Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Barbara I've had no experience with Topamax, but the Lamictal I take and the anticonvulsants that my son took were very effective. laurie > Is there anyone in the group who is taking Topamax as treatment for > migraines? I'd be interested in knowing how effective it is for you in > controlling severity and frequency and what kinds of side effects you have > experienced. My neurologist has mentioned Topamax as a possible treatment > for my increasing migraines, but I am wary. > > Barbara > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Barbara Seaman wheatchild@...> wrote: Is there anyone in the group who is taking Topamax as treatment for migraines? My son took it for a while but it was ineffective. He's had some luck with Neurontin. He's also on Lamictal now and we're thinking about adding the topamax back to see if he does better with the combo. We've tried a variety of things for headache with little success. The docs in our area usually try meds in this order: periactin, elavil, propananol, depakote, topamax, neuronotin, then go through the various anti-seizure meds. Migraine and seizures are closely related and that's why there has been some success with seizure meds. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Yes! I did ask my neurologist about Lamictal when he mentioned Topamax, because I remembered hearing about it from you and others. His take is that Topamax is a better bet at this point, being thoroughly studied and proven effective for migraines and FDA approved for that purpose. He thinks the jury is still out on Lamictal for migraines. He only has 2 patients on it with equivocal results, but has many on Topamax. This is just his opinion, but he felt much more confident recommending Topamax over Lamictal at this point. Thanks for the input. Barbara > Re: Topamax for migraines > > Barbara > > I've had no experience with Topamax, but the Lamictal I take and the > anticonvulsants that my son took were very effective. > > laurie > > > > Is there anyone in the group who is taking Topamax as treatment for > > migraines? I'd be interested in knowing how effective it is for you in > > controlling severity and frequency and what kinds of side effects you have > > experienced. My neurologist has mentioned Topamax as a possible treatment > > for my increasing migraines, but I am wary. > > > > Barbara > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein are > not necessarily those of the list moderators. The author of this e mail is entirely > responsible for its content. List members are reminded of their responsibility to > evaluate the content of the postings and consult with their physicians regarding > changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Barbara I am on the Lamictal for myoclonus, but it has had a positive effect on my migraines. The headpain clinic my son and I use to go to use combinations of meds in smaller amounts for prevention and then try NSAIDS for break-through migraines. My son was on just about every combination - usually three meds together. He would get good control and it would last 2-3 years and then it would have to be adjusted. An anticonvulsant was always a part of the mix for him. laurie > Yes! I did ask my neurologist about Lamictal when he mentioned Topamax, > because I remembered hearing about it from you and others. His take is that > Topamax is a better bet at this point, being thoroughly studied and proven > effective for migraines and FDA approved for that purpose. He thinks the > jury is still out on Lamictal for migraines. He only has 2 patients on it > with equivocal results, but has many on Topamax. This is just his opinion, > but he felt much more confident recommending Topamax over Lamictal at this > point. > > Thanks for the input. > Barbara > > > Re: Topamax for migraines > > > > Barbara > > > > I've had no experience with Topamax, but the Lamictal I take and the > > anticonvulsants that my son took were very effective. > > > > laurie > > > > > > > Is there anyone in the group who is taking Topamax as treatment for > > > migraines? I'd be interested in knowing how effective it is for you in > > > controlling severity and frequency and what kinds of side effects you > have > > > experienced. My neurologist has mentioned Topamax as a possible > treatment > > > for my increasing migraines, but I am wary. > > > > > > Barbara > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained > herein are > > not necessarily those of the list moderators. The author of this e mail is > entirely > > responsible for its content. List members are reminded of their > responsibility to > > evaluate the content of the postings and consult with their physicians > regarding > > changes in their own treatment. > > > > > > Personal attacks are not permitted on the list and anyone who sends one > is > > automatically moderated or removed depending on the severity of the > attack. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Has your son eliminated the foods known as triggers for migraines and environmental fumes? laurie > > > Barbara Seaman wheatchild@...> wrote: > Is there anyone in the group who is taking Topamax as treatment for > migraines? > > > > My son took it for a while but it was ineffective. He's had some luck with Neurontin. He's also on Lamictal now and we're thinking about adding the topamax back to see if he does better with the combo. > > We've tried a variety of things for headache with little success. The docs in our area usually try meds in this order: periactin, elavil, propananol, depakote, topamax, neuronotin, then go through the various anti-seizure meds. Migraine and seizures are closely related and that's why there has been some success with seizure meds. > > > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Thanks for the response, . The meds list is interesting. I've had the first three with very negative side effects. Depakote I will always refuse, as it is a known trigger for rhabdomyolysis in CPT and my neurologist says he doesn't like it anyway. Neurontin has not been offered for my migraines, only neuropathy, but I have declined anyway. We've found better ways to address the neuropathy through metabolic support. I have been on an NSAID, Voltaren, for close to 20 years. In the beginning it helped with the migraines, but it isn't now, though that is not the reason I am taking it. Just a happy side-effect. Barbara > Re: Topamax for migraines > > Barbara Seaman wheatchild@...> wrote: > Is there anyone in the group who is taking Topamax as treatment for > migraines? > > My son took it for a while but it was ineffective. He's had some luck with Neurontin. > He's also on Lamictal now and we're thinking about adding the topamax back to > see if he does better with the combo. > > We've tried a variety of things for headache with little success. The docs in our area > usually try meds in this order: periactin, elavil, propananol, depakote, topamax, > neuronotin, then go through the various anti-seizure meds. Migraine and seizures > are closely related and that's why there has been some success with seizure meds. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 NSAIDS don't help with my migraines anymore, unfortunately. Currently I am trying Midrin. Several doctors have been reluctant to give me any of the triptans due to certain aspects of my history. Mostly I chew ice, use a cold wet washcloth and wait it out--usually three days. They can be as frequent as one a week now, which means I am spending almost half my time with migraines. Hopefully we can find a way to safely reduce this. Barbara > Re: Topamax for migraines > > Barbara > > I am on the Lamictal for myoclonus, but it has had a positive effect > on my migraines. > > The headpain clinic my son and I use to go to use combinations of meds > in smaller amounts for prevention and then try NSAIDS for > break-through migraines. My son was on just about every combination - > usually three meds together. He would get good control and it would > last 2-3 years and then it would have to be adjusted. An > anticonvulsant was always a part of the mix for him. > > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Barbara I hope something can be found to help with your migraines. My son had 6 months of non-stop migraine. It was at that time that we switched treatment facilities and they hospitalized him until they had them under control. Part of the treatment was education of things that could be done to help. He is back on a single preventative, but was able to go about 8 years without preventative treatment after several years of tight control. laurie > NSAIDS don't help with my migraines anymore, unfortunately. Currently I am > trying Midrin. Several doctors have been reluctant to give me any of the > triptans due to certain aspects of my history. Mostly I chew ice, use a cold > wet washcloth and wait it out--usually three days. They can be as frequent > as one a week now, which means I am spending almost half my time with > migraines. Hopefully we can find a way to safely reduce this. > > Barbara > > > > Re: Topamax for migraines > > > > Barbara > > > > I am on the Lamictal for myoclonus, but it has had a positive effect > > on my migraines. > > > > The headpain clinic my son and I use to go to use combinations of meds > > in smaller amounts for prevention and then try NSAIDS for > > break-through migraines. My son was on just about every combination - > > usually three meds together. He would get good control and it would > > last 2-3 years and then it would have to be adjusted. An > > anticonvulsant was always a part of the mix for him. > > > > laurie > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 --- Laurie Fitzgerald laurie.fitzgerald@...> wrote: > > > Has your son eliminated the foods known as triggers > for migraines and > environmental fumes? > He's not really exposed to environmental fumes. Nobody smokes. He doesn't even go to school. He has no food triggers. He's always in pain---every moment of the day. He eats very little and keeps gaining weight. He has no known allergies. Has sleep issues that aggrivate the headache but sleeping pills didn't work well at all. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 --- Barbara Seaman wheatchild@...> wrote: > Thanks for the response, . The meds list is > interesting. The list is the order of med prescribing both locally in central IL and also in Wisconsin---from multiple neuros. We've tried everything on the list. Had to stop the propananol (which helped only a little) because our son developed asthma. We tried the depakote before we realized that mito may be an issue. I would really try the neurontin. It has a low side effect profile. It's helped better than anything. Also, many mito patients have some relief from 600-800 mg of Vitamin B-2 per day. Our son weighs about 188lbs and takes 1200 mg of neurontin 3X/day. He also takes 200 mg Vitamin B-2 three times daily. We just started the Vit B about three weeks ago. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie ______________________________________________________ Yahoo! for Good Donate to the Hurricane Katrina relief effort. http://store.yahoo.com/redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Barbara, I'm assuming you are either already taking B2 (400mg) daily already or have at least tried it for 3 or 4 months to see if it helps with the frequency and intensity. It has been a like a miracle for my daughter and myself. I get full blown migraines so seldom now, I am really surprised when I get one. Barbara Seaman wrote: >NSAIDS don't help with my migraines anymore, unfortunately. Currently I am >trying Midrin. Several doctors have been reluctant to give me any of the >triptans due to certain aspects of my history. Mostly I chew ice, use a cold >wet washcloth and wait it out--usually three days. They can be as frequent >as one a week now, which means I am spending almost half my time with >migraines. Hopefully we can find a way to safely reduce this. > >Barbara > > > > >> Re: Topamax for migraines >> >>Barbara >> >>I am on the Lamictal for myoclonus, but it has had a positive effect >>on my migraines. >> >>The headpain clinic my son and I use to go to use combinations of meds >>in smaller amounts for prevention and then try NSAIDS for >>break-through migraines. My son was on just about every combination - >>usually three meds together. He would get good control and it would >>last 2-3 years and then it would have to be adjusted. An >>anticonvulsant was always a part of the mix for him. >> >>laurie >> >> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 , Make sure your son takes the B2 for at least 3 to 4 months before deciding it isn't doing anything. I can take that long to see results. Dr. Cohen has said the dose doesn't need to be split up at all. He recommends either taking it at night so that the strong urine smell can be gotten rid of first thing in the morning, or if that isn't an issue with you and taking it at night keeps you awake, it can be taken at any time of the day that works best for you. Van Verst wrote: >--- Barbara Seaman wheatchild@...> >wrote: > > > >>Thanks for the response, . The meds list is >>interesting. >> >> > >The list is the order of med prescribing both locally >in central IL and also in Wisconsin---from multiple >neuros. We've tried everything on the list. Had to >stop the propananol (which helped only a little) >because our son developed asthma. We tried the >depakote before we realized that mito may be an issue. >I would really try the neurontin. It has a low side >effect profile. It's helped better than anything. >Also, many mito patients have some relief from 600-800 >mg of Vitamin B-2 per day. Our son weighs about 188lbs >and takes 1200 mg of neurontin 3X/day. He also takes >200 mg Vitamin B-2 three times daily. We just started >the Vit B about three weeks ago. > > > > > > > >Mom to the two best kids in the world! >http://www.caringbridge.org/visit/thomasandkatie > > > > >______________________________________________________ >Yahoo! for Good >Donate to the Hurricane Katrina relief effort. >http://store.yahoo.com/redcross-donate3/ > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Has he had a sleep study? If he has sleep issues and headaches, they can be very related. Van Verst wrote: >--- Laurie Fitzgerald laurie.fitzgerald@...> >wrote: > > > >> >> >>Has your son eliminated the foods known as triggers >>for migraines and >>environmental fumes? >> >> >> > >He's not really exposed to environmental fumes. Nobody >smokes. He doesn't even go to school. He has no food >triggers. He's always in pain---every moment of the >day. He eats very little and keeps gaining weight. He >has no known allergies. Has sleep issues that >aggrivate the headache but sleeping pills didn't work >well at all. > > > >Mom to the two best kids in the world! >http://www.caringbridge.org/visit/thomasandkatie > > > >__________________________________ >Yahoo! Mail - PC Magazine Editors' Choice 2005 >http://mail.yahoo.com > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 --- dgregori dgregori@...> wrote: > , > > Make sure your son takes the B2 for at least 3 to 4 > months before > deciding it isn't doing anything. I can take that > long to see results. > Dr. Cohen has said the dose doesn't need to be split > up at all. I know that this sounds silly but much of the reason it is split is that he has too many pills to take at any one time if we don't divide the dose. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 --- dgregori dgregori@...> wrote: > Has he had a sleep study? If he has sleep issues > and headaches, they > can be very related. Yep, he has restless leg syndrome but no other abnormalities yet. His sister hypoventilates. He has extreme fatigue and either does not sleep at all or sleeps 20 hours/day. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 I have been on riboflavin since 1988 and get significant help from it for myopathy, but it doesn't help my migraines at all. I wish it did. Thanks, Barbara > RE: Topamax for migraines > > --- Barbara Seaman wheatchild@...> > wrote: > > > Thanks for the response, . The meds list is > > interesting. > > The list is the order of med prescribing both locally > in central IL and also in Wisconsin---from multiple > neuros. We've tried everything on the list. Had to > stop the propananol (which helped only a little) > because our son developed asthma. We tried the > depakote before we realized that mito may be an issue. > I would really try the neurontin. It has a low side > effect profile. It's helped better than anything. > Also, many mito patients have some relief from 600-800 > mg of Vitamin B-2 per day. Our son weighs about 188lbs > and takes 1200 mg of neurontin 3X/day. He also takes > 200 mg Vitamin B-2 three times daily. We just started > the Vit B about three weeks ago. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Barbara, How much do you take, I'm just curious? Look at it this way, if you stopped they might be even worse. So maybe it is helping after all. I wouldn't stop taking it just to find out though. Barbara Seaman wrote: >I have been on riboflavin since 1988 and get significant help from it for >myopathy, but it doesn't help my migraines at all. I wish it did. > >Thanks, >Barbara > > > >> RE: Topamax for migraines >> >>--- Barbara Seaman wheatchild@...> >>wrote: >> >> >> >>>Thanks for the response, . The meds list is >>>interesting. >>> >>> >>The list is the order of med prescribing both locally >>in central IL and also in Wisconsin---from multiple >>neuros. We've tried everything on the list. Had to >>stop the propananol (which helped only a little) >>because our son developed asthma. We tried the >>depakote before we realized that mito may be an issue. >>I would really try the neurontin. It has a low side >>effect profile. It's helped better than anything. >>Also, many mito patients have some relief from 600-800 >>mg of Vitamin B-2 per day. Our son weighs about 188lbs >>and takes 1200 mg of neurontin 3X/day. He also takes >>200 mg Vitamin B-2 three times daily. We just started >>the Vit B about three weeks ago. >> >> >> >> > > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Like I said, whatever way it works for him. I just thought I would share that there doesn't seem to be any benefit, migraine wise, taking it in split doses over taking it all at once. YMMV. Van Verst wrote: >--- dgregori dgregori@...> wrote: > > > >>, >> >>Make sure your son takes the B2 for at least 3 to 4 >>months before >>deciding it isn't doing anything. I can take that >>long to see results. >>Dr. Cohen has said the dose doesn't need to be split >>up at all. >> >> > >I know that this sounds silly but much of the reason >it is split is that he has too many pills to take at >any one time if we don't divide the dose. > > > >Mom to the two best kids in the world! >http://www.caringbridge.org/visit/thomasandkatie > > > >__________________________________ >Yahoo! Mail - PC Magazine Editors' Choice 2005 >http://mail.yahoo.com > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 How old is he? I don't recall. Van Verst wrote: >--- dgregori dgregori@...> wrote: > > > >>Has he had a sleep study? If he has sleep issues >>and headaches, they >>can be very related. >> >> > >Yep, he has restless leg syndrome but no other >abnormalities yet. His sister hypoventilates. He has >extreme fatigue and either does not sleep at all or >sleeps 20 hours/day. > > > >Mom to the two best kids in the world! >http://www.caringbridge.org/visit/thomasandkatie > > > >__________________________________ >Yahoo! Mail - PC Magazine Editors' Choice 2005 >http://mail.yahoo.com > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 I've been as high as 400 mg, but I get no more benefit from the higher dose. Also re flavins, when I had my skin biopsy in 1998, Dr. said that when he put my fibroblasts in the centrifuge, they turned bright yellow. He had never seen fibroblasts do that, and he's a fibroblast expert. Various other experts were consulted and the consensus was that the yellow color is likely an accumulation of flavins. No one has suggested that this represents any toxicity, but still I see no point in taking high amounts of flavins if I'm not benefiting from them. Just one more strange thing! Barbara > Re: Topamax for migraines > > Barbara, > > How much do you take, I'm just curious? Look at it this way, if you > stopped they might be even worse. So maybe it is helping after all. I > wouldn't stop taking it just to find out though. > > > > Barbara Seaman wrote: > > >I have been on riboflavin since 1988 and get significant help from it for > >myopathy, but it doesn't help my migraines at all. I wish it did. > > > >Thanks, > >Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 --- dgregori dgregori@...