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Hi everyone

My daughter Maddison is 3. We feed her a meal every three hours and

a snack in between. The last time we saw a nutritionist was

probably when she was 1. They are the ones who told us to feed her

this was. She doesn't seem to have a problem with hypoglycemia

eating like this. My concern has always been that we feed her too

often. I seems like she doesn't have a chance to get hungry. What

does anyone else do or think. I know of they blood sugar issues.

And she doesn't seem to have ever had a problem with slow stomach

empting. Help. I plan to talk to her gastro in april. I just want

some in put from the professionals!!! (you guys)

mom to Maddison 3yrs

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Hi melissa!!

my son christopher is also 3 and this is how we've always fed him as

well. he has also seemed to be able to stay away from the bs

problems by eating this way as well. i dont feel that he is being

overfed since he will only eat as much as he can at those meals.

hope this helps and maybe someone else will have some thing else to

add about this either way.

jodie

(nicholas-5 nonrss, christopher-3 rss 23lbs 33 " ght genotropin .6,

johnathon-9m nonrss)

> Hi everyone

> My daughter Maddison is 3. We feed her a meal every three hours

and

> a snack in between. The last time we saw a nutritionist was

> probably when she was 1. They are the ones who told us to feed

her

> this was. She doesn't seem to have a problem with hypoglycemia

> eating like this. My concern has always been that we feed her too

> often. I seems like she doesn't have a chance to get hungry.

What

> does anyone else do or think. I know of they blood sugar issues.

> And she doesn't seem to have ever had a problem with slow stomach

> empting. Help. I plan to talk to her gastro in april. I just

want

> some in put from the professionals!!! (you guys)

>

>

> mom to Maddison 3yrs

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Hi and Jodie

Do you also feed your kids every 3 hrs during the night?

Sabina

> > Hi everyone

> > My daughter Maddison is 3. We feed her a meal every three hours

> and

> > a snack in between. The last time we saw a nutritionist was

> > probably when she was 1. They are the ones who told us to feed

> her

> > this was. She doesn't seem to have a problem with hypoglycemia

> > eating like this. My concern has always been that we feed her

too

> > often. I seems like she doesn't have a chance to get hungry.

> What

> > does anyone else do or think. I know of they blood sugar

issues.

> > And she doesn't seem to have ever had a problem with slow stomach

> > empting. Help. I plan to talk to her gastro in april. I just

> want

> > some in put from the professionals!!! (you guys)

> >

> >

> > mom to Maddison 3yrs

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Hi Sabina,

I hope it's okay if I butt in here... I'm an RSS adult. My mom

swears she fed me every 2-3 hours 'round the clock for the first few

years of my life. I don't know how she managed, and she still blames

ME that she can't sleep through the night now (*grin*), but I really

do think the frequent feedings prevented severe hypoglycemia issues.

Oh, and I'm sure I never ate a lot during any of those feedings,

either. In fact, my parents still call me a " nibbler " -- I never eat

a lot at any one meal, but people who've watched me eat all day are

often shocked at how much I can put away in a day now! hehe!

hope this helps,

-Ana

(26 years old, RSS)

>

> Hi and Jodie

> Do you also feed your kids every 3 hrs during the night?

> Sabina

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- This is a hotly debated topic. What I have learned that

we now put forth via MAGIC is the following:

It is recommended that you stick to your 3 main family meals -- that

your child not have meals different from you. However, your child

should also have frequent snacks in between the meals, but not more

than 60 minutes prior to a meal. The snack just prior to the meal

should also not be high in sugar.

For example

Breakfast 8am

Snack 9:30am

Snack 11am

Lunch 12:00-12:30

Snack 1:30

Snack 3:30

Snack 4:30

Dinner 6:00pm

You want your child to learn normal eating habits, but the fact is

that ALL children under the age of 4 or so, should be snacking

frequently, even without RSS. This is the nature of their fast

metabolism bodies.

You can't feed your child too often -- you can feed them too much at

the wrong times, which will impact their ability to eat a regular

meal.

So a snack for a child might be a cheesestick. And then an hour

later, a small bowl of goldfish.

