Re: Acceptance (was Recovery)

[Guest guest]

I applaud your attitude! I look forward to getting to the place you are now in.

My daughter was so recently diagnosed (March 15th) and her autism was late

onset. I remember who she was, who she was becoming. And now very often she

seems to be a stranger in so many ways. I miss her and I want her back. At

this point I would do anything to fight this autism from stealing away my baby.

The look on her face as she drifts away is anything but happy. I want to steal

her back from the sad place she goes.

I long to become accepting of this, but I am still too angry, too hurt, too

bewildered, and very sad. I believe it is already changing all of us for the

better...making us more gentle with other people who struggle with developmental

challenges. But I am not happy this happened to my beautiful baby girl. I have

no idea how this happened and right now I don't care. I only want to get her

back as quickly as I can and then figure out what happened.

I'd be interested to hear how others are coping with this and learning to accept

it. Thank you for sharing how you are accepting of this. Pray for me

that I will come to accept it too.

H, mom to 3 yrs, PDD; and 23 months

[Guest guest]

> I applaud your attitude! I look forward to getting to the place

you are now in.

I want to steal her back from the sad place she goes.

I only want to get her back as quickly as I can and then figure out

what happened.

>

> I'd be interested to hear how others are coping with this and

learning to accept it. Thank you for sharing how you are

accepting of this. Pray for me that I will come to accept it too.

,

What a beautiful note! I hope someday realizes how lucky she

is to have you for her mom. You are so far ahead of the game- look

how much you have learned in the last month! We've been struggling

through this for about a year and a half, and I can only imagine how

much better Brett would be if I had been as educated as you are

within the first month.

About the acceptance: There is a fine line between accepting and

giving up. Yes, I accept the fact that Brett is autistic, but I hope

and pray that one day he won't be. I've accepted the fact that no

one is going to try as hard as I am to help Brett improve, but I know

that lots of good people are out there looking for pieces to the

puzzle. Most of all, I've accepted the fact that Brett is a

wonderful sweet little boy who can make me laugh and cry at the same

time, and he is such a gift! On bad days, I have to force myself out

of playing the " How much easier would my life be without him? " self-

pity game. But with just one hug ( " huh " in Brett's language!), I

realize that my life would be so empty without him.

Hugs to you and !

Sue

[Guest guest]

Thanks Sue! Somedays are more difficult than others. I was kind of glad to

hear you say it too. There is a strong temptation to self pity with this! I

remind myself that everyone has something they are struggling to deal with. I

hope/pray/long for the day she is better. Yesterday I took her to the pet store

and we were looking at the lizards. Yuck! I kept saying " See it? There it is "

etc. She popped out with " I see it! " I was thrilled! I went crazy praising

her in the store! She almost never gets her pronouns right...to say " I see it!

Still gives me a thrill. I pray the diet is helping!

Sue have a wonderful Easter! And I'll say a prayer for Brett next Tuesday for

his surgery. Hugs,

H, mom to 3 yrs, PDD; and 23 months

[Guest guest]

I believe the only way to fix it is to figure out what caused it. You have

to look at it in the face. A bit philosophical here , I know, but I believe

this to be true. Especially because the combo of damaging factors could

have been a little diferent for your daughter than for my son etc. My son

was " taken " from me as well. The good thing is, the sooner you get on it,

the better, and the later they fell in to this pit , the more skills and

brain development they already had before the overload that sent them over.

I very much believe it to be the vacs and mercury for us. I spent much time

in depression and disbelief and sometimes anger. I have picked myself up

after learning all the horrors I learned though and have put all that energy

into my child. And into passing on any thing I have learned to help others

with their children. It has been a year now and things are looking up. I

still have anger sometimes and I use it to be more vocal and more of a

fighter for our cause. I remind people not to blindly trust doctors,

pharmaceutical co. , the food industry. To learn how those in power have

hurt us and our kids is difficult. To look at our childrens pictures when

they were still okay, and " typical " is gut wrenching. But with all that we

are doing, I see my son coming back to me and it makes the battle worth it.

I also remind myself about my spiritual belief that my children came here to

accomplish certain things while they are dancing on this planet and I have

to let them go through that. My job is to help them to get through it as

best as possible, to love them and accept them for who they are , and to

help them make their experience a positive learning experience for as many

as possible.

There is so much to work through and I feel what you speak of. Life is

pretty difficult at times and to make it thru each day is success in my

opinion. Hang in there and even though it is difficult, determining how our

children got to where they are takes us one step closer to healing them.

