Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 Hi everyone! My name is Amy. I am 28 and was diagnosed with RSS in 1975 shortly after I was born. I was just wondering if there are any other adults out there who might have some knowledge of what happens in later life with an RSS patient. I am having alot of medical problems right now and I am a little scared. My kidneys are functioning 10% less than they are supposed to, I have been diagnosed with diabetes (type 1) and I have also been diagnosed with Scheurmann's disease which is a bone degenerative disease in my lower spine. I was just wondering if these conditions might be related to or because of the RSS. I know alot of you in this group are adults who have children with RSS and I really don't want to scare anyone. I am having a problem finding a doctor here in Oklahoma that even knows what I am talking about when I tell them I have RSS. PLEASE HELP ME!!!! Please send all emails to br1975ew@.... This is my main email address. Thanks so much. Quote Link to comment Share on other sites More sharing options...
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