RE: Re: Dorsiflexion - Dr. Ponseti article on treating relapses

[Guest guest]

,

It's comforting to know that there is a consensus on this. I find it odd,

though, that the paper was presented only 4 years ago when they were

suggesting that under 15° required a lengthening procedure.

Thanks for your reply,

Dan

Re: Dorsiflexion - Dr. Ponseti article on

treating relapses

Dan-

My doctor, Dr.Colborn, also said that 5-10 degree dorsiflexion is

acceptable and common in CF children. I know from Lori, Annika's

mom, that Annika at age 5 had 0 degree dorsiflexion and Dr. P and

Dr. C didn't do anything about it. It is only harmful if it goes the

degrees goes into the negative.

> My son also got the tenotomy re-done when he had the ATTT

surgery. Beyond that I'm afraid I cannot help.

> s.

>

> Dorsiflexion - Dr. Ponseti article

on treating relapses

>

>

>

> In Dr. Ponseti's article on treating relapses he mentions that,

along with

> the ATTT, the heel cord is lengthened if dorsiflexion is under

15°. When

> Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

she didn't

> need to have the heel cord lengthened. The paper was produced in

2001 and

> here is the exact quote; " This treatment [ATTT] is followed by

lengthening

> the tendo Achilles when dorsiflexion of the ankle is less

> than 15 degrees. "

>

> Has anyone read or heard more from Dr. Ponseti on this?

>

> Dan

>

>

>

>

>

[Guest guest]

I just want to put a question out there--no flames please! If the Ponseti

method is so successful, then how come so many Ponseti patients have required

ATTT or a second tenotomy? I just want to make sure I'm doing what's best for

my son by using a doc who is Ponseti-trained. It seems like the way to go, but

more and more, I read aboutthe foot relapsing or possibly remaining

overcorrected or lengthening procedures being performed anyway...

Ugh, I'm just stressed.

Also, another question. After the 23/7 for 3 months wear of the DBB, is the

degree that the CF is positioned at reduced at all? Or does it remain at 70

degrees for the next 3 years of wear??

dan&lisa dan_lisa@...> wrote:

,

It's comforting to know that there is a consensus on this. I find it odd,

though, that the paper was presented only 4 years ago when they were

suggesting that under 15° required a lengthening procedure.

Thanks for your reply,

Dan

Re: Dorsiflexion - Dr. Ponseti article on

treating relapses

Dan-

My doctor, Dr.Colborn, also said that 5-10 degree dorsiflexion is

acceptable and common in CF children. I know from Lori, Annika's

mom, that Annika at age 5 had 0 degree dorsiflexion and Dr. P and

Dr. C didn't do anything about it. It is only harmful if it goes the

degrees goes into the negative.

> My son also got the tenotomy re-done when he had the ATTT

surgery. Beyond that I'm afraid I cannot help.

> s.

>

> Dorsiflexion - Dr. Ponseti article

on treating relapses

>

>

>

> In Dr. Ponseti's article on treating relapses he mentions that,

along with

> the ATTT, the heel cord is lengthened if dorsiflexion is under

15°. When

> Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

she didn't

> need to have the heel cord lengthened. The paper was produced in

2001 and

> here is the exact quote; " This treatment [ATTT] is followed by

lengthening

> the tendo Achilles when dorsiflexion of the ankle is less

> than 15 degrees. "

>

> Has anyone read or heard more from Dr. Ponseti on this?

>

> Dan

>

>

>

>

>

[Guest guest]

, I agree with the others, you are asking logical, reasonable questions any

parent should think to ask.

I also agree with what was said regarding the fact you find more problem-cases

in a support group but that the ratio of " problems " to " non problem " children

is very, very low. Countless parents have success and never seek support, thus

you do not hear their stories here.

Furthermore, the ATTT is a very non-invansive last ditch alternative. No

Ponseti doctor is going to opt for the ATTT unless no other options exist. I

have two sons, both with bilateral club feet - the 1st ended up having the ATTT

after a non qualified doctor messed him up. I discovered the Ponseti Method too

late to help him any further. The other has perfect feet after being treated

by Dr. Ponseti himself since 2 weeks of age.

