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URGENT - TO ALL Dr. H PATIENTS

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TO ALL RSS/SGA PARENTS: Salem, on behalf of the MAGIC

Foundation, writes the following:

Dr. Madeleine Harbison has asked that I send out the following

notification.

Dr Harbison will officially leave Weill Cornell Medical College in

the near future. Her group, headed by Dr. I. New, shall stay

in New York City and move up the street about 30 blocks to Mt. Sinai

(located at 5th Ave. and 98th Street). Dr. New will direct a new

division within Pediatrics. Her division will work closely with Dr.

Rappaport's Division of Peds. Endo. but will not be part of

it. They have not yet decided on the name of their new division. Dr.

Harbison will continue in Dr. New's group as an academic-full-time

Asst. Prof. of Pediatrics, with her academic appointment moving from

Cornell to New York University.

They expect to be seeing patients at Mt. Sinai by mid May. In order

to accomplish the move effectively, Dr Harbison will have to cancel

as many patients as she can between now and their start up at Mt.

Sinai.

What does this mean for all of you?

* Don't panic.

* This is a GOOD thing for Dr. H and for all of us.

* Be as patient as possible during the down time and then her up-

start time again.

If you have an appointment scheduled with Dr. Harbison in her

current NYPH system between now and mid May, it is likely that her

office will attempt to reschedule that apt.for some time after mid

May. All Dr. Harbison's patients who have future appointments

scheduled to see her at Cornell will receive a letter from NYPH

containing forms for release of your/your child's medical records.

Keep in mind that record gathering will be much more efficient and

inclusive if done BEFORE she leaves Cornell.

It is VERY important for you to have an appointment scheduled in Dr.

H's current NYPH system for sometime after mid May so that you will

be in the first wave of patients to get their letters containing

release forms. These forms will instruct NYPH-Cornell to transfer

copies of the child's medical records to Mt. Sinai (MSSM). For these

instructions to be valid, they must be signed by a parent or legal

guardian. If your child is to remain in Dr. H's care or if you want

her to be retain control of your child's data for your availability

and for her research, it is important for you to sign and date these

forms, to make a copy for your records and to return them ASAP .

Yadira, Dr. H's beloved and awesome office manager, will be moving

with them to Mt. Sinai (huge sigh of relief). She is in charge of

the scheduling process. Dr. Harbison suggests that all patient

expecting to be seen in NY in the future should make sure they have

an apt in the Cornell schedule even if it is a " dummy " apt. For

example, even though and I were not going to go to New York

because of the convention, I am setting up an appointment for

in early July with Dr. Harbison at her old hospital.

If you have already incurred non-refundable expenses such as non-

refundable airline tickets related to apts scheduled between now and

early August, I recommend that you contact Yadira at or

yam2002@... and discuss this with her. If you have apts

in this time period and have not made non-refundable purchases, I

would recommend that you NOT make inflexible arrangements. Yadira

will be melding the NYPH appointment schedule with the Mt. Sinai

appointment system. Clearly she can not guarantee same day/same

time. This is a very time-consuming and difficult process. Yadira

will be doing her best to get things up and running as soon as

possible. They really ask for your patience.

Dr. Harbison feels that there will be advantages to being at Mt.

Sinai. For example they have the strongest clinical genetics

department in New York, and probably the tri state area. Their

genetics dept. has both clinical and research laboratory facilities

that were not available at Cornell. Hopefully there will be a better

waiting room as well (HA!).

Dr. Harbison will again be at the convention this July, and will see

families as always. You must be registered for the convention

already before we can schedule you a visit time, but this may prove

to be an easier way for you to see her in the meantime.

If you have any questions, please do not hesitate to contact me

() directly at magicrss@..., so that we don't

overwhelm the phone system in Dr. H's office.

Salem

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i lost the number in my move i. need to cancel my appt for april 1st

anyways. i forgot . can u send me the number to so that?

