Re: How many hours a day-really?

[Guest guest]

I can't speak for your husband, obviously - but one perspective could be that

since the Ponseti Method produces such immediate, noticeable results, the DBB

wear almost seems pointless. The feet look fixed, why torture the child wearing

this piece of hardware on its feet? Understanding fully the purpose of the

DBB's mission may help him adhere to its use. Has your dh looked at this site

with all the stories and photos? That may be a good start.

Another perspective may be your dh feels a sense of guilt for *causing* his own

child to be deformed like him - and seeing the DBB is a sore reminder to him.

Perhaps help him understand it is NOT his fault, anymore than it was his

parent's fault he was born with it. Again, the articles available on this

board could help him move past any feelings of guilt by understanding he is not

responsible for his son's deformity.

In any event, please communicate sympathetically with your husband because the

DBB is so critical to the treatment.

good luck!

ee, mother of two bcf boys:

- NON Ponseti Method Club Foot Disaster

Everett - Dr. Ponseti Success Story

I just

don't understand why my husband is having such a tough time sticking

to the rules. He's the one that was born with club feet and spent

his first five years in casts and having multiple surgeries. I know

he doesn't want his son to go through the same thing. My husband is

very self conscious about the scars on his feet.

[Guest guest]

We're in San Francisco. Our doc is Dr. Diab at UCSF. He's a nice

doctor, and claims to follow the Ponsetti method. His assistant

studied under Ponsetti and he teaches his students (UCSF is a

teaching hospital)what Dr. Ponsetti recommends. I guess I was

expecting more involvement now after seeing him once a week for the

first 2 1/2 months. I was thinking of checking out the doctor in

Sacramento at Shriners that I've seen some posts about.

Little Zander is only 4 1/2 months old and he's generally a good

sport about the shoes. My husband stays home with him, so it's his

responsibility to make sure he's wearing them while I'm at work. I

just can't believe how little information both the doctor and the

orthotics department gave us. The guy that gave us the shoes told

me the strap wasn't that important!

My other big complaint is insurance. Why bother paying all those

premiums when they don't even cover the shoes? $1000 worth of shoes

the first two years will prevent $10,000 in surgery later, but they

don't seem to care.

> > > Welcome! You will get wonderful info here! My son has the

same

> >bar, and we are going to get a new one at our next appt.

hopefully.

> >They are painful! As for the time, did your son have surgery or

> >casting?I don't know if it is the same for surgery, but for casts

it

> >is very important to make sure they are worn 23/7 for around 3

> >months. If they are coming off try making them tighter. My son

has

> >had them for 6 wks., and we weren't tightening them enough in the

> >beginning. Another cause of the foot coming out is that the foot

> >wasn't fully corrected. I know it is hard at first, but I swear

it

> >gets easier. This site was a great help to me!

> > >

> > >

> > > How many hours a day-really?

> > >

> > >

> > >

> > >

> > >

> > > Hello, I'm new to this group. I had emailed the distributor

of

> >the

> > > Markell shoes complaining of the difficulty we had in keeping

> >them

> > > on our son and they recommended I check out this group. They

> >also

> > > sent me instructions on how to properly use the shoes,

something

> > > neither the orthopedic surgeon nor the orthotics clinic

bothered

> >to

> > > do. The surgeon said he needed to be in the shoes 24/7, but

> >we're

> > > having a tough time sticking to it. Multiple reasons - the

baby

> > > kicks them off, his feet get sweaty, the way the shoes are

> >attached

> > > to the bar(they used wingnuts with bolts coming out that

poke us

> > > instead of the shoe platform), and it's hard for my husband

to

> >tie

> > > the little laces.

> > > Anyone else willing to fess up that they don't keep the poor

> >things

> > > strapped in 24/7?

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >