Re: Re: How many hours a day-really?

[Guest guest]

Absolutely, you can ask. I trusted my son's pediatrian who recommended an

orthopedic (sorry my spelling sucks) doctor who swore he could fix club feet

with no problem. Six months and about 250 castings later.....my son was still

hobbling around on his outer ankles instead of the bottoms of his feet. Doc

recommended AFO's and physical therapy. Eighteen months of that, (at about $700

a pop for the AFO's he kept out growing!) still hobbling around in pain on

twisted up feet......by now was about 21 months old I think and the ortho

decided to do major reconstructive surgery.

That just didn't feel right to me - I couldn't make myself agree to it. Little

by little I began searching and miraculiously found this board only a couple

months after it had been formed! The photos and testimonials convinced me to

email photos of 's feet to Dr. Ponseti. Ponseti called me at home and said

to come right away so I booked an Angel Flight. Ponseti's clinic attempted to

recast for several months, (lugging a large 2 year old in casts was fun!

haha) we attempted the DBB, it chewed his feet in to hamburger and caused a

serious infection....but in the end the fact was he was really too far gone to

rescue non-surgically by that age so they did that ATTT operation. Not as bad

as the ortho wanted to do, granted, but it wasn't exactly a complete success

either. His feet are still very stiff, he has serious in-toeing; he cannot

squat down, nor bend at the waist all the way to the ground because his ankles

won't flex enough. He still sufferes pain on occasion if he's on his feet too

much, he has balance issues cuz he can't really stand on one foot, he can't

jump much due to stiffness....

Not as bad as some stories out there, I realize....but not nearly as good as

others either, including his baby brothers. went through 2 1/2 years of

misery to get what he ended up with. Everett went through 5 weeks of casting

and so far 15 months of the DBB to have perfect feet. He can squat, bend, run,

his feet have no issues (knock on wood).

Any other questions you have you're welcome to ask.

s.

How many hours a day-really?

>

>

>

>

>

> Hello, I'm new to this group. I had emailed the distributor of

the

> Markell shoes complaining of the difficulty we had in keeping them

> on our son and they recommended I check out this group. They also

> sent me instructions on how to properly use the shoes, something

> neither the orthopedic surgeon nor the orthotics clinic bothered

to

> do. The surgeon said he needed to be in the shoes 24/7, but we're

> having a tough time sticking to it. Multiple reasons - the baby

> kicks them off, his feet get sweaty, the way the shoes are

attached

> to the bar(they used wingnuts with bolts coming out that poke us

> instead of the shoe platform), and it's hard for my husband to tie

> the little laces.

> Anyone else willing to fess up that they don't keep the poor

things

> strapped in 24/7?

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

awww... and I thought you hung around because you liked the company here :~}

I put pictures of Darbi in the Tips file where I have my signature at the

bottom of the introduction. I have one of her face and one of her feet. I

would say pictures of your boys would be a great thing. Let me know when

you've got it all worked up and we can add it to the files section on CFPics.

Kori

At 02:50 PM 2/24/2005, you wrote:

>I didn't know about that but hey, thanks for the vote of

>confidence. I'll work on that for you. I didn't know I was gathering my

>own clubfoot fan club! LOL! If my camera will cooperate, can I add photos

>of each boy to it? You know it's too late to change 's treatment,

>but by his experience I hope to save other babies his misery - that's

>about the only reason I hang around this board anymore, to hopefully give

>some meaning to his poor feet.

>

>ee, mother of two bcf boys:

> - NON Ponseti Method Club Foot Disaster

>Everett - Dr. Ponseti Success Story

>

> Re: How many hours a day-really?

>

>

>

>

>Not to speak for ee, but maybe to save her some typing... she

>has had at least two posts in the recent past that have really moved

>me regarding the comparison between her two sons' treatments.

>(in fact, ee, I wanted you to cut and paste it into the

>testimonials section on the ponseti_links board- hint hint =)).

>If you sign into this group's website, you can access these archived

>posts by typing in the post number into the appropriate box-

>read post # 24277 and post # 24903.

>Regards,

> & (3-16-00), left clubfoot

>

>

>

>

>

[Guest guest]

I'm sorry ee, I hope I didn't offend you. I really didn't intend to.

And I am sorry about 's horrible feet. Everytime I read about his

story it breaks my heart.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax