Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 > HI, Adam I remember your posts from a while back, at a time when you were having severe difficulties, and when you did not post for a long while I was concerned. It is so good to hear from you, and to see that you have made some progress in finding answers for your severe eating problems. While they are not always happy answers, at least you have more control over your difficult digestive issues. You have my admiration for finding solutions for yourself, and I hope you continue to find more. I do not have the same digestive issues, but I am finding the best solutions for my problems have come from the same approach - observing my condition, trying different things, and trying to make connections to what has made things worse or better. And of course, as I have said many times here before, the many people posting here sharing their experiences has helped me tremendously, and I continue to appreciate it. Again, Adam, it is good to hear from you. I will remember your suggestions for my only mildly sensitive GI track, and thank you for sharing. Regards Sunny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 --- AdamM321 AdamM321@...> wrote: If you > just can't try that now, you can buy lactaid milk, > which is what I use now. That is fine for me too. > It would be worth a try. > > I'm sorry I don't know the signigicance of increased > eosinophils. But if he has had a diagnosis of a > problem that causes bleeding than I would think that > would be reason enough for his symptoms, wouldn't > you? Is there a way to treat the bleeding? Adam, hasn't been eating well for about three months. He's very hungry so when he does eat he tends to wolf things down. That makes him have more nausea and makes things worse. Our daughter is lactose intollerant and we buy lactaid whole milk for her. I don't know, maybe a trial of lactaid skim milk would be good for him. I've been having problems digesting fats. They can go through me unchanged (sorry to be so gross). My daughter also has dysmotility issues periodically. has never been tested for them. The GI says that the GERD he has is essentially esophageal dysmotility. I have also been feeling food not go down. has a bleeding disorder that can causes things that bleed to bleed more than they would in everyone else but it should not cause spontaneous bleeds. I don't think that is the whole answer, but... Eosinophils are a white blood cell which could indicate a disorder that causes eosinophilia, a kind of allergic-type reaction that can cause problems eating. Some people need an elemental diet (yuck!!!). We can fix GI bleeds by going in for an infusion of DDAVP. It causes fluid balance issues and EXTREME pain. He will scream in pain for about a day after the infusion. The bleeding is disconcerting but not as bad as the pain. He's been sick since he was ten. He actually was in and out of the hospital from infancy to age eight. He was totally well from eight to ten. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Music Unlimited Access over 1 million songs. Try it free. http://music.yahoo.com/unlimited/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 > I've been having problems digesting fats. They can go > through me unchanged (sorry to be so gross). Have you had your gall bladder checked? (sorry here) Yellow, floating stool is a sign of gall bladder trouble. I opted not to have mine out, even though it was just over the border of being dysfunctional. I went on a fat-free diet for about 2 months before I could slowly start adding fat again. Even a slice of bread with 1 g of fat was too much for me, made me nauseous and have severe stomach cramps about 10 minutes after eating it... Take care, RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 It can also be a sign of fat malabsorption and that you are not producing pancreatic enzymes and all they need to do is a fecal fat test..easy painless and can be treated with supplemental enzymes. All three of my kids have fat malabsorption S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 --- ohgminion rakshasis@...> wrote: > > Have you had your gall bladder checked? I don't have a gall bladder. The fat looks like the fat you'd find in a roast that's been in the fridge overnight. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! Mail - PC Magazine Editors' Choice 2005 http://mail.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 That is one reason I did not have mine out although recommended, that stool problems might result (which I was already having, but now I think were due to dysmotility). Are you on lipase or other digestive enzymes, they have helped some who have had their gall bladder removed... If the stool floats and is yellow or lighter, it is mostly fat based on what my GI doctor says. Normal stool is made up of a lot of bacteria that is in the gut, but if the fat is not digested, the bacteria can't eat it (we are essentially predigesting food for our friendly bacteria in the colon, to my understanding). Take care, RH > > > > > Have you had your gall bladder checked? > > I don't have a gall bladder. The fat looks like the > fat you'd find in a roast that's been in the fridge overnight. > > > > Mom to the two best kids in the world! > http://www.caringbridge.org/visit/thomasandkatie > > > > > __________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 --- ohgminion rakshasis@...> wrote: > That is one reason I did not have mine out although > recommended, that > stool problems might result (which I was already > having, but now I > think were due to dysmotility). Are you on lipase > or other digestive > enzymes, I'm not on lipase. I only have periodic digestive problems although I have diarrhea more than not. The fat problems really are OK as long as I eat a low fat diet. I can have occasional higher fat meals but will often pay for it later. I'd rather do what I'm doing than take more meds. I don't believe that my digestive problems are related to the chole. I didn't have any digestive problems for two or three years after having the chole. Mom to the two best kids in the world! http://www.caringbridge.org/visit/thomasandkatie __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Sorry, I have been reading this thread but don't know specifically what the statement below is in response to (but I assume it is general reference to the cause of nausea). Also, my email digest deletes attachments (which some email programs do to replies), which might have been relevant. Is this fat malabsorption supposedly due to mito? Do you have any more info on particular mito disorder types this applies to? I have Multiple Symmetrical Lipomatosis, which is almost certainly connected to my blood-diagnosed MERRF. I'm assuming until I hear more exactly, that the connection is all about FAO dysfunction. Relatedly, I have high triglycerides but oddly low LDL, and hence I'm thinking that my muscles cells don't properly process fatty acids, even while nontheless fatty acid is mobilized (from adipose tissue), and so the lipids sort of back up in my blood. My thinking is that either these lipids directly cause the lipomas (somehow, only in a few individuals), or the mitochondria in cells gets destroyed by the dysfunctional backup and the resulting dead-cell debris forms the lipomas. So far, I have not found a doctor knowledgeable enough (there are only about 200 known cases of MSL in the world) to really consider this theory of mine. Even so-called experts sometimes have opinions I know are obsolete. A few researchers that really know the symptoms of this disease are mostly in Italy and France, and are surprisingly ill-informed (IMHO) in some areas (for instance, one insists that most MSL is caused by alcoholism). I'm especially interested in this remark about pancreatic enzymes because several people with MSL (from another Yahoo group) have had considerable improvement taking Pancreatin, an OTC containing pancreatic enzymes. Just BTW, I have had mixed jury-still-out results, taking this stuff for several months. Steve D. > Date: Sun, 16 Oct 2005 18:53:22 EDT > From: MitomomX3@... > Subject: Re: ..nausea > > It can also be a sign of fat malabsorption and that you are not producing > pancreatic enzymes and all they need to do is a fecal fat test..easy > painless > and can be treated with supplemental enzymes. > All three of my kids have fat malabsorption > S > > > Quote Link to comment Share on other sites More sharing options...
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