Re: Getting in touch with Dr. Whiteman

[Guest guest]

Does your son look like an old man?

laurie

>

>

> Anybody have any idea about how to get in touch with

> Dr. Whiteman? Our physician would like to speak to him

> about some of 's labs. One in particular is not

> compatible with life. He promised to give me copies

> but I'm freaking out a bit because I don't know which

> lab is so off. He now wants to work the kid up for

> progeria. He's almost 17. Argh!!!!!

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

> __________________________________________________

>

[Guest guest]

--- Laurie Fitzgerald laurie.fitzgerald@...>

wrote:

>

>

> Does your son look like an old man?

Nope. But he's a little shorter than he should be for

his age and genetics. I found that there is a form or

progeria where you get symptoms in adolescence.

is not balding but is getting a middle-aged gut (not

eating adequate calories either). If he has progeria

you'll be able to knock me over with a feather. I

don't believe he has it; neither does the doc. But

mito is a diagnosis of exclusion so we need to exclude this.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

I hope you get some answers soon. I know how frustrating it is to

travel the road of exclusion.

laurie

> Does your son look like an old man?

>

> Nope. But he's a little shorter than he should be for

> his age and genetics.

[Guest guest]

Hi ,

Sorry to hear that 's labs are off. The only thing I can think

of is to call the Main # for Mayo and ask them who is covering the

medical needs of Dr. Whiteman's patients. I am sure that he didn't

leave all of his patients high and dry without someone to answer

questions concerning medical problems, follow-up treatment, etc...

Did Dr. Whiteman have an associate working with him? Do you have an

email address for him?

I can imagine why you are freaking out a bit. It gets so frustrating

when we can't get the answers we need. Testing for progeria sounds

strange unless he has some of the characteristics of progeria. Do you

trust and like this physican?

I hope that by getting in touch with Mayo as I suggested above will

help you towards locating Dr. Whiteman. Good Luck

Hugs,

Ann-Marie

At 03:18 PM 9/27/2005, you wrote:

>Anybody have any idea about how to get in touch with

>Dr. Whiteman? Our physician would like to speak to him

>about some of 's labs. One in particular is not

>compatible with life. He promised to give me copies

>but I'm freaking out a bit because I don't know which

>lab is so off. He now wants to work the kid up for

>progeria. He's almost 17. Argh!!!!!

>

>

>

>Mom to the two best kids in the world!

>http://www.caringbridge.org/visit/thomasandkatiehttp://www.caringbridge.org/v\

isit/thomasandkatie

>

>__________________________________________________

>

[Guest guest]

Hi ,

Sorry to hear that 's labs are off. The only thing I can think

of is to call the Main # for Mayo and ask them who is covering the

medical needs of Dr. Whiteman's patients. I am sure that he didn't

leave all of his patients high and dry without someone to answer

questions concerning medical problems, follow-up treatment, etc...

Did Dr. Whiteman have an associate working with him? Do you have an

email address for him?

I can imagine why you are freaking out a bit. It gets so frustrating

when we can't get the answers we need. Testing for progeria sounds

strange unless he has some of the characteristics of progeria. Do you

trust and like this physican?

I hope that by getting in touch with Mayo as I suggested above will

help you towards locating Dr. Whiteman. Good Luck

Hugs,

Ann-Marie

At 03:18 PM 9/27/2005, you wrote:

>Anybody have any idea about how to get in touch with

>Dr. Whiteman? Our physician would like to speak to him

>about some of 's labs. One in particular is not

>compatible with life. He promised to give me copies

>but I'm freaking out a bit because I don't know which

>lab is so off. He now wants to work the kid up for

>progeria. He's almost 17. Argh!!!!!

>

>

>

>Mom to the two best kids in the world!

>http://www.caringbridge.org/visit/thomasandkatiehttp://www.caringbridge.org/v\

isit/thomasandkatie

>

>__________________________________________________

>

[Guest guest]

Ann-Marie,

I won't go back to May without Whiteman. There's

nobody at all there I'd trust. Thanks anyway. Mayo

won't hand out his number.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________

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