> TO ALL RSS/SGA PARENTS: Salem, on behalf of the MAGIC

> Foundation, writes the following:

>

> Dr. Madeleine Harbison has asked that I send out the following

> notification.

>

> Dr Harbison will officially leave Weill Cornell Medical College in

> the near future. Her group, headed by Dr. I. New, shall stay

> in New York City and move up the street about 30 blocks to Mt.

Sinai

> (located at 5th Ave. and 98th Street). Dr. New will direct a new

> division within Pediatrics. Her division will work closely with

Dr.

> Rappaport's Division of Peds. Endo. but will not be part of

> it. They have not yet decided on the name of their new division.

Dr.

> Harbison will continue in Dr. New's group as an academic-full-time

> Asst. Prof. of Pediatrics, with her academic appointment moving

from

> Cornell to New York University.

>

> They expect to be seeing patients at Mt. Sinai by mid May. In

order

> to accomplish the move effectively, Dr Harbison will have to

cancel

> as many patients as she can between now and their start up at Mt.

> Sinai.

>

> What does this mean for all of you?

>

> * Don't panic.

> * This is a GOOD thing for Dr. H and for all of us.

> * Be as patient as possible during the down time and then her up-

> start time again.

>

> If you have an appointment scheduled with Dr. Harbison in her

> current NYPH system between now and mid May, it is likely that her

> office will attempt to reschedule that apt.for some time after mid

> May. All Dr. Harbison's patients who have future appointments

> scheduled to see her at Cornell will receive a letter from NYPH

> containing forms for release of your/your child's medical records.

> Keep in mind that record gathering will be much more efficient and

> inclusive if done BEFORE she leaves Cornell.

>

> It is VERY important for you to have an appointment scheduled in

Dr.

> H's current NYPH system for sometime after mid May so that you

will

> be in the first wave of patients to get their letters containing

> release forms. These forms will instruct NYPH-Cornell to transfer

> copies of the child's medical records to Mt. Sinai (MSSM). For

these

> instructions to be valid, they must be signed by a parent or legal

> guardian. If your child is to remain in Dr. H's care or if you

want

> her to be retain control of your child's data for your

availability

> and for her research, it is important for you to sign and date

these

> forms, to make a copy for your records and to return them ASAP .

>

> Yadira, Dr. H's beloved and awesome office manager, will be moving

> with them to Mt. Sinai (huge sigh of relief). She is in charge of

> the scheduling process. Dr. Harbison suggests that all patient

> expecting to be seen in NY in the future should make sure they

have

> an apt in the Cornell schedule even if it is a " dummy " apt. For

> example, even though and I were not going to go to New

York

> because of the convention, I am setting up an appointment for

> in early July with Dr. Harbison at her old hospital.

>

> If you have already incurred non-refundable expenses such as non-

> refundable airline tickets related to apts scheduled between now

and

> early August, I recommend that you contact Yadira at

or

> yam2002@m... and discuss this with her. If you have apts

> in this time period and have not made non-refundable purchases, I

> would recommend that you NOT make inflexible arrangements. Yadira

> will be melding the NYPH appointment schedule with the Mt. Sinai

> appointment system. Clearly she can not guarantee same day/same

> time. This is a very time-consuming and difficult process. Yadira

> will be doing her best to get things up and running as soon as

> possible. They really ask for your patience.

>

> Dr. Harbison feels that there will be advantages to being at Mt.

> Sinai. For example they have the strongest clinical genetics

> department in New York, and probably the tri state area. Their

> genetics dept. has both clinical and research laboratory

facilities

> that were not available at Cornell. Hopefully there will be a

better

> waiting room as well (HA!).

>

> Dr. Harbison will again be at the convention this July, and will

see

> families as always. You must be registered for the convention

> already before we can schedule you a visit time, but this may

prove

> to be an easier way for you to see her in the meantime.

>

> If you have any questions, please do not hesitate to contact me

> () directly at magicrss@m..., so that we don't

> overwhelm the phone system in Dr. H's office.

>

> Salem

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