Much love and wishes for peace in your heart,

Re: Acceptance (was Recovery)

> I applaud your attitude! I look forward to getting to the place you are

now in.

>

> My daughter was so recently diagnosed (March 15th) and her autism was late

onset. I remember who she was, who she was becoming. And now very often

she seems to be a stranger in so many ways. I miss her and I want her back.

At this point I would do anything to fight this autism from stealing away my

baby. The look on her face as she drifts away is anything but happy. I

want to steal her back from the sad place she goes.

>

> I long to become accepting of this, but I am still too angry, too hurt,

too bewildered, and very sad. I believe it is already changing all of us

for the better...making us more gentle with other people who struggle with

developmental challenges. But I am not happy this happened to my beautiful

baby girl. I have no idea how this happened and right now I don't care. I

only want to get her back as quickly as I can and then figure out what

happened.

>

> I'd be interested to hear how others are coping with this and learning to

accept it. Thank you for sharing how you are accepting of this.

Pray for me that I will come to accept it too.

>

> H, mom to 3 yrs, PDD; and 23 months

>

>

>

>

>

[Guest guest]

Thank you ! I plan on looking into the probable causes once we get through

the initial IEP process...so in the next few weeks. There is so much to learn!

I wish I were a computer and could just download Info into my harddrive, LOL!

Hugs, H, mom to 3 yrs, PDD; and 23 months

[Guest guest]

I believe that there are some kids out there that are autistic and will

always be autistic.

I also believe that there are kids out there that are autistic as the result

of a biological issue.

My son was one of the latter. I was told to get him into the therapies that

treat the symptoms -- slt, ot. pt.

He was 89 on the ATEC on year ago. Today he is 0

The experts have confirmed what I have known for months -- he is no longer

autistic.

My heart breaks for the kids that will never get a chance to be cured

because the treatments are considered unconventional.

Evelyn

Mom to Austin (recovered from pdd) and (nt)

5 year old twins

Re: Acceptance (was Recovery)

> I applaud your attitude! I look forward to getting to the place you are

now in.

>

> My daughter was so recently diagnosed (March 15th) and her autism was late

onset. I remember who she was, who she was becoming. And now very often

she seems to be a stranger in so many ways. I miss her and I want her back.

At this point I would do anything to fight this autism from stealing away my

baby. The look on her face as she drifts away is anything but happy. I

want to steal her back from the sad place she goes.

>

> I long to become accepting of this, but I am still too angry, too hurt,

too bewildered, and very sad. I believe it is already changing all of us

for the better...making us more gentle with other people who struggle with

developmental challenges. But I am not happy this happened to my beautiful

baby girl. I have no idea how this happened and right now I don't care. I

only want to get her back as quickly as I can and then figure out what

happened.

>

> I'd be interested to hear how others are coping with this and learning to

accept it. Thank you for sharing how you are accepting of this.

Pray for me that I will come to accept it too.

>

> H, mom to 3 yrs, PDD; and 23 months

>

>

>

>

>

[Guest guest]

You really have no choice but to accept it. The road to recovery is

definitely acceptance for you and your child. It wasn't until then that I

could finally be happy and not miserable all the time and feeling sorry for

myself. I think the reason it is so hard to accept it is because very little

people do accept this. I don't care what other people think anymore because

this has definitely changed my outlook on life and has made me a much

stronger and caring person. is my son and will always be my son so

it's either accept it and start the healing process or hate it and cause more

pain than there already is. I don't know about the rest of the group but I

know once I just dealt with it and accepted autism my life seemed alot easier

to handle and my son needs a loving mother all the time not a resentful

mother. You'll get to the point soon especially if you belong to this group.

MA

[Guest guest]

Dear ,

I was very interested about your message. You mention

that at your son's age you were just like him:

moderate to severe autism, non-verbal at age four.

First of all, I hope all the best for your son and

that he would learn to communicate and enjoy his life.

I would like to ask you these questions, so precious

and unanswered: in your childhood days, how did you

become from non-verbal to verbal? Was it a 'snap' or a

gradual ability building up?

How did you perceive the world and your life before

you could speak? Did you know that you were different?

Did you wish to be like the others?

Did you have over/under sensitivity for feel or sound?

Has your vision changed since your childhood?

I do not ever intend to be unsensitive, I feel great

respect for you because I see what my son has gone

through. I am just a mother, dying to understand my

little son.

Thank you,

Kati

> BTW: My son was originally diagnosed with moderate

> to severe autism and

> was almost completely non-verbal at age four.

> and, as an autistic

> individual (I was like my son at his age), I value

> autism in general.

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