Re: different splints. Muscles

February 24, 2005

You are describing the AFO's. So can I ask why your doctor prescribed the

AFO's instead of the DBB? AFO's are not part of the Ponseti protocol and

the feet don't stay in the correct outward rotation needed to keep the

feet from relapsing.

I raise concern to you because my daughter also had the AFO's and she

starting relapsing and then she had to go back in casts and have another

tenotomy. Please be aware and maybe let us know which doctor you are

seeing. I bet someone on this site can send you a link about the AFO's so

you can read more about it.

I hope I didn't startle you, just want you to know.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

February 24, 2005

Welcome to our group!

I'm sure you've read the posts about the AFOs and the information on

the components that make up the FAB (shoes with bar).

If there's anything that we can do to help you or answer questions

on this, please ask.

About the muscle wastage, an AFO or KAFO will promote atrophy in the

calf muscle. This is not the case with the FAB (also called DBB).

I am not sure if your daughter has one or both legs affected by

clubfoot, but typically, the calf muscle will be smaller in the leg

affected by clubfoot. This is not due to atrophy, it is because the

genetic makeup of the muscle tissue is different in a clubfoot leg.

The muscle will never be able to be " bulked up " to equal that in

a " normal leg " . Some people who have clubfoot have extremely thin

calves and others are hardly noticeable. The severity varies from

case to case.

Your daughter's calf/calves could be thin (but not necessarily weak)

even without additional problems caused by muscle atrophy.

My daughter has unilateral (left) clubfoot and her calf muscle is

thinner on her left leg, however, that leg is not weaker than the

other- she has no problems due to the thin calf.

I hope this helps!

Regards,

& (3-16-00)

left clubfoot

>

> Hello everybody!

> My little one is 3 month old and after a serie of casts she has

> splints fitted.They are plastic custom made and are looking as

open

> front boots mid hip high on three velcro each.Have you ever come

> across the ones like this ? May be you have an idea why there is

no

> bar joining the legs in this design?

> And do you have an idea what can be done to prevent muscle

wastage? I

> was told it was anavoidable. Thanks.

February 24, 2005

Hi,

I wonder why your doctor doesn't have you baby in Markel shoes and bar.

There is no muscle " wasting " with the shoes and bar as there would be with

an AFO. In addition, numerous people have attested to the fact that the AFO

does not hold the correction obtained with casting.

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB (nights only)

_____

From: molodyka

Sent: Wednesday, February 23, 2005 9:14 PM

To: nosurgery4clubfoot

Subject: different splints. Muscles

Hello everybody!

My little one is 3 month old and after a serie of casts she has

splints fitted.They are plastic custom made and are looking as open

front boots mid hip high on three velcro each.Have you ever come

across the ones like this ? May be you have an idea why there is no

bar joining the legs in this design?

And do you have an idea what can be done to prevent muscle wastage? I

was told it was anavoidable. Thanks.

February 24, 2005

I'm guessin from the AR on the email address that you're in Argentina?

WElcome to the list. Please share the details of your story so we can

better guide you... Sounds like your doc is not following the message

properly...

For our story, check out:

www.geocities.com/joannewalton2003/clubfootstory.html

Best, Joanne W. mom to Zoe, 3-25-01, right clubfoot

> Hi,

>

> I wonder why your doctor doesn't have you baby in Markel shoes and

bar.

> There is no muscle " wasting " with the shoes and bar as there would

be with

> an AFO. In addition, numerous people have attested to the fact

that the AFO

> does not hold the correction obtained with casting.

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB (nights only)

>

> _____

>

> From: molodyka [mailto:molodyka@y...]

> Sent: Wednesday, February 23, 2005 9:14 PM

> To: nosurgery4clubfoot

> Subject: different splints. Muscles

>

> Hello everybody!

> My little one is 3 month old and after a serie of casts she has

> splints fitted.They are plastic custom made and are looking as open

> front boots mid hip high on three velcro each.Have you ever come

> across the ones like this ? May be you have an idea why there is no

> bar joining the legs in this design?

> And do you have an idea what can be done to prevent muscle wastage?

I

> was told it was anavoidable. Thanks.

>

February 24, 2005

the leters left from the time we lived in Argentina.

We had been in casts for 3 month changed once a week or once a fortnight. Her

feet were pointing outwards after it as on photos at this board. Then the baby

had a tenotomy and these splints.

That is basically.

joannewalton2003 jowalton68@...> wrote:

I'm guessin from the AR on the email address that you're in Argentina?

WElcome to the list. Please share the details of your story so we can

better guide you... Sounds like your doc is not following the message

properly...

For our story, check out:

www.geocities.com/joannewalton2003/clubfootstory.html

Best, Joanne W. mom to Zoe, 3-25-01, right clubfoot

> Hi,

>

> I wonder why your doctor doesn't have you baby in Markel shoes and

bar.

> There is no muscle " wasting " with the shoes and bar as there would

be with

> an AFO. In addition, numerous people have attested to the fact

that the AFO

> does not hold the correction obtained with casting.

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB (nights only)

>

> _____

>

> From: molodyka [mailto:molodyka@y...]

> Sent: Wednesday, February 23, 2005 9:14 PM

> To: nosurgery4clubfoot

> Subject: different splints. Muscles

>

> Hello everybody!

> My little one is 3 month old and after a serie of casts she has

> splints fitted.They are plastic custom made and are looking as open

> front boots mid hip high on three velcro each.Have you ever come

> across the ones like this ? May be you have an idea why there is no

> bar joining the legs in this design?

> And do you have an idea what can be done to prevent muscle wastage?

I

> was told it was anavoidable. Thanks.

>

February 24, 2005

AFO's suck. They do not work on club feet!!!!!!!! (ask )

ee, mother of two bcf boys:

- NON Ponseti Method Club Foot Disaster

Everett - Dr. Ponseti Success Story

Re: different splints. Muscles

You are describing the AFO's. So can I ask why your doctor prescribed the

AFO's instead of the DBB? AFO's are not part of the Ponseti protocol and

the feet don't stay in the correct outward rotation needed to keep the

feet from relapsing.

I raise concern to you because my daughter also had the AFO's and she

starting relapsing and then she had to go back in casts and have another

tenotomy. Please be aware and maybe let us know which doctor you are

seeing. I bet someone on this site can send you a link about the AFO's so

you can read more about it.

I hope I didn't startle you, just want you to know.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

fax

February 24, 2005

I agree, the DBB does not interfere with muscle development at all.

s