Re: New member /concerned about younger sister

[Guest guest]

Hi Lorreyne. My name is Teri and i'm a 28 year old RSS Adult. I just wanted to

let you know that i'm only 4'7 1/2 but I am just as independant as anybody else

my age. I have worked the same job for almost 11 years and 6 of those 11 years

I have worked 2 jobs. I have been out on my own since i was 20. I have driven

a car since I turned 16. Even though I have RSS and very short, I have not let

that stopped me from living a normal life. I'm not married (date often though)

but I do know of several RSS adults that are married with kids. Of all the RSS

adults I have talked to they all live a very " normal " life. I don't think your

sister will have any problems either. If you want to email me and ask me

anything, my email address is TMshorty75@...

Teri

[Guest guest]

Lorreyne-

I'm a 38 year old adult with RSS. I've married. I work as an

Occupational Therapist and, like Teri, I've held jobs for years and

years (I worked in a Psychiatry unit of a hospital for 11 years, and

have been working in Home Health for 6 years), overall, am as normal

as can be. Es no problema .

-Sharon-

4'6.75 "

38 years, 1 day

94# despite birthday cake! Yay me!

[Guest guest]

Hi lorreyner

My name is kim and i'm 25 and 4'3 " tall, I live in Scotland in the UK and have

RSS. I live a relatively normal life and like terri i drive a car and have lived

on my own (away from parents) for about 8 years now. I have some health issues

but at present not sure whether they are due to RSS but I'm seeing an

endocrinologist in MAy so will be able to update all members on the site soon.

Feel free to email me any time. Welcome to the site.

lorreyner lorreyner@...> wrote:

Hi:

I just found about the RSS-Support and at the moment became

member.Iam so glad to have had found this,I needed to hear from

others and share similarities and compare suggestions.

I dont know where exactly to start? So many terms are just new to

me, I need so much more to learn.I am 28 and my younger sister (14

years) is diagnosed with the RSS. My parents,my family we've known

this long ago, somehow I think we could help improve in different

ways,and am also concerned if my sister can actually grow up to

live a normal life(specifically completly independent, married?)Im

probably anticipating much, but as a woman and her older sister it

does pass my mind and Id wish so much she could ; but the way I see

her,Im just not sure.

We live in Puerto Rico and dont know (at least not yet) of anyone

else with the RSS. Sometimes I think that our resources here are

very limited,the programs and services arent the best .

I will gather more info, and share later on what exactly shes been

through the history and pass this on.I would appreciate any kind of

feedback and hope to hear and learn much more from this.

Lorreyne