Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Well I emailed pictures of 's feet yesterday to Dr.P and since I had not heard from him by the afternoon i decided to call and ask Joyce. Well someone else answered and put me through to dr.p. he said when i called they were just going over samantha's pictures and he said her feet looked wonderful! that was such a relief to hear! i was beggining to feel a little worried about how her feet looked but he said they looked great. so today is her last day of 23hours. he said she could be out of her brace for 4-6hrs for 2 weeks then out 8 hrs for 2 weeks until we finally get to just night/nap. you cant imagine how good it felt to hear him tell me all this. maybe now she can practice a little more on walking. i asked him about her delayed walking and once again he told me not to worry until she is 18months and not walking. i also mentioned to him that to me she had weak leg muscles. he said it was b/c she has been in casts for so long. it didnt seem to worry him at all. i sent him a picture of her dancing in the brace and he thought it was cute and funny! i thought i would share our joy with everyone! and BL CF 12/16/03 's 23/7 last day!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Way to go ! That is such exciting news. I'm so happy for you guys. Claire 01-16-04--atypical bl cf('s 18 hr/day) > > Well I emailed pictures of 's feet yesterday to Dr.P and > since I had not heard from him by the afternoon i decided to call > and ask Joyce. Well someone else answered and put me through to > dr.p. he said when i called they were just going over samantha's > pictures and he said her feet looked wonderful! that was such a > relief to hear! i was beggining to feel a little worried about how > her feet looked but he said they looked great. > so today is her last day of 23hours. he said she could be out of her > brace for 4-6hrs for 2 weeks then out 8 hrs for 2 weeks until we > finally get to just night/nap. > you cant imagine how good it felt to hear him tell me all this. > maybe now she can practice a little more on walking. i asked him > about her delayed walking and once again he told me not to worry > until she is 18months and not walking. i also mentioned to him that > to me she had weak leg muscles. he said it was b/c she has been in > casts for so long. it didnt seem to worry him at all. i sent him a > picture of her dancing in the brace and he thought it was cute and > funny! i thought i would share our joy with everyone! > and > BL CF 12/16/03 > 's 23/7 last day!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 You go girl! KK Livi Ava Bilat Atypical CF s 20/7 > > Well I emailed pictures of 's feet yesterday to Dr.P and > since I had not heard from him by the afternoon i decided to call > and ask Joyce. Well someone else answered and put me through to > dr.p. he said when i called they were just going over samantha's > pictures and he said her feet looked wonderful! that was such a > relief to hear! i was beggining to feel a little worried about how > her feet looked but he said they looked great. > so today is her last day of 23hours. he said she could be out of her > brace for 4-6hrs for 2 weeks then out 8 hrs for 2 weeks until we > finally get to just night/nap. > you cant imagine how good it felt to hear him tell me all this. > maybe now she can practice a little more on walking. i asked him > about her delayed walking and once again he told me not to worry > until she is 18months and not walking. i also mentioned to him that > to me she had weak leg muscles. he said it was b/c she has been in > casts for so long. it didnt seem to worry him at all. i sent him a > picture of her dancing in the brace and he thought it was cute and > funny! i thought i would share our joy with everyone! > and > BL CF 12/16/03 > 's 23/7 last day!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Congrats on the reduced hours!! I am sure she will be runnin around like crazy before you know it! & Grace > > Well I emailed pictures of 's feet yesterday to Dr.P and > since I had not heard from him by the afternoon i decided to call > and ask Joyce. Well someone else answered and put me through to > dr.p. he said when i called they were just going over samantha's > pictures and he said her feet looked wonderful! that was such a > relief to hear! i was beggining to feel a little worried about how > her feet looked but he said they looked great. > so today is her last day of 23hours. he said she could be out of her > brace for 4-6hrs for 2 weeks then out 8 hrs for 2 weeks until we > finally get to just night/nap. > you cant imagine how good it felt to hear him tell me all this. > maybe now she can practice a little more on walking. i asked him > about her delayed walking and once again he told me not to worry > until she is 18months and not walking. i also mentioned to him that > to me she had weak leg muscles. he said it was b/c she has been in > casts for so long. it didnt seem to worry him at all. i sent him a > picture of her dancing in the brace and he thought it was cute and > funny! i thought i would share our joy with everyone! > and > BL CF 12/16/03 > 's 23/7 last day!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Thanks so much! You know i just cant wait! my first son walked at 10months and i get a little ansious sometimes but as long as i know her feet are ok i can wait. she does not have a-typical feet. dr.p when he saw pictures of her feet thought she did but once he took a look at them he said they were not. how old was your son when he started in the FAB? and BL CF 12/16/03 s 18-20hrs > > Well I emailed pictures of 's feet yesterday to Dr.P and > since I had not heard from him by the afternoon i decided to call > and ask Joyce. Well someone else answered and put me through to > dr.p. he said when i called they were just going over samantha's > pictures and he said her feet looked wonderful! that was such a > relief to hear! i was beggining to feel a little worried about how > her feet looked but he said they looked great. > so today is her last day of 23hours. he said she could be out of her > brace for 4-6hrs for 2 weeks then out 8 hrs for 2 weeks until we > finally get to just night/nap. > you cant imagine how good it felt to hear him tell me all this. > maybe now she can practice a little more on walking. i asked him > about her delayed walking and once again he told me not to worry > until she is 18months and not walking. i also mentioned to him that > to me she had weak leg muscles. he said it was b/c she has been in > casts for so long. it didnt seem to worry him at all. i sent him a > picture of her dancing in the brace and he thought it was cute and > funny! i thought i would share our joy with everyone! > and > BL CF 12/16/03 > 's 23/7 last day!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Wow i cant belive she will have her casts removed already. so is she miserable w/ the casts? samantha got so miserable the last few days, she couldnt sleep or take naps so we removed them 2 days before the 3wks. dr.p said that was ok as long as it was not before 2 1/2 weeks but poor thing she was just miserable. she will get the new brace of dr. dobbs, right? im so excited for you! i bet she will do great and before you know it she will be done with the 23/7! Best Wishes! and BL CF 12/16/03 mitchells 20/7 > > The party idea sounds like a great idea, believe me i cant wait! > She too got a late start, she started in the markells at 8 months > with a doc that said he followed the ponseti method but didnt. > and so we took her to dr.p at 1 year old in december and so she > started very late in the FAb. dr. p only had her do the 23/7 for 6 > weeks and im so glad it is over. yesterday was her first day for > more than an hour or so and she played and played and really enjoyed > it. so hopefully she will build up her leg muscles so she can begin > to walk! > and > BL CF 12/16/03 > mithcell's 20/7 > > > lisa caroland > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 Dont worry im sure she will adapt quickly. my dh worried about that to but i read about a lot of babies on this group that were mobile even with the brace on. and she does really well she can crawl all over the furniture with them on. she can also take steps in our bedroom since its the only room that has carpet. i was amazed at what she can do with them on. so do not underestimate her she may just surprise you! and BL CF 12/16/03 > > Wow i cant belive she will have her casts removed already. so is she > miserable w/ the casts? samantha got so miserable the last few days, > she couldnt sleep or take naps so we removed them 2 days before the > 3wks. dr.p said that was ok as long as it was not before 2 1/2 weeks > but poor thing she was just miserable. > she will get the new brace of dr. dobbs, right? im so excited for > you! i bet she will do great and before you know it she will be done > with the 23/7! > Best Wishes! > and > BL CF 12/16/03 > mitchells 20/7 > > > lisa caroland > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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