Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 The appointment went really well. We were able to get Angel flights down there. The first was wonderful and the second flew two hours in turburlance. I threw up most of the way. But then we were able to stay at the Mc house and it was such a blessing to us. It is so comforting to be around others who just " know " . We met with Shoffner and I was blown away about how much he knew about my case. I asked him that if he didn't find anything would he refer me in the right direction. He told me that he doesn't go on fishing expeditions and that he thinks we are in the right area. The proceedure went fine, except that he wanted a spinal tap and I have a bad history with them...and sure enough...I was in tremendous pain from the spinal fluid leaking. They kept me overnight for pain control and we missed our plane back home. Because of Katrina, we were told that it might take days to get us out. But in the end the two original pilots heard about our problem and came and got us anyway. Shofner doesn't think I have MS as well; but that it is all apart of the mito...but we will see as he sent the spinal fluid to re-examine it for that as well. They told me four to six weeks for the results...I thought I heard that it would be longer on the forum. I am hopeful for the first time in a long time. He sent a summary of the visit to my physicians and copied me the week after I was there. He seems like a brilliant and kind man...I am really hopeful to have answers that can make a difference. In the mean time...all I do is sleep! Is anyone here taking any awake meds like provigil or such and how does it work with you. I am so grateful to have gotten in to see him and to have him look at my records and order the appropriate tests. I waited so long to get in and then it seemed to happen over night. I am hopeful that it won't be months until I get answers...but it's not like I'm going anywhere! Love to my favorite on line people! Vivian > hi Vivian as best I recall my results took several months....are you getting > the results directly from Dr Shoffner or through a physician you are working > with. With myself it was the latter and may have delayed things. How did > things go? Vivian > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Dear Vivian, i am so glad you finally got a biopsy and that you are seeing someone good. it took me about 6 weeks to get results. I find that I go through about 2 to 3 week of needing a lot of sleep and then it backs off a bit. i cannot get through the day without a nap usually. I sleep 10 hours at night and 2-4 in the day depending on the day. I am taking 2 amantadine (symmetrel) to stay awake longer. It helps me a bit. i know you have 3 kids, and it's hard to find time to nap. Praying for you. thelma Quote Link to comment Share on other sites More sharing options...
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