Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 RED FLAG!!! The Ponseti Method should never be modified. Run, far away from any doc who does this and find one who follows it precisely. They modify it and the results are less than optimal. When you said her feet relapsed in 2w, well that's a big sign she absolutely needs a doc who knows what the heck s/he's doing. Change docs as many times as you need to, who cares what they think anyway? It's YOUR child and HER life and HER feet. Not theirs. THEY don't have to live the rest of their life with messed up feet, THEY don't have to live with a child who has painful and stiff feet that don't work well as their child grows up. THEY don't have to listen to a child cry because they can't run and jump like the other kids. THEY don't have to take care of a child who has had her foot splayed open, bones and tendons moved, etc. THEY don't have to care for a child who has to use a wheelchair for school after surgery. THEY don't have to accept the risk of infection from surgery for their child (yes, this happens all the time. My dad has spent the last two years fighting a deadly staph infection from just one surgery - all surgery has serious risks). Lots of things that DO NOT affect a doc. It is your right as a patient to get the kind of care you desire and deserve. Both for yourself and for your child. Don't let any doc make you feel bad about switching or seeking second opinions... for anything. A doc who gives you grief about this is exactly the kind of doc you do not want to trust the care of your child or yourself in. To respond to the rest of this post, there is no reason why the child can't get the brace immediately after casting is completed. If so, it's another modification. The shoes should be fitted before the last casting is done, and the brace ordered and available when you go to get the cast removed. If it's not there, the cast should be left on or replaced to maintain the correction till it comes in. If this can't happen... you run to the next doc on your list. There is simply no excuse for not having the brace available immediately. You've seen how fast these feet can relapse, imagine if no splint (I assume an AFO -plastic molded things right?) was on the feet. This is why it's imperative that the child wear the FAB/DBB 23/7 for 3 months, and after that reduce hours *slowly* over the next year till they're walking and can go to nights and naps only (12-14hr/d). The foot must remain overcorrected, a foot that points straight forward is not corrected enough to stay corrected. It should absolutely be turned very far to the outside (abduction - 70 degrees) or it will relapse. Don't worry about this, it will point normally eventually. OK - got myself a little worked up here lol... And I just read your latest post... this one didn't get sent yet because I was thinking I was too worked up. Girl... RUN from those hospitals. They will not help your child's feet! Kori Darbi - 3/28/03 Rt. CF - FAB 12-14hr/d At 11:20 AM 2/24/2005, you wrote: >We already changed doctor but it was in the same hospital so I do not know >whether it counts for change.As far as I remember it was called " modified >Poncetti " . She was in splints these two weeks, sorry for making wrong >impression she was left with nothing. I'm worried as well if I'll go for >another doctor he might say he can not fit the bar not immediately after >plaster. >She is 3 month and 3 weeks now. > > > > >jennyandkelly jenrichtrevillian@...> wrote: > >Many of us here understand your fears and frustrations. >I would venture to guess that at least half, if not more, of our >group started off with one doctor and ended up switching to another >doctor (I think there is a poll regarding this in the website's >polls section). It can be intimidating to say the least to start >questioning what your child's physician is telling you- but once you >educate yourself on the different options for treatment of talipes >(clubfoot) you could quite possibly end up knowing *more* about it >than your physician. Reading the testimonials of the various >families here (from all over the world) will definitely let you know >that you are not alone and please take it from our experiences that >blindly trusting a doctor can lead you down some long and uncertain >paths in clubfoot treatment. Does your current doctor claim to be >using the Ponseti method? Just to clarify- using an AFO does not >mean that there will be 100% guarantee of relapse. However, there >is a higher risk of relapse with an AFO compared to the FAB. There >is an even higher risk of relapse if left unbraced- as you saw with >your daughter. How old is she now?? >As to a top-notch doctor in Scotland- I would highly recommend Dr. > Short. Here is her contact information off of Dr. Ponseti's >website: > Short, M.D. >Crosshouse Hospital >Kilmarnock >Ayrshire KA2 0BE Scotland >United Kingdom >email: rachel.short@... > >Here is a link to Dr. Ponseti's qualified physician's list: >http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians. >html > >I met Dr. Short in July/August of 2000 when we were in Iowa City >having my daughter treated by Dr. Ponseti. She was there training >with him in person and actually helped to apply the plasters to my >daughter at 2 of the appointments. She was wonderful. > >In addition to reviewing Dr. Ponseti's site above, please feel free >to visit this site: http://pages.ivillage.com/ponseti_links >Here's my daughter's website if you're interested: >http://ponseticlubfoot.freeservers.com/ >Ask any questions- we're here for you! >Best wishes- > & (3-16-00) >left clubfoot, switched to Ponseti method at 4 mo. old > > > > > > > Sorry I have asked about and then red they are AFO splints. > > > > > > --------------------------------- > > 250MB gratis, Antivirus y Antispam > > Correo Yahoo!, el mejor correo web del mundo > > Abrí tu cuenta aquí > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Go get 'em Kori! s. Re: Re: spint