Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 My son, Aleksander, is still not doing well with the DDB, and yesterday we had to remove the shoes and the bar, per the doctor on call. I'm waiting until 7 to call again to talk to scheduling to get him in today, but I wanted to find out if anyone else had to remove the shoes for about a day before getting back in, and what happened when you did that? I have a strong hunch the bar was too long, but now that he's been out of the shoes I'm worried he'll have to be casted again. To make matters worse for the little guy, he's getting his first tooth.... Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 - I noticed in your other post that you're going to Gillette in St. . Have you met the " cast lady " , Beth Meyers??? If not, please seek her out as she is a wonderful, caring individual who will help you work through the issues with Aleksander's brace. A few years ago, she trained in Iowa with Dr. Ponseti and was instrumental in bringing the Ponseti method first to the Twin Cities Shriner's and then to Gillette. She has been a wonderful resource to this board as well. If you don't have any luck locating her at the hospital, please email me directly and I will give you her personal email address. Good luck!!!!!!!!!! Keep us posted- & (3-16-00) left clubfoot > > My son, Aleksander, is still not doing well with the DDB, and > yesterday we had to remove the shoes and the bar, per the doctor on > call. > > I'm waiting until 7 to call again to talk to scheduling to get him in > today, but I wanted to find out if anyone else had to remove the > shoes for about a day before getting back in, and what happened when > you did that? I have a strong hunch the bar was too long, but now > that he's been out of the shoes I'm worried he'll have to be casted > again. > > To make matters worse for the little guy, he's getting his first > tooth.... > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 There is a female who has casted Aleksander, but I honestly can't remember her name. She is wonderful though. Actually, everyone there is so nice and willing to help. They really take an interest in their patients. It is my understanding that they all trained with Dr. Ponsetti, or at the very least are endorsed by him. We will be taking Aleksander back on Thursday to see his doctor and I'll ask about her then. For now, he gets a break until he can see Dr. Quanbeck again. She prefers that he wait to see her until his feet can heal. Thanks for the name, by the way! I'll definitely seek her out, although I have a feeling she may be the woman Aleksander has seen before. She had just figured out how to cast him so he wouldn't scream the whole time. He's a fiesty boy and tended to kick a lot when they were touching his feet. > > > > My son, Aleksander, is still not doing well with the DDB, and > > yesterday we had to remove the shoes and the bar, per the doctor > on > > call. > > > > I'm waiting until 7 to call again to talk to scheduling to get him > in > > today, but I wanted to find out if anyone else had to remove the > > shoes for about a day before getting back in, and what happened > when > > you did that? I have a strong hunch the bar was too long, but now > > that he's been out of the shoes I'm worried he'll have to be > casted > > again. > > > > To make matters worse for the little guy, he's getting his first > > tooth.... > > > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 You can see her picture if you look under the files section, in the folder " Shriners Twin Cities " . I hope Aleksander's appointment goes well!!!!!! > > > > > > My son, Aleksander, is still not doing well with the DDB, and > > > yesterday we had to remove the shoes and the bar, per the doctor > > on > > > call. > > > > > > I'm waiting until 7 to call again to talk to scheduling to get > him > > in > > > today, but I wanted to find out if anyone else had to remove the > > > shoes for about a day before getting back in, and what happened > > when > > > you did that? I have a strong hunch the bar was too long, but > now > > > that he's been out of the shoes I'm worried he'll have to be > > casted > > > again. > > > > > > To make matters worse for the little guy, he's getting his first > > > tooth.... > > > > > > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 We haven't met her, but I will definitely look for her on Thursday! Thanks. > > > > > > > > My son, Aleksander, is still not doing well with the DDB, and > > > > yesterday we had to remove the shoes and the bar, per the > doctor > > > on > > > > call. > > > > > > > > I'm waiting until 7 to call again to talk to scheduling to get > > him > > > in > > > > today, but I wanted to find out if anyone else had to remove > the > > > > shoes for about a day before getting back in, and what > happened > > > when > > > > you did that? I have a strong hunch the bar was too long, but > > now > > > > that he's been out of the shoes I'm worried he'll have to be > > > casted > > > > again. > > > > > > > > To make matters worse for the little guy, he's getting his > first > > > > tooth.... > > > > > > > > Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Does he have sores? And where on his feet are they? If he's got sores on his heels, you can cut out the back of the shoes, releive the pressure and STILL maintain his correction. Really, this is ok and probably a better option for a fully corrected foot than a healing cast. He should not be out of the shoes for *days* waiting for the doc to fing enough time to see him. That's ludicrous. He should be squeezed in TODAY, not Thursday. Have you seen the document with the information how to cut the hole? Seriously, it's not a bad thing at all. I will send you a copy with the pics. Kori At 07:12 AM 3/7/2005, you wrote: >There is a female who has casted Aleksander, but I honestly can't >remember her name. She is wonderful though. Actually, everyone >there is so nice and willing to help. They really take an interest >in their patients. It is my understanding that they all trained with >Dr. Ponsetti, or at the very least are endorsed by him. > >We will be taking Aleksander back on Thursday to see his doctor and >I'll ask about her then. > >For now, he gets a break until he can see Dr. Quanbeck again. She >prefers that he wait to see her until his feet can heal. > >Thanks for the name, by the way! I'll definitely seek her out, >although I have a feeling she may be the woman Aleksander has seen >before. She had just figured out how to cast him so he wouldn't >scream the whole time. He's a fiesty boy and tended to kick a lot >when they were touching his feet. > > > > > > > > My son, Aleksander, is still not doing well with the DDB, and > > > yesterday we had to remove the shoes and the bar, per the doctor > > on > > > call. > > > > > > I'm waiting until 7 to call again to talk to scheduling to get >him > > in > > > today, but I wanted to find out if anyone else had to remove the > > > shoes for about a day before getting back in, and what happened > > when > > > you did that? I have a strong hunch the bar was too long, but >now > > > that he's been out of the shoes I'm worried he'll have to be > > casted > > > again. > > > > > > To make matters worse for the little guy, he's getting his first > > > tooth.... > > > > > > Thanks! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Yikes, that sounds like the start of a pressure sore, which I believe is worse than a blister. Can you find anything in the shoe that would press in and cause this dent? It could be a shoe-defect, or a bunched up sock, sock seam.... I'm not sure but it sounds serious and I'm with the others, after this many days out of the brace and with problems too, you baby is probably losing correction. s. Re: More DDB problems He has pretty deep indentations on his heels, about the size of a pencil eraser. I noticed some redness on his heels on Saturday, but he didn't have blisters, but on Sunday morning when I checked his feet, he had these deep indentations with a purple bruise in the center. The skin hadn't broken, but he was extremely upset. The indentations are still there today, but he's feeling fine. He wasn't eating well when he had the shoes on, and he ate normally last night and again this morning. He also went back to sleeping through most of the night last night, which was a first in quite a while! The doctor could have seen him today, but wanted his foot to have time to heal before putting him back in anything. Is that correct, even though he doesn't have any open sores? I kind of thought he might lose ground if he wasn't fitted back in the shoes right away, but it also made sense that if he has bruises now, he shouldn't have them put back on until they heal. I will call the doc again and see if she has anything else to say. I do know she's only in the office we go to on Thursdays, and that she has a very strong preference for the staff in that location. I did tell them that we're willing to see her partner, who is available when she isn't. > > > > > > > > My son, Aleksander, is still not doing well with the DDB, and > > > > yesterday we had to remove the shoes and the bar, per the doctor > > > on > > > > call. > > > > > > > > I'm waiting until 7 to call again to talk to scheduling to get > >him > > > in > > > > today, but I wanted to find out if anyone else had to remove the > > > > shoes for about a day before getting back in, and what happened > > > when > > > > you did that? I have a strong hunch the bar was too long, but > >now > > > > that he's been out of the shoes I'm worried he'll have to be > > > casted > > > > again. > > > > > > > > To make matters worse for the little guy, he's getting his first > > > > tooth.... > > > > > > > > Thanks! > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 He has pretty deep indentations on his heels, about the size of a pencil eraser. I noticed some redness on his heels on Saturday, but he didn't have blisters, but on Sunday morning when I checked his feet, he had these deep indentations with a purple bruise in the center. The skin hadn't broken, but he was extremely upset. The indentations are still there today, but he's feeling fine. He wasn't eating well when he had the shoes on, and he ate normally