> wrote: > How old is he? I don't recall. > He's 16. He'll be 17 in October. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 I was on 400 mg for 6 months. B > Re: Topamax for migraines > > Barbara, > > I'm assuming you are either already taking B2 (400mg) daily already or > have at least tried it for 3 or 4 months to see if it helps with the > frequency and intensity. It has been a like a miracle for my daughter > and myself. I get full blown migraines so seldom now, I am really > surprised when I get one. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Thanks, Laurie, and to all others for the responses. Much appreciated. I have a great neurologist, so I think he will find some way to help me. Barbara > Re: Topamax for migraines > > Barbara > > I hope something can be found to help with your migraines. My son had > 6 months of non-stop migraine. It was at that time that we switched > treatment facilities and they hospitalized him until they had them > under control. Part of the treatment was education of things that > could be done to help. He is back on a single preventative, but was > able to go about 8 years without preventative treatment after several > years of tight control. > > laurie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Barbara, I am going though issues with migraines and headaches with the SLE's right now. My neurologist is confused, as we can't break it. He has me on Midrin, which helps if I take it as soon as I feel a headache is coming on, but not after it is here. It also gives me a feeling of being " hung over " the next day. I was told by another neuro not to use triptans or things like Imitrex, if one has a history of SLE's, and if I remember, you do. I can only think of her saying something about the constriction of blood vessels. Of course, all doctors have their own opinions of what should and shouldn't be taken. I was on Topamax a couple years ago, but when I was finally on a therapeutic dose, it made me really spacy. This does not happen to everyone though. Good luck and I hope you can find some relief from your migraines. Smiles, a On Wed, 21 Sep 2005 16:31:13 -0500 " Barbara Seaman " wheatchild@...> writes: Currently I am trying Midrin. Several doctors have been reluctant to give me any of the triptans due to certain aspects of my history. Mostly I chew ice, use a cold wet washcloth and wait it out--usually three days. They can be as frequent as one a week now, which means I am spending almost half my time with migraines. Hopefully we can find a way to safely reduce this. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 Hi a, Good to see your trademark smiles, in spite of all the migraines. Thanks for the post. It is SO reassuring to talk to someone who has similar issues and been through similar drug trials. My headaches and migraines seem to be independent of my SLEs, though I can get a droop on the left side of my face with a really bad migraine. But I never have migraine and garbled speech simultaneously, thank goodness. I am glad to hear you get help from Midrin. I am very hopeful it will help me too. Time will tell. Do you need more than one dose to get results? My neuro said I could take one every 2 hours, up to 5 a day. Yes, the triptans are vaso-constrictors which is why no one wants to give them to me. And it does help to hear about your experience with Topamax. I sure hope your neuro can come up with some relief for you! Blessings! Barbara > Re: Topamax for migraines > > Barbara, > I am going though issues with migraines and headaches with the > SLE's right now. My neurologist is confused, as we can't break it. He > has me on Midrin, which helps if I take it as soon as I feel a headache > is coming on, but not after it is here. It also gives me a feeling of > being " hung over " the next day. I was told by another neuro not to use > triptans or things like Imitrex, if one has a history of SLE's, and if I > remember, you do. I can only think of her saying something about the > constriction of blood vessels. Of course, all doctors have their own > opinions of what should and shouldn't be taken. > I was on Topamax a couple years ago, but when I was finally on a > therapeutic dose, it made me really spacy. This does not happen to > everyone though. Good luck and I hope you can find some relief from your > migraines. > > Smiles, > a > > On Wed, 21 Sep 2005 16:31:13 -0500 " Barbara Seaman " > wheatchild@...> writes: > Currently I am > trying Midrin. Several doctors have been reluctant to give me any of the > triptans due to certain aspects of my history. Mostly I chew ice, use a > cold > wet washcloth and wait it out--usually three days. They can be as > frequent > as one a week now, which means I am spending almost half my time with > migraines. Hopefully we can find a way to safely reduce this. > > Barbara > > Quote Link to comment Share on other sites More sharing options...
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