. I'm > sorry I've been such a bad member of the group, Celia Quote Link to comment Share on other sites More sharing options...
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