last night and again this morning. He also went back to sleeping through most of the night last night, which was a first in quite a while! The doctor could have seen him today, but wanted his foot to have time to heal before putting him back in anything. Is that correct, even though he doesn't have any open sores? I kind of thought he might lose ground if he wasn't fitted back in the shoes right away, but it also made sense that if he has bruises now, he shouldn't have them put back on until they heal. I will call the doc again and see if she has anything else to say. I do know she's only in the office we go to on Thursdays, and that she has a very strong preference for the staff in that location. I did tell them that we're willing to see her partner, who is available when she isn't. > > > > > > > > My son, Aleksander, is still not doing well with the DDB, and > > > > yesterday we had to remove the shoes and the bar, per the doctor > > > on > > > > call. > > > > > > > > I'm waiting until 7 to call again to talk to scheduling to get > >him > > > in > > > > today, but I wanted to find out if anyone else had to remove the > > > > shoes for about a day before getting back in, and what happened > > > when > > > > you did that? I have a strong hunch the bar was too long, but > >now > > > > that he's been out of the shoes I'm worried he'll have to be > > > casted > > > > again. > > > > > > > > To make matters worse for the little guy, he's getting his first > > > > tooth.... > > > > > > > > Thanks! > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 I checked inside the shoes and didn't see anything. I have tried different socks (thin ones, thicker ones, ones with grips, etc) and they all seem to end up with the same result. I've left messages with everyone I have a number for and now I wait. This is the part I'm terrible at! I'm one of those people that calls until I get a live person because I hate trusting people to call me back! Is a pressure sore something that could be caused if the bar is too long? It seemed like something was off because Aleksander is such a great kid and really adjusts to everything really well. He really seemed to move funny, and not just because it was something new. I can't really describe what it was, but it really seemed more like something was off, rather than being about the way he was adjusting. My husband and I were aware of some of the problems that the transition could bring and we had been teaching Aleksander to move his legs together before he even got the bar. We wanted to get him used to that motion and give him a jump start on adjusting. He had already been moving his legs together most of the time (except when he gets really mad!), so that is another reason that I don't think it was only the adjustment that was making him move funny. I'm hoping to hear from someone soon. If not, I've had lots of experience harassing medical professionals until I get what I want. My husband has had two open heart surgeries (to repair a leaky mitral valve) and the last one was while I was pregnant with Aleksander. I was definitely not willing to wait to get that scheduled knowing how long the recovery is! > Yikes, that sounds like the start of a pressure sore, which I believe is worse than a blister. Can you find anything in the shoe that would press in and cause this dent? It could be a shoe-defect, or a bunched up sock, sock seam.... > > I'm not sure but it sounds serious and I'm with the others, after this many days out of the brace and with problems too, you baby is probably losing correction. > s. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 At 11:47 AM 3/7/2005, you wrote: >I checked inside the shoes and didn't see anything. I have tried >different socks (thin ones, thicker ones, ones with grips, etc) and >they all seem to end up with the same result. I've left messages >with everyone I have a number for and now I wait. This is the part >I'm terrible at! I'm one of those people that calls until I get a >live person because I hate trusting people to call me back! Most times, it's not a problem with the shoes at all. I can honestly say, that out of all the people who have had this happen to their child, it hasn't been the shoe but is always that the heel is not seated properly. Parents think it is, or must be but after they take the plunge and cut the window in the back, put the shoes back on like they always do... they then find the heel is indeed rising up. So far, not one parent who has emailed me and said they cut that hole has said the foot was seated properly when they finally saw it. This is why I'm more and more inclined to say just cut that hole, it can't hurt and it always helps, or at least clarifies what the real problem is. There's a reason Markell is making the smaller sized shoes with a hole already cut in the heel ya know. When the heel isn't deep in the shoe, a few things happen that make the sore. Because the wrong part of the heel is pushed up and into the wrong part of the shoe, this is what causes the pressure sore. You're lucky you caught it before the skin broke, this is a good thing. The parts of the shoe do