tipe RED FLAG!!! The Ponseti Method should never be modified. Run, far away from any doc who does this and find one who follows it precisely. They modify it and the results are less than optimal. When you said her feet relapsed in 2w, well that's a big sign she absolutely needs a doc who knows what the heck s/he's doing. Change docs as many times as you need to, who cares what they think anyway? It's YOUR child and HER life and HER feet. Not theirs. THEY don't have to live the rest of their life with messed up feet, THEY don't have to live with a child who has painful and stiff feet that don't work well as their child grows up. THEY don't have to listen to a child cry because they can't run and jump like the other kids. THEY don't have to take care of a child who has had her foot splayed open, bones and tendons moved, etc. THEY don't have to care for a child who has to use a wheelchair for school after surgery. THEY don't have to accept the risk of infection from surgery for their child (yes, this happens all the time. My dad has spent the last two years fighting a deadly staph infection from just one surgery - all surgery has serious risks). Lots of things that DO NOT affect a doc. It is your right as a patient to get the kind of care you desire and deserve. Both for yourself and for your child. Don't let any doc make you feel bad about switching or seeking second opinions... for anything. A doc who gives you grief about this is exactly the kind of doc you do not want to trust the care of your child or yourself in. To respond to the rest of this post, there is no reason why the child can't get the brace immediately after casting is completed. If so, it's another modification. The shoes should be fitted before the last casting is done, and the brace ordered and available when you go to get the cast removed. If it's not there, the cast should be left on or replaced to maintain the correction till it comes in. If this can't happen... you run to the next doc on your list. There is simply no excuse for not having the brace available immediately. You've seen how fast these feet can relapse, imagine if no splint (I assume an AFO -plastic molded things right?) was on the feet. This is why it's imperative that the child wear the FAB/DBB 23/7 for 3 months, and after that reduce hours *slowly* over the next year till they're walking and can go to nights and naps only (12-14hr/d). The foot must remain overcorrected, a foot that points straight forward is not corrected enough to stay corrected. It should absolutely be turned very far to the outside (abduction - 70 degrees) or it will relapse. Don't worry about this, it will point normally eventually. OK - got myself a little worked up here lol... And I just read your latest post... this one didn't get sent yet because I was thinking I was too worked up. Girl... RUN from those hospitals. They will not help your child's feet! Kori Darbi - 3/28/03 Rt. CF - FAB 12-14hr/d At 11:20 AM 2/24/2005, you wrote: >We already changed doctor but it was in the same hospital so I do not know >whether it counts for change.As far as I remember it was called " modified >Poncetti " . She was in splints these two weeks, sorry for making wrong >impression she was left with nothing. I'm worried as well if I'll go for >another doctor he might say he can not fit the bar not immediately after >plaster. >She is 3 month and 3 weeks now. > > > > >jennyandkelly jenrichtrevillian@...> wrote: > >Many of us here understand your fears and frustrations. >I would venture to guess that at least half, if not more, of our >group started off with one doctor and ended up switching to another >doctor (I think there is a poll regarding this in the website's >polls section). It can be intimidating to say the least to start >questioning what your child's physician is telling you- but once you >educate yourself on the different options for treatment of talipes >(clubfoot) you could quite possibly end up knowing *more* about it >than your physician. Reading the testimonials of the various >families here (from all over the world) will definitely let you know >that you are not alone and please take it from our experiences that >blindly trusting a doctor can lead you down some long and uncertain >paths in clubfoot treatment. Does your current doctor claim to be >using the Ponseti method? Just to clarify- using an AFO does not >mean that there will be 100% guarantee of relapse. However, there >is a higher risk of relapse with an AFO compared to the FAB. There >is an even higher risk of relapse if left unbraced- as you saw with >your daughter. How old is she now?? >As to a top-notch doctor in Scotland- I would highly recommend Dr. > Short. Here is her contact information off of Dr. Ponseti's >website: > Short, M.D. >Crosshouse Hospital >Kilmarnock >Ayrshire KA2 0BE Scotland >United Kingdom >email: rachel.short@... > >Here is a link to Dr. Ponseti's qualified physician's list: >http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/physicians. >html > >I met Dr. Short in July/August of 2000 when we were in Iowa City >having my daughter treated by Dr. Ponseti. She was there training >with him in person and actually helped to apply the plasters to my >daughter at 2 of the appointments. She was wonderful. > >In addition to reviewing Dr. Ponseti's site above, please feel free >to visit this site: http://pages.ivillage.com/ponseti_links >Here's my daughter's website if you're interested: >http://ponseticlubfoot.freeservers.com/ >Ask any questions- we're here for you! >Best wishes- > & (3-16-00) >left clubfoot, switched to Ponseti method at 4 mo. old > > > > > > > Sorry I have asked about and then red they are AFO splints. > > > > > > --------------------------------- > > 250MB gratis, Antivirus y Antispam > > Correo Yahoo!, el mejor correo web del mundo > > Abrí tu cuenta aquí > > > > Quote Link to comment Share on other sites More sharing options...
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