Hope this makes sense for you. Salem

> Hi everyone

> My daughter Maddison is 3. We feed her a meal every three hours

and

> a snack in between. The last time we saw a nutritionist was

> probably when she was 1. They are the ones who told us to feed

her

> this was. She doesn't seem to have a problem with hypoglycemia

> eating like this. My concern has always been that we feed her too

> often. I seems like she doesn't have a chance to get hungry.

What

> does anyone else do or think. I know of they blood sugar issues.

> And she doesn't seem to have ever had a problem with slow stomach

> empting. Help. I plan to talk to her gastro in april. I just

want

> some in put from the professionals!!! (you guys)

>

>

> mom to Maddison 3yrs

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hi ,

We went regularly to both a feeding therapist and a nutritionist with Willie

prior to his recent RSS diagnosis. They told me among other things not to feed

him at night, to " play hardball " and not let him have anything between the

scheduled meals nd snacks, to feed him in front of the TV, to bounce him on a

therapy ball before dinner, to feed him separately from the rest of the family,

to feed him always in the same place. With 2 boys 2 years apart and all the

stress of a child who isn;t eating, this was all impossible. The four months I

stuck to their advice were the worst ever. He gained 2 ounces in 4 months. I

went in to see the nutritionist w/ a limp,pale child (Debbie-they didn't think

of hypoglycemia then either!) and she showed us photos of feeding tubes . (In

front of Willie who held onto his stomach shaking his head NO the whole drive

home while I sobbed). Anyhow, I got home , unplugged the TV, fed him when he

asked and cut out all the therapy that was driving us all insane (when you are

bouncing your child on a therapy ball until dinner , who is making dinner?

Where do you put the other child?) The next month he gained one pound. Anyhow,

although RSS was suspected, they didn't seem to really understand any of it. It

was such a relief when we say Dr H and she said " just feed him when he's

hungry. Every time he asks. Phew. "

Good luck to you. I'm sure there are great nutritionists in this arena, but

you likely know best.

Kathy (Willie 3 yrs old RSS and Jack 5 yrs non RSS)

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,

When I first read your message, I thought " Well, if it ain't broke,

don't fix it. " You are obviously doing well and Maddison is

thriving and also doing well.

It might help to know that even at approaching 16, Max is a grazer.

He will eat breakfast, lunch and dinner, but he snacks between meals

and just cannot make it from breakfast until lunch and lunch to

dinner without them. We even have something in his IEP at school so

he can snack during classes.

What wrote about the types of foods and the frequency is so

true. That makes a big difference, but it seems like you are doing

that anyway without even realizing it. I have worried about Max

doing this and going beyond that 25% weight for height, but at the

last visit she told Max to EAT because he had not gained weight and

therefore did not grow. Now Max is obsessing and weighing himself

every day and has decided he needs to slow down because he is a

whopping 103 pounds! I don't think I even saw that number growing

up! (We have to monitor Max for OCD and his weight because he will

make himself crazy, just like an anorexic if not reassured and

watched.)

So, I think you are doing the right thing. Good luck.

Jodi

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hi melissa!!

christopher usually can go the night without eating something

(sometimes he will wake up and want a cookie and a drink) but most

of the time he can make it through. he has a snack before going to

bed which i think helps.

jodie

(nicholas-5 nonrss, christopher-3 rss 23lbs 33 " ght genotropin .6,

johnathon-9m nonrss)-

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no we don't feed her at night with a bottle. we used to give her a

bottle at bed time but she started getting cavities so we had to

stop. thanks

melissa

> > > Hi everyone

> > > My daughter Maddison is 3. We feed her a meal every three

hours

> > and

> > > a snack in between. The last time we saw a nutritionist was

> > > probably when she was 1. They are the ones who told us to

feed

> > her

> > > this was. She doesn't seem to have a problem with

hypoglycemia

> > > eating like this. My concern has always been that we feed her

> too

> > > often. I seems like she doesn't have a chance to get hungry.

> > What

> > > does anyone else do or think. I know of they blood sugar

> issues.