certain things, and especially if there's plastizode in there, it's extra pressure spots. The new shoes do not really need the plastizode, the way they're designed is supposed to mimic what the insert used to do for the old style shoes. If the plastizode is in there, and these are the new style shoes (there will be no seam running down the inside heel on the new style shoes) it should be taken out and tried that way. >Is a pressure sore something that could be caused if the bar is too >long? It's possible yes, but it's a cascade effect rather than a root cause. If the bar is too long it can make the heels pull up because of the angle. But this really only happens when the buckles aren't tight enough (which is very common when parents are first putting these shoes on - I did it too). They seem tight, but because the heel isn't down in the first place they actually aren't. When you shove that heel deep into the bottom of the boot, hold the foot tightly in place and cinch that strap up, more than likely you'll find you gain a couple of holes worth of tightness. Then, a bar that is too long won't really be able to pull the heels up and out putting the wrong part of the foot in the wrong part of the shoe because the boot is so tight in the first place the foot can't move. Do you have the adjustable bar (red) or the fixed gold one? Either way, I suggest taking the shoes off the bar to put them on. It really makes a difference in making sure they are on properly and while it's a PITA to put them back on the red adjustable bar once they're on the feet, it's really going to help you with learning how to put these shoes on. > It seemed like something was off because Aleksander is such a >great kid and really adjusts to everything really well. He really >seemed to move funny, and not just because it was something new. I >can't really describe what it was, but it really seemed more like >something was off, rather than being about the way he was adjusting. > >My husband and I were aware of some of the problems that the >transition could bring and we had been teaching Aleksander to move >his legs together before he even got the bar. We wanted to get him >used to that motion and give him a jump start on adjusting. He had >already been moving his legs together most of the time (except when >he gets really mad!), so that is another reason that I don't think it >was only the adjustment that was making him move funny. > >I'm hoping to hear from someone soon. If not, I've had lots of >experience harassing medical professionals until I get what I want. >My husband has had two open heart surgeries (to repair a leaky mitral >valve) and the last one was while I was pregnant with Aleksander. I >was definitely not willing to wait to get that scheduled knowing how >long the recovery is! Chances are your medical professionals aren't going to know how to solve this problem. None of them really do. He absolutely can loose correction with the shoes being off for a few days. I really can't recommend cutting that hole more. It will allow many things to happen, the most important of which will be to keep his feet braced while that sore heals and you continue into your first 3 mo's without more casts and starting all over again. It will heal nicely without any pressure on it, and he won't hurt anymore because the shoes won't be pushing on that spot (that's why he was upset, not because he couldn't move his legs -promise... BTDT), and you more than likely will find you're not getting them on properly. Additionally, once you do this and then follow the instructions for applying the shoes, do all you can and shove that foot deep into the shoes... but it won't go no matter what you do... you then know his foot needs further correction because a corrected foot will go into these shoes just fine baring other problems such as an atypical foot. I think if you cut that hole, your normally happy sweet babe will be back. That's what happened with us, and it was amazing what a happy baby she was wearing the brace when it didn't hurt her. Hang in there~!! It will get better! Kori > > > Yikes, that sounds like the start of a pressure sore, which I >believe is worse than a blister. Can you find anything in the shoe >that would press in and cause this dent? It could be a shoe-defect, >or a bunched up sock, sock seam.... > > > > I'm not sure but it sounds serious and I'm with the others, after >this many days out of the brace and with problems too, you baby is >probably losing correction. > > s. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 You're right to keep nagging them. How long is his bar? It should measure his shoulder width, you know with the feet at 70*. If the adjustment is way out of wack it can be really uncomfortable but I'm not sure that would lead to a pressure sore. I'm really no help here. Sorry. I had a similuar situation when I started Everett in the bar, it created pressure sores on him and I never did figure out why (he was treated by Dr. Ponseti personally) - but we changed to the sandel shoes and it was smooth sailing ever since - well over a year now. s. Re: More DDB problems I checked inside the shoes and didn't see anything. I have tried different socks (thin ones, thicker ones, ones with grips, etc) and they all seem to end up with the same result. I've left messages with everyone I have a number for and now I wait. This is the part I'm terrible at! I'm one of those people that calls until I get a live person because I hate trusting people to call me back! Is a pressure sore something that could be caused if the bar is too long? It seemed like something was off because Aleksander is such a great kid and really adjusts to everything really well. He really seemed to move funny, and not just because it was something new. I can't really describe what it was, but it really seemed more like something was off, rather than being about the way he was adjusting. My husband and I were aware of some of the problems that the transition could bring and we had been teaching Aleksander to move his legs together before he even got the bar. We wanted to get him used to that motion and give him a jump start on adjusting. He had already been moving his legs together most of the time (except when he gets really mad!), so that is another reason that I don't think it was only the adjustment that was making him move funny. I'm hoping to hear from someone soon. If not, I've had lots of experience harassing medical professionals until I get what I want. My husband has had two open heart surgeries (to repair a leaky mitral valve) and the last one was while I was pregnant with Aleksander. I was definitely not willing to wait to get that scheduled knowing how long the recovery is! > Yikes, that sounds like the start of a pressure sore, which I believe is worse than a blister. Can you find anything in the shoe that would press in and cause this dent? It could be a shoe-defect, or a bunched up sock, sock seam.... > > I'm not sure but it sounds serious and I'm with the others, after this many days out of the brace and with problems too, you baby is probably losing correction. > s. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 I just have to say it is incredible to me to witness the transition in this group over the past year ...over the past several years indeed ....but this past year so much new, good solid information has been concreted in to us regarding the DBB, it's such a blessing. I say this because a little more than a year ago I was having all these same problems with the DBB and the information back then was nothing compared to what is available today! I hope you all hang around helping even when your children graduate the DBB phase. And Jay Markell if you're reading today - I want to express my gratitude to your company as well for attempting to meet the needs of our babies with your new shoe designs. s. Re: Re: More DDB problems At 11:47 AM 3/7/2005, you wrote: >I checked inside the shoes and didn't see anything. I have tried >different socks (thin ones, thicker ones, ones with grips, etc) and >they all seem to end up with the same result. I've left messages >with everyone I have a number for and now I wait. This is the part >I'm terrible at! I'm one of those people that calls until I get a >live person because I hate trusting people to call me back! Most times, it's not a problem with the shoes at all. I can honestly say, that out of all the people who have had this happen to their child, it hasn't been the shoe but is always that the heel is not seated properly. Parents think it is, or must be but after they take the plunge and cut the window in the back, put the shoes back on like they always do... they then find the heel is indeed rising up. So far, not one parent who has emailed me and said they cut that hole has said the foot was seated properly when they finally saw it. This is why I'm more and more inclined to say just cut that hole, it can't hurt and it always helps, or at least clarifies what the real problem is. There's a reason Markell is making the smaller sized shoes with a hole already cut in the heel ya know. When the heel isn't deep in the shoe, a few things happen that make the sore. Because the wrong part of the heel is pushed up and into the wrong part of the shoe, this is what causes the pressure sore. You're lucky you caught it before the skin broke, this is a good thing. The parts of the shoe do certain things, and especially if there's plastizode in there, it's extra pressure spots. The new shoes do not really need the plastizode, the way they're designed is supposed to mimic what the insert used to do for the old style shoes. If the plastizode is in there, and these are the new style shoes (there will be no seam running down the inside heel on the new style shoes) it should be taken out and tried that way. >Is a pressure sore something that could be caused if the bar is too >long? It's possible yes, but it's a cascade effect rather than a root cause. If the bar is too long it can make the heels pull up because of the angle. But this really only happens when the buckles aren't tight enough (which is very common when parents are first putting these shoes on - I did it too). They seem tight, but because the heel isn't down in