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The GH is working!!!!

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Hi Everyone,

I don't post much, just kinda lurk around and read. My son

Started GH in July. We just had a appointment with his endo on friday

and we could tell he has had some catch up growth!!! He is now on

the 3% line for weight and just below it for length. I'm so excited

that i can't contain it. Also while at the appointment met

another boy that was just a couple of months older then him and the

same size. This was the first time that either boy had met anyone

like them. Needless to say they ended up " Best Friends at first

sight " come to find out they live in the same area we do. and took

the same flights we did on friday so we had lunch and sat next to

eachother on the flight home. The other little boy has a diffrent

genetic dissorder then but a lot of the things were the same.

Anyway it was a great day all around, and I just had to tell ya'll

about it. Well gotta get going.

Angel

Mom to (5yr4mo RSS 35lbs and 38in tall!!!) and Donovan (10yr

old and almost as tall as mom allready.. lol)

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--Hi I am Mom to s I read this and was so

happy for you , I to hope I can have that feeling of joy of growth my

son is to start GH this month and I am nervous and excited, I want to

just have a different weight and height result when we start and go

to the checkup and for him to say he is growing!!! What device GH

are you using? I am so proud of and for you !! HUGS TO YOU!!!!

5 in april, 25 pounds and 33 inches !!(prevacid) 12 to 18 mo.

clothes!!! Hope to change this after starting

GH!!!

- In RSS-

Support , " lil_angel_0910 " wrote:

> Hi Everyone,

>

> I don't post much, just kinda lurk around and read. My son

> Started GH in July. We just had a appointment with his endo on

friday

> and we could tell he has had some catch up growth!!! He is now on

> the 3% line for weight and just below it for length. I'm so

excited

> that i can't contain it. Also while at the appointment met

> another boy that was just a couple of months older then him and the

> same size. This was the first time that either boy had met anyone

> like them. Needless to say they ended up " Best Friends at first

> sight " come to find out they live in the same area we do. and took

> the same flights we did on friday so we had lunch and sat next to

> eachother on the flight home. The other little boy has a diffrent

> genetic dissorder then but a lot of the things were the same.

> Anyway it was a great day all around, and I just had to tell ya'll

> about it. Well gotta get going.

>

> Angel

> Mom to (5yr4mo RSS 35lbs and 38in tall!!!) and Donovan (10yr

> old and almost as tall as mom allready.. lol)

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Guest guest

That is great news!!! I am so glad that your son also feels so

great. Your description of him meeting the other little boy brings

back a lot of memories of the MAGIC conventions -- the same thing

happens when all these RSS kids suddenly meet other kids who look

just like each other! Watch the kids' faces -- it is a lightbulb

going off -- like " hey, you look like I do -- wow, I thought I was

the only one this short. "

On a separate note, is this your first visit back to the endo? Does

your endo only see every 6 months? Or is that because you

have to fly to see him/her? The reason I ask is that all the

studies I have been reading lately are pretty emphatic that checkups

every 3 months are critical for RSS/SGA kids, because the dosages

have to be adjusted so carefully. Clearly, this is not always

possible (we sometimes have to skip going to NY).

> Hi Everyone,

>

> I don't post much, just kinda lurk around and read. My son

> Started GH in July. We just had a appointment with his endo on

friday

> and we could tell he has had some catch up growth!!! He is now on

> the 3% line for weight and just below it for length. I'm so

excited

> that i can't contain it. Also while at the appointment met

> another boy that was just a couple of months older then him and

the

> same size. This was the first time that either boy had met anyone

> like them. Needless to say they ended up " Best Friends at first

> sight " come to find out they live in the same area we do. and

took

> the same flights we did on friday so we had lunch and sat next to

> eachother on the flight home. The other little boy has a diffrent

> genetic dissorder then but a lot of the things were the

same.

> Anyway it was a great day all around, and I just had to tell ya'll

> about it. Well gotta get going.

>

> Angel

> Mom to (5yr4mo RSS 35lbs and 38in tall!!!) and Donovan

(10yr

> old and almost as tall as mom allready.. lol)

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