Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Well, I guess it would be a miracle if Max did not have some problem or another every couple of weeks. I know most of you do not have a child his age (15.5 years), but I'm going to try to pick your brains for a moment. Any advice would be appreciated. First, let me say that the hiccups are under control!!! Dr. H. had prescribed the Transderm Scop patch, the kind used for motion sickness, and said there is something in there that helps, but she did not know really why it does. Anyway, he is wearing the patch behind his ear, changing it every three days and the difference is amazing. It even helps control his nausea so there is no vomiting at school or at home. We know it is working because the few times he has forgotten to replace it, he has started with all the symptoms again, only to realize he does not have the patch on. At least something works! Now, for the problem. Max still gets terrible pains in his lower abdomen every single time he eats. Dinner usually takes him at least two hours to consume because he sits down, all ready to dig in and then the pains start. They are sharp and sore, as he describes them. He has to put down his fork, walk away and come back later to try again. Then the same thing happens. He tries a third time, usually just bearing the pain so he can fill his stomach, but winds up not eating at least half his dinner. This happens at lunch, too, but he does not get much to eat at lunch, so it is not as bad. What I am trying to do is just let him eat a small amount frequently. He is a natural grazer anyway. The key is to get him to include fruits, vegetables and protein in those snacks. He'd rather eat pretzels and drink root beer or juice all afternoon. But I also want him to be able to participate socially in meals, like when we go out to dinner, or he goes with a friend or at our weekly four family Sunday night dinners. No one can explain the pains he gets. Then again, I'm speaking to doctors who don't have a lot of experience with RSS and the gut dysmotility issues that we deal with. If any of you have any suggestions, I would really appreciate advice. By the way, I have considered the constipation issue since so many people have talked about it on the listserve, but try talking about that with a teenager!!! Want to see him run really fast? Just bring up that subject. I may leave that for Dr. H. I can walk out of the room while they discuss it and maybe he will feel better about discussing it. We are seeing her on March 9. Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Jodi, Does Max see a pediatric GI, or does Harbison just handle that? I brought up the constipation issue with Matt's GI, and he kind of blew it off. But when we go back, if his stomach is " poofy " again and his weight up, I think I'll try for a simple stomach xray. I think that is all that they need. What about allergies? Food allergies? I think I remember him being allergic to milk, right? Just thinking " out loud " ...... Beth H. > Well, I guess it would be a miracle if Max did not have some problem > or another every couple of weeks. I know most of you do not have a > child his age (15.5 years), but I'm going to try to pick your brains > for a moment. Any advice would be appreciated. > > First, let me say that the hiccups are under control!!! Dr. H. had > prescribed the Transderm Scop patch, the kind used for motion > sickness, and said there is something in there that helps, but she > did not know really why it does. Anyway, he is wearing the patch > behind his ear, changing it every three days and the difference is > amazing. It even helps control his nausea so there is no vomiting > at school or at home. We know it is working because the few times > he has forgotten to replace it, he has started with all the symptoms > again, only to realize he does not have the patch on. At least > something works! > > Now, for the problem. Max still gets terrible pains in his lower > abdomen every single time he eats. Dinner usually takes him at > least two hours to consume because he sits down, all ready to dig in > and then the pains start. They are sharp and sore, as he describes > them. He has to put down his fork, walk away and come back later to > try again. Then the same thing happens. He tries a third time, > usually just bearing the pain so he can fill his stomach, but winds > up not eating at least half his dinner. This happens at lunch, too, > but he does not get much to eat at lunch, so it is not as bad. > > What I am trying to do is just let him eat a small amount > frequently. He is a natural grazer anyway. The key is to get him > to include fruits, vegetables and protein in those snacks. He'd > rather eat pretzels and drink root beer or juice all afternoon. But > I also want him to be able to participate socially in meals, like > when we go out to dinner, or he goes with a friend or at our weekly > four family Sunday night dinners. > > No one can explain the pains he gets. Then again, I'm speaking to > doctors who don't have a lot of experience with RSS and the gut > dysmotility issues that we deal with. If any of you have any > suggestions, I would really appreciate advice. > > By the way, I have considered the constipation issue since so many > people have talked about it on the listserve, but try talking about > that with a teenager!!! Want to see him run really fast? Just > bring up that subject. I may leave that for Dr. H. I can walk out > of the room while they discuss it and maybe he will feel better > about discussing it. We are seeing her on March 9. > > Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Beth, Max does see a pediatric GI, but he keeps saying that it is one of those things that Max just has to learn to live with. That does not sit well with me, so I brought Dr. H. in on the subject. SHE is the one who suggested the patch for his hiccups and nausea, not the GI. I think that so many doctors, when they don't have an answer, just say to live with it instead of saying they don't know yet. At least this GI is good when Max is sick and needs to be in the hospital. I'll take going to town over NYC any day!!! As for the food allergies, yes, Max is allergic to all milk products. They have not been any part of his diet for at least a month or so. Sometimes I wonder about other foods, but we will wait until next week and bring that up with Dr. H. He needs blood drawn anyway, so she might as well order some allergy testing. Thanks for " thinking outloud. " I do appreciate it! Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Jodi - I would be interested in knowing if an x-ray shows his bowels/intestines to be full. also would get these sharp/dull pains -- hold her lower abdomen. But she went poop every day, so I didn't know she was constipated (sorry guys to be so graphic). Then they did this x-ray and WOW!!!! Jodi - this Miralax, our GI is Asian and combines a variety of medical perspectives, and he believes that this prescription " heals " the gut as well as relieving constipation slowly and easily. I am now on this med as well, and I can tell you - when I forget to take it, I literally realize later that day or the next, I feel that different... Would you have Max just try it for one week? It is a powder and we have found that when mixed in orange juice in the morning, it is tasteless. says she feels so much better with it, she now reminds me if I forget it (and she doesn't always remind me about her other meds....) > Well, I guess it would be a miracle if Max did not have some problem > or another every couple of weeks. I know most of you do not have a > child his age (15.5 years), but I'm going to try to pick your brains > for a moment. Any advice would be appreciated. > > First, let me say that the hiccups are under control!!! Dr. H. had > prescribed the Transderm Scop patch, the kind used for motion > sickness, and said there is something in there that helps, but she > did not know really why it does. Anyway, he is wearing the patch > behind his ear, changing it every three days and the difference is > amazing. It even helps control his nausea so there is no vomiting > at school or at home. We know it is working because the few times > he has forgotten to replace it, he has started with all the symptoms > again, only to realize he does not have the patch on. At least > something works! > > Now, for the problem. Max still gets terrible pains in his lower > abdomen every single time he eats. Dinner usually takes him at > least two hours to consume because he sits down, all ready to dig in > and then the pains start. They are sharp and sore, as he describes > them. He has to put down his fork, walk away and come back later to > try again. Then the same thing happens. He tries a third time, > usually just bearing the pain so he can fill his stomach, but winds > up not eating at least half his dinner. This happens at lunch, too, > but he does not get much to eat at lunch, so it is not as bad. > > What I am trying to do is just let him eat a small amount > frequently. He is a natural grazer anyway. The key is to get him > to include fruits, vegetables and protein in those snacks. He'd > rather eat pretzels and drink root beer or juice all afternoon. But > I also want him to be able to participate socially in meals, like > when we go out to dinner, or he goes with a friend or at our weekly > four family Sunday night dinners. > > No one can explain the pains he gets. Then again, I'm speaking to > doctors who don't have a lot of experience with RSS and the gut > dysmotility issues that we deal with. If any of you have any > suggestions, I would really appreciate advice. > > By the way, I have considered the constipation issue since so many > people have talked about it on the listserve, but try talking about > that with a teenager!!! Want to see him run really fast? Just > bring up that subject. I may leave that for Dr. H. I can walk out > of the room while they discuss it and maybe he will feel better > about discussing it. We are seeing her on March 9. > > Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Having 2 teenage RSS children I have now seen a lot. My daughter is the oldest and is once again in the hospital now as I am writing this. She was put in the hospital back in Feb. and ended up there for a week with Ischemic cololitis. She has had lots of eating problems such as your son. Going to the extent also of throwing up severe side pain that makes doctors think it is her appendix. Finally last month they did a colon check and found tons of ulcers int he colon and intestines. She was in the hospital that time for a week. If she gets dehydrated she gets stomach pain. Eats the wrong food pain again. We have had her on pervacid and now nexium. She also no longer drinks or eats any milk products only soy ones. She had her tonsils and adenoids removed yesterday but is very weak and also in severe pain and once again dehydration is setting in. So a simple tonsil procedure ends up being major due to the stomach ailment. I do not know if this is the same with your son or not. But I am now seeing the stomache problems start in my son as it started in my daughter and he is afraid of it. Having to call 911 because your child's colon had a heart attack scares anyone. I am off again to the hospital. This makes over 3 weeks in the hospital since the middle of December. I hope it stops soon. Keep us posted on your son. I will sit down when given the time and tell you all more. Quote Link to comment Share on other sites More sharing options...
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