the first place they actually aren't. When you shove that heel deep into the bottom of the boot, hold the foot tightly in place and cinch that strap up, more than likely you'll find you gain a couple of holes worth of tightness. Then, a bar that is too long won't really be able to pull the heels up and out putting the wrong part of the foot in the wrong part of the shoe because the boot is so tight in the first place the foot can't move. Do you have the adjustable bar (red) or the fixed gold one? Either way, I suggest taking the shoes off the bar to put them on. It really makes a difference in making sure they are on properly and while it's a PITA to put them back on the red adjustable bar once they're on the feet, it's really going to help you with learning how to put these shoes on. > It seemed like something was off because Aleksander is such a >great kid and really adjusts to everything really well. He really >seemed to move funny, and not just because it was something new. I >can't really describe what it was, but it really seemed more like >something was off, rather than being about the way he was adjusting. > >My husband and I were aware of some of the problems that the >transition could bring and we had been teaching Aleksander to move >his legs together before he even got the bar. We wanted to get him >used to that motion and give him a jump start on adjusting. He had >already been moving his legs together most of the time (except when >he gets really mad!), so that is another reason that I don't think it >was only the adjustment that was making him move funny. > >I'm hoping to hear from someone soon. If not, I've had lots of >experience harassing medical professionals until I get what I want. >My husband has had two open heart surgeries (to repair a leaky mitral >valve) and the last one was while I was pregnant with Aleksander. I >was definitely not willing to wait to get that scheduled knowing how >long the recovery is! Chances are your medical professionals aren't going to know how to solve this problem. None of them really do. He absolutely can loose correction with the shoes being off for a few days. I really can't recommend cutting that hole more. It will allow many things to happen, the most important of which will be to keep his feet braced while that sore heals and you continue into your first 3 mo's without more casts and starting all over again. It will heal nicely without any pressure on it, and he won't hurt anymore because the shoes won't be pushing on that spot (that's why he was upset, not because he couldn't move his legs -promise... BTDT), and you more than likely will find you're not getting them on properly. Additionally, once you do this and then follow the instructions for applying the shoes, do all you can and shove that foot deep into the shoes... but it won't go no matter what you do... you then know his foot needs further correction because a corrected foot will go into these shoes just fine baring other problems such as an atypical foot. I think if you cut that hole, your normally happy sweet babe will be back. That's what happened with us, and it was amazing what a happy baby she was wearing the brace when it didn't hurt her. Hang in there~!! It will get better! Kori > > > Yikes, that sounds like the start of a pressure sore, which I >believe is worse than a blister. Can you find anything in the shoe >that would press in and cause this dent? It could be a shoe-defect, >or a bunched up sock, sock seam.... > > > > I'm not sure but it sounds serious and I'm with the others, after >this many days out of the brace and with problems too, you baby is >probably losing correction. > > s. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Thank you so much for all of the helpful hints. After many calls, I got Aleksander in today to have casts put on until Thursday when he can see the doc. I spoke to her about the best course of action, and this was the best solution we had so she can see him at her primary location instead of a sattellite office, and he can have time for his heels to get better. She has very good reasons for wanting to see him at the main campus versus a sattellite location, and they all make perfect sense to me. This was the best compromise I could think of, and I'm VERY glad I called to get him casted today. I couldn't stand the thought of him regressing, and I knew he couldn't have the shoes back on with the sore feet. He's not pleased about the casts, but he'll be fine in an hour or so. I will be meeting with the woman who fits the shoes on Thursday as well and hopefully she can help me get the shoes on better. I will check on cutting the hole as well, and explain the positive reasons for doing so. I really appreciate the 'ammunition' for my next appointment. It helps so much to know more! I also met another couple today with a little girl with bilateral club feet. Hopefully they'll get online too. I gave them the info, so it is up to them at this point. > > > Yikes, that sounds like the start of a pressure sore, which I > >believe is worse than a blister. Can you find anything in the shoe > >that would press in and cause this dent? It could be a shoe- defect, > >or a bunched up sock, sock seam.... > > > > > > I'm not sure but it sounds serious and I'm with the others, after > >this many days out of the brace and with problems too, you baby is > >probably losing correction. > > > s. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 I'll have to ask about the sandles when I'm in. Maybe that will be an option for us. > > Yikes, that sounds like the start of a pressure sore, which I > believe is worse than a blister. Can you find anything in the shoe > that would press in and cause this dent? It could be a shoe- defect, > or a bunched up sock, sock seam.... > > > > I'm not sure but it sounds serious and I'm with the others, after > this many days out of the brace and with problems too, you baby is > probably losing correction. > > s. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2005 Report Share Posted March 7, 2005 Maybe I am misunderstanding here about the person you call the Cast Tech. Is that person Ponseti trained or just the doctor? Like how could a cast tech do what the Ponseti Method requires if he/she is not trained and qualified. Those six months was casted, he *saw* the doctor, then went to a cast tech to be casted. Niether were Ponseti minded people. Those guys were probably great at setting a broken bone, but for setting clubbed feet they were disasterous. Just curious. s. After many calls, I got Aleksander in today to have casts put on until Thursday when he can see the doc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Aleksander sees his doctor after the casts are removed, then the casting department cast his feet. It is always one of two people who cast him, and it is my understanding that they trained in Iowa and know the Ponseti method. > Maybe I am misunderstanding here about the person you call the Cast Tech. Is that person Ponseti trained or just the doctor? Like how could a cast tech do what the Ponseti Method requires if he/she is not trained and qualified. > > Those six months was casted, he *saw* the doctor, then went to a cast tech to be casted. Niether were Ponseti minded people. Those guys were probably great at setting a broken bone, but for setting clubbed feet they were disasterous. > > Just curious. > > s. > > After many calls, I > got Aleksander in today to have casts put on until Thursday when he > can see the doc. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Aleksander sees the doctor (who is mentioned on Dr. Ponseti's site as being trained in his methodology), after the casts are removed. Then, the 'cast tech' puts the next set of casts on. There are only two individuals who do this, and both are trained in Ponseti. They typically have an assistant in the room (Aleksander is very squirmy), but that person is only there to help hold a leg in position so I can be free to distract Aleksander while the casts are put back on. We have been very happy with everything up to this point, and Aleksander's feet look wonderful. I don't have any reservations about his treatment up to this point, but I am concerned about having him return to the Markels shoes. I've been doing a ton of research to find out what my husband and I need to do to get the shoes. I've found the link to the site in the Links directory, and at least know now what we would need to do to get the shoes if they resist at Gillette. I've also called the ATD department who fits the shoes to see if it is possible have those shoes ready for him on Thursday. I'm guessing they can't have them ready that quickly, but it is worth a shot! > Maybe I am misunderstanding here about the person you call the Cast Tech. Is that person Ponseti trained or just the doctor? Like how could a cast tech do what the Ponseti Method requires if he/she is not trained and qualified. > > Those six months was casted, he *saw* the doctor, then went to a cast tech to be casted. Niether were Ponseti minded people. Those guys were probably great at setting a broken bone, but for setting clubbed feet they were disasterous. > > Just curious. > > s. > > After many calls, I > got Aleksander in today to have casts put on until Thursday when he > can see the doc. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Just an FYI about The shoes - they are custom-fitted and it's my understanding that a mold of Aleksanders feet would be needed before they could be made. Daiga > > Maybe I am misunderstanding here about the person you call the Cast > Tech. Is that person Ponseti trained or just the doctor? Like how > could a cast tech do what the Ponseti Method requires if he/she is > not trained and qualified. > > > > Those six months was casted, he *saw* the doctor, then went > to a cast tech to be casted. Niether were Ponseti minded people. > Those guys were probably great at setting a broken bone, but for > setting clubbed feet they were disasterous. > > > > Just curious. > > > > s. > > > > After many calls, I > > got Aleksander in today to have casts put on until Thursday when he > > can see the doc. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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