Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 You have to realize that a large percent of the people you see online have come searching because they are having some sort of problem. This is true of any web group. In an expecting club for pregnant mothers, there is an unusually large percent of women who are high risk ... it is very much the same here. Many of the parents here have come here after having experience with a non-Ponseti doctor who has done more damage than good ... or have children who wont stay in the shoes or their foot doesnt look right and end up having atypical (which often requires extra casting) or whose child has relapsed due to coming out of the brace too soon. In result, what seems like alot of children are actually those who fall into the 5% or simply did not stay in the brace long enough (or proper hours). In reality, there are thousands - even tens of thousands - of children treated with this method world-wide that we hear nothing about and who do just fine. Another thing is that the ATTT is alot less damaging than the reconstructive, posterior release or other types of clubfoot surgery. It quite literally moves a tendon from one spot to another, rather than cutting bones or opening joints. Even if every child here had to have this surgery, it is STILL alot better than the alternative. As for the 70* ... yes, most kids stay at this degree for the full time. It doesnt have any long term impact on the foot besides preventing relapse. Stand up and turn your foot out to the side. Chances are you can achieve AT LEAST 70* of rotation without any discomfort. It is well within the natural range of motion for a normal ankle. Some kids - those with loose ligaments and some with atypical clubfoot - will have the angle reduced some because it causes minor problems, but even in these cases the rotation is rarely less than 50* and any damage done by the 70* is gone within weeks of reducing the angle. Don't worry ... you are asking well informed, smart questions. That is what a parent is supposed to do. I hope this has helped ease your fears a bit! Angel --------------------------------------------------------------- If the Ponseti method is so successful, then how come so many Ponseti patients have required ATTT or a second tenotomy? I just want to make sure I'm doing what's best for my son by using a doc who is Ponseti-trained. It seems like the way to go, but more and more, I read aboutthe foot relapsing or possibly remaining overcorrected or lengthening procedures being performed anyway... Ugh, I'm just stressed. Also, another question. After the 23/7 for 3 months wear of the DBB, is the degree that the CF is positioned at reduced at all? Or does it remain at 70 degrees for the next 3 years of wear?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 thank you for a very consistent reply. And I'd like to thank the author of the question as well for putting my thoughts in words. kitaki m_kitaki@...> wrote: You have to realize that a large percent of the people you see online have come searching because they are having some sort of problem. This is true of any web group. In an expecting club for pregnant mothers, there is an unusually large percent of women who are high risk ... it is very much the same here. Many of the parents here have come here after having experience with a non-Ponseti doctor who has done more damage than good ... or have children who wont stay in the shoes or their foot doesnt look right and end up having atypical (which often requires extra casting) or whose child has relapsed due to coming out of the brace too soon. In result, what seems like alot of children are actually those who fall into the 5% or simply did not stay in the brace long enough (or proper hours). In reality, there are thousands - even tens of thousands - of children treated with this method world-wide that we hear nothing about and who do just fine. Another thing is that the ATTT is alot less damaging than the reconstructive, posterior release or other types of clubfoot surgery. It quite literally moves a tendon from one spot to another, rather than cutting bones or opening joints. Even if every child here had to have this surgery, it is STILL alot better than the alternative. As for the 70* ... yes, most kids stay at this degree for the full time. It doesnt have any long term impact on the foot besides preventing relapse. Stand up and turn your foot out to the side. Chances are you can achieve AT LEAST 70* of rotation without any discomfort. It is well within the natural range of motion for a normal ankle. Some kids - those with loose ligaments and some with atypical clubfoot - will have the angle reduced some because it causes minor problems, but even in these cases the rotation is rarely less than 50* and any damage done by the 70* is gone within weeks of reducing the angle. Don't worry ... you are asking well informed, smart questions. That is what a parent is supposed to do. I hope this has helped ease your fears a bit! Angel --------------------------------------------------------------- If the Ponseti method is so successful, then how come so many Ponseti patients have required ATTT or a second tenotomy? I just want to make sure I'm doing what's best for my son by using a doc who is Ponseti-trained. It seems like the way to go, but more and more, I read aboutthe foot relapsing or possibly remaining overcorrected or lengthening procedures being performed anyway... Ugh, I'm just stressed. Also, another question. After the 23/7 for 3 months wear of the DBB, is the degree that the CF is positioned at reduced at all? Or does it remain at 70 degrees for the next 3 years of wear?? Quote Link to comment Share on other sites More sharing options...
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