Deb B.

[Guest guest]

Hi Deb,

We're also from Canada, Central Alberta, and we didn't get an RSS

diagnosis until after Olivia turned 3. When i found out about the

hypo-g I to was devistated. I thought that she was just too hot

when she slept and soaked the sheets with sweat, so naturally she

would be shaking when she woke up, she's cold right? from the

sweating. Well after we learned different i couldn't believe that

we missed this a warning sign and I hurt for my daughter and what

I'd maybe done to her. I've come to accept and embrace RSS, it was

just being a good little syndrome and doing exactly as it should,

i'm going to fight it tooth and nail but it's also got a job to do.

We're getting some sound advice and a lot of help dealing with

behavior issues and for the time being they're working great.

Leah, mom to 9 and Olivia 4-RSS

[Guest guest]

Hi Leah

That is exactly how Adam woke up each and every time. I remember thinking

" man the house must be hot " or " gee did I bundle him up too tight " and I

always thought something for his excessive sweating. But what bothers me is

that I did tell the doctor every single time we went in that my small baby

was waking soaking wet, so why didn't they think of it???

That is something I will never forgive, that and Adam's father who demanded

that Adam be taken off formula at 3 months and given homo milk (I managed to

hold him off to 5 or 6 months but he was giving me a hard time about it

constantly) and that I " make " the baby sleep through the night. And " no you

don't go get and feed the baby when it cries; he has to learn " . It was

against my instincts and he was not like that when my daughter was a baby

but he made live a living hell with these types of demands when Adam was a

baby. Turns out all those things were wrong, wrong, wrong for Adam and *I*

knew it, but to shut him up, I did as he asked. I should have fought for my

baby.

Anyway, I can't forgive those things and when something brings them up

again, I take it hard.

But thanks for sharing your story with me. I do feel better knowing that it

didn't only happen to us.

Thanks

Debby

Deb B.

> Hi Deb,

> We're also from Canada, Central Alberta, and we didn't get an RSS

> diagnosis until after Olivia turned 3. When i found out about the

> hypo-g I to was devistated. I thought that she was just too hot

> when she slept and soaked the sheets with sweat, so naturally she

> would be shaking when she woke up, she's cold right? from the

> sweating. Well after we learned different i couldn't believe that

> we missed this a warning sign and I hurt for my daughter and what

> I'd maybe done to her. I've come to accept and embrace RSS, it was

> just being a good little syndrome and doing exactly as it should,

> i'm going to fight it tooth and nail but it's also got a job to do.

> We're getting some sound advice and a lot of help dealing with

> behavior issues and for the time being they're working great.

>

> Leah, mom to 9 and Olivia 4-RSS

>

>

>

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