> > > And she doesn't seem to have ever had a problem with slow

stomach

> > > empting. Help. I plan to talk to her gastro in april. I

just

> > want

> > > some in put from the professionals!!! (you guys)

> > >

> > >

> > > mom to Maddison 3yrs

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Hi

thanks for the reply.

melissa-

-- In RSS-Support , " hu99am43 " wrote:

> Hi Sabina,

>

> I hope it's okay if I butt in here... I'm an RSS adult. My mom

> swears she fed me every 2-3 hours 'round the clock for the first

few

> years of my life. I don't know how she managed, and she still

blames

> ME that she can't sleep through the night now (*grin*), but I

really

> do think the frequent feedings prevented severe hypoglycemia

issues.

>

> Oh, and I'm sure I never ate a lot during any of those feedings,

> either. In fact, my parents still call me a " nibbler " -- I never

eat

> a lot at any one meal, but people who've watched me eat all day

are

> often shocked at how much I can put away in a day now! hehe!

>

> hope this helps,

> -Ana

> (26 years old, RSS)

>

>

> >

> > Hi and Jodie

> > Do you also feed your kids every 3 hrs during the night?

> > Sabina

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Hi

Thanks for the reply. Its makes sense. Our biggest problem is we

still have to feed her everything ourself. She will eat on her own

but as far as her eating a whole meal by herself she will not. Even

with snacks you have to constantly remind her eat, take a bite. She

is on periactin and has been for almost 2 years. But I don't know

how she will ever go to school like this????????? I worry about it a

lot.

> > Hi everyone

> > My daughter Maddison is 3. We feed her a meal every three hours

> and

> > a snack in between. The last time we saw a nutritionist was

> > probably when she was 1. They are the ones who told us to feed

> her

> > this was. She doesn't seem to have a problem with hypoglycemia

> > eating like this. My concern has always been that we feed her

too

> > often. I seems like she doesn't have a chance to get hungry.

> What

> > does anyone else do or think. I know of they blood sugar

issues.

> > And she doesn't seem to have ever had a problem with slow

stomach

> > empting. Help. I plan to talk to her gastro in april. I just

> want

> > some in put from the professionals!!! (you guys)

> >

> >

> > mom to Maddison 3yrs

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I haven't experienced the feeding problems you have but I will tell you that

our common fear that keeps us awake at night " how will they ever go to

school? " always goes away and solves itself. I remember my non RSS daughter

before she started school (my oldest, she's almost 15 now) I was so

concerned because she was still not independent at wiping herself after a BM

and I thought " my God what will happen? " I remember her kindergarten teacher

telling me that it had never been an issue (most kids apparently don't go at

school). Sure enough, it wasn't a problem. On another front, my sister's

little boy has had on going problems with his BM's (common theme?? LOL) and

was in diapers right up until June of the year before he started school

(that was last year). My sister was hysterical thinking of her son being

made fun of because he was still in diapers. (he couldn't control when he

would have a BM so he had diapers). You know what? Over that summer, he

progressed rapidly and off he went, that Sept., in his underwear to school

and has been fine.

Try not to worry, kids are amazing and will shock you with the rapid change

of their development. Just when you think things are going to like that

forever, they wake up one morning and it's a different story all together.

Debby

Re: feeding too often

> Hi

> Thanks for the reply. Its makes sense. Our biggest problem is we

> still have to feed her everything ourself. She will eat on her own

> but as far as her eating a whole meal by herself she will not. Even

> with snacks you have to constantly remind her eat, take a bite. She

> is on periactin and has been for almost 2 years. But I don't know

> how she will ever go to school like this????????? I worry about it a

> lot.

>

>

>

>

> > > Hi everyone

> > > My daughter Maddison is 3. We feed her a meal every three hours

> > and

> > > a snack in between. The last time we saw a nutritionist was

> > > probably when she was 1. They are the ones who told us to feed

> > her

> > > this was. She doesn't seem to have a problem with hypoglycemia

> > > eating like this. My concern has always been that we feed her

> too

> > > often. I seems like she doesn't have a chance to get hungry.

> > What

> > > does anyone else do or think. I know of they blood sugar

> issues.

> > > And she doesn't seem to have ever had a problem with slow

> stomach

> > > empting. Help. I plan to talk to her gastro in april. I just

> > want

> > > some in put from the professionals!!! (you guys)

> > >

> > >

> > > mom to Maddison 3yrs

>

>

>

>

>

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