The tenotomy - or heel cord lengthening - is part of the Ponseti method in about

every case. We dont' consider this a surgery under normal conditions. Most

club feet babies need this done - and it's generally a small office procedure

done with the parent in the room many times. My dh was in with our son while I

kept our 5 yr. old out in the hall. It was over with in a matter of minutes.

Incidently, when my 1st son had the tenotomy, that doctor put him completely

asleep and treated it as major surgery with poor end results (no flex was

gained).

There is no doubt in my mind the Ponseti Method is best - by a country mile.

haha..... I have gone both routes, I simply can NOT recommend a non-Ponseti

alternative to cf treatment. Done right, by a competent Ponseti method doctor

(i.e., one who is not modifying the method), and with parental compliance to

wearing the DBB the prescribed hours, the method works.

We hope you'll hang around here with us as you journey through your treatment.

ee, mother of two bcf boys:

- NON Ponseti Method Club Foot Disaster

Everett - Dr. Ponseti Success Story

Dorsiflexion - Dr. Ponseti article

on treating relapses

>

>

>

> In Dr. Ponseti's article on treating relapses he mentions that,

along with

> the ATTT, the heel cord is lengthened if dorsiflexion is under

15°. When

> Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

she didn't

> need to have the heel cord lengthened. The paper was produced in

2001 and

> here is the exact quote; " This treatment [ATTT] is followed by

lengthening

> the tendo Achilles when dorsiflexion of the ankle is less

> than 15 degrees. "

>

> Has anyone read or heard more from Dr. Ponseti on this?

>

> Dan

>

>

>

>

>

[Guest guest]

Hi ,

It's a fair question.

Usually the problems have arisen from noncompliance with the DBB. In our

case, Emma was released too early due to having loose ligaments.

Unfortunately, our local ortho didn't recognize a relapse when he saw it and

so Emma required the ATTT. Had a Ponseti doctor been following her I am

certain he would have had her back in the DBB before the relapse had done

too much damage.

If you were to take poll of all the people who have past through here you

would find that very few have experienced problems. Even with a relapse, our

daughter's feet are much better off than they would have been had gone along

with the traditional route of release type surgery.

Another factor to consider is that doctors new to the method may not be

achieving the results that more experienced doctors get. At the Montreal

Shriners they had to re-do alot of tenotomies when they first started using

the method. From what I have heard they are getting much better results now.

The angle remains at 70 unless the child's foot remains overcorrected once

he has been walking for a while. That's usually the case for

loose-ligamented children. Who is treating your son?

Dan

Re: Dorsiflexion - Dr. Ponseti article on

treating relapses

Dan-

My doctor, Dr.Colborn, also said that 5-10 degree dorsiflexion is

acceptable and common in CF children. I know from Lori, Annika's

mom, that Annika at age 5 had 0 degree dorsiflexion and Dr. P and

Dr. C didn't do anything about it. It is only harmful if it goes the

degrees goes into the negative.

> My son also got the tenotomy re-done when he had the ATTT

surgery. Beyond that I'm afraid I cannot help.

> s.

>

> Dorsiflexion - Dr. Ponseti article

on treating relapses

>

>

>

> In Dr. Ponseti's article on treating relapses he mentions that,

along with

> the ATTT, the heel cord is lengthened if dorsiflexion is under

15°. When

> Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

she didn't

> need to have the heel cord lengthened. The paper was produced in

2001 and

> here is the exact quote; " This treatment [ATTT] is followed by

lengthening

> the tendo Achilles when dorsiflexion of the ankle is less

> than 15 degrees. "

>

> Has anyone read or heard more from Dr. Ponseti on this?

>

> Dan

>

>

>

>

>

[Guest guest]

Thank you to everyone for your answers! I know you can all understand what we

are going through and that we want to question everything. I feel we have to do

what's right for our son, and it wouldn't be right to not ask questions!

Our doctor is now Dr. Feldman in NYC. We were going to another ortho in Long

Island (Dr. ) but apparently, he was not doing the method correctly.

dan&lisa dan_lisa@...> wrote:

Hi ,

It's a fair question.

