Mayo Clinic was: Re: Dr. P

September 9, 2005

Joanne,

I am sorry that you were led to believe that he would be returning. I

first heard that he was going to Boston and was going to start to see

Mito patients there, but after I did some more digging I found out

that he was no longer going to see any patients and was going to a

biotech firm.

I know how hard it is to find a great doctor to follow us especially

since our medical needs are so complicated and rare. I hope you are

able to find someone to follow and treat your girls. Best of Luck.

Hugs,

Ann-Marie

At 12:30 AM 9/10/2005, you wrote:

>Hi Kim,

>

>Dr. Whiteman WAS at Mayo. Many of us who were

>followed by him are now desperately trying to figure

>out what we are going to do. Dr. Whiteman is

>currently workign in the Pharma industry on the East

>Coast. I was led to believe he would be returning to

>clinical practice after he received his medical

>license in that State, but from what I've heard

>recently, I don't know if that is still true. It is

>true that Mayo does NOT do fresh muscle biopsies.

>They do, though, do complete RTC evaluation on skin

>fibroblasts. If the skin fibroblast study is

>postivie, then an individual may not need a muscle

>biopsy. A negative skin fibroblast study does NOT

>rule mito

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