Usually the problems have arisen from noncompliance with the DBB. In our

case, Emma was released too early due to having loose ligaments.

Unfortunately, our local ortho didn't recognize a relapse when he saw it and

so Emma required the ATTT. Had a Ponseti doctor been following her I am

certain he would have had her back in the DBB before the relapse had done

too much damage.

If you were to take poll of all the people who have past through here you

would find that very few have experienced problems. Even with a relapse, our

daughter's feet are much better off than they would have been had gone along

with the traditional route of release type surgery.

Another factor to consider is that doctors new to the method may not be

achieving the results that more experienced doctors get. At the Montreal

Shriners they had to re-do alot of tenotomies when they first started using

the method. From what I have heard they are getting much better results now.

The angle remains at 70 unless the child's foot remains overcorrected once

he has been walking for a while. That's usually the case for

loose-ligamented children. Who is treating your son?

Dan

Re: Dorsiflexion - Dr. Ponseti article on

treating relapses

Dan-

My doctor, Dr.Colborn, also said that 5-10 degree dorsiflexion is

acceptable and common in CF children. I know from Lori, Annika's

mom, that Annika at age 5 had 0 degree dorsiflexion and Dr. P and

Dr. C didn't do anything about it. It is only harmful if it goes the

degrees goes into the negative.

> My son also got the tenotomy re-done when he had the ATTT

surgery. Beyond that I'm afraid I cannot help.

> s.

>

> Dorsiflexion - Dr. Ponseti article

on treating relapses

>

>

>

> In Dr. Ponseti's article on treating relapses he mentions that,

along with

> the ATTT, the heel cord is lengthened if dorsiflexion is under

15°. When

> Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

she didn't

> need to have the heel cord lengthened. The paper was produced in

2001 and

> here is the exact quote; " This treatment [ATTT] is followed by

lengthening

> the tendo Achilles when dorsiflexion of the ankle is less

> than 15 degrees. "

>

> Has anyone read or heard more from Dr. Ponseti on this?

>

> Dan

>

>

>

>

>

[Guest guest]

You have to question everything. Trusting a doctor is what messed up my first

boy. I don't think there are any dumb questions, but I was a dumb parent to

trust so blindly.

s.

Dorsiflexion - Dr. Ponseti article

on treating relapses

>

>

>

> In Dr. Ponseti's article on treating relapses he mentions that,

along with

> the ATTT, the heel cord is lengthened if dorsiflexion is under

15°. When

> Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

she didn't

> need to have the heel cord lengthened. The paper was produced in

2001 and

> here is the exact quote; " This treatment [ATTT] is followed by

lengthening

> the tendo Achilles when dorsiflexion of the ankle is less

> than 15 degrees. "

>

> Has anyone read or heard more from Dr. Ponseti on this?

>

> Dan

>

>

>

>

>

[Guest guest]

It has been suggested I write this out and put it in the files for easy

reference, and I am working on doing that. But till then, the short answer is

that no, they are not twins, they are 5 years apart in age. was my 1st

and recieved nearly 2 years of bad treatment before we found Dr. Ponseti. By

that point, try as he might Ponseti couldn't really save his feet; he ended up

having the ATTT surgery. The first doctor ended up doing more harm than good

probably and now has stiff feet that do not function all that well.

My 2nd son is 17 months old now, treated by Dr. Ponseti since the beginning and

has lovely perfect feet.

s.

Dorsiflexion - Dr. Ponseti article

> on treating relapses

> >

> >

> >

> > In Dr. Ponseti's article on treating relapses he mentions that,

> along with

> > the ATTT, the heel cord is lengthened if dorsiflexion is under

> 15°. When

> > Emma had her ATTT done Dr. Ponseti said that at 5° dorsiflexion

> she didn't

> > need to have the heel cord lengthened. The paper was produced in

> 2001 and

> > here is the exact quote; " This treatment [ATTT] is followed by

> lengthening

> > the tendo Achilles when dorsiflexion of the ankle is less

> > than 15 degrees. "

> >

> > Has anyone read or heard more from Dr. Ponseti on this?

> >

> > Dan

> >

> >

> >

> >

> >