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In a message dated 04/17/2001 2:24:38 PM Eastern Daylight Time,

harder@... writes:

Suitable for vegetarians does not mean it is gfcf:

If your child is allergic to corn they should not take this since Sorbitol is

a corn derivitive.

Also, I have a problem with the alcohol content, this is not gfcf. When I

talked to my child's developmental ped. and our HFS they told me if you are

on the gfcf diet do not use this product.

The old saying goes if there are five doctors in the room and you asked a

question, you will get five different answers.

I would really like to hear other parents comments on this product.

Thanks.

> (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg

> per 1 cc. deionized water, propylene glycol, sorbitol, natural orange

> flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and

> propylparaben.)

>

>

>

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Hi there! Our developmental ped. recommended melatonin for to help her

(and us!) sleep. It works well...in a much lower dose than she recommended.

Main question: have your kids seemed hooked on it? Now we are beginning to

think she can't get to sleep without it. we tried to go without it Last night

and she hardly slept. Is it safe to use every night? How good can that be!?

We use if before a big day...therapy, etc.

it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast,

dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or

artificial color, flavor, or fragrance.

Ok thanks for the help!

H, mom to 3 yrs, PDD; and 23 months

(Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per

1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor,

vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.)

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Personally the " propylene glycol " would steer me away from it -- they

use that stuff to de-ice airplanes!

Re: Melatonin question

> In a message dated 04/17/2001 2:24:38 PM Eastern Daylight Time,

> harder@... writes:

>

> Suitable for vegetarians does not mean it is gfcf:

> If your child is allergic to corn they should not take this since Sorbitol

is

> a corn derivitive.

> Also, I have a problem with the alcohol content, this is not gfcf. When I

> talked to my child's developmental ped. and our HFS they told me if you

are

> on the gfcf diet do not use this product.

> The old saying goes if there are five doctors in the room and you asked a

> question, you will get five different answers.

> I would really like to hear other parents comments on this product.

> Thanks.

> > (Here is the ingredient list for those with inquiring minds: Melatonin

1 mg

> > per 1 cc. deionized water, propylene glycol, sorbitol, natural orange

> > flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and

> > propylparaben.)

> >

> >

> >

>

>

>

>

>

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We use melatonin, at forst we used it every night then his sleep cycles

started to regulate themselves. I have only ound one article expressing

concern with melatonin and all it said was it has not been studied to

determine the effects on puberty. We still give it to him on occasion when

he needs it. I think he benefited from using it greatly. Also you can get a

gf/cf kind from kirkmans and that is the brand I use. We have no adverse

effects from it. F

Melatonin question

> Hi there! Our developmental ped. recommended melatonin for to help

her (and us!) sleep. It works well...in a much lower dose than she

recommended.

>

> Main question: have your kids seemed hooked on it? Now we are beginning

to think she can't get to sleep without it. we tried to go without it Last

night and she hardly slept. Is it safe to use every night? How good can

that be!? We use if before a big day...therapy, etc.

>

> it is gfcf : it says right on it " Suitable for vegetarians. Contains no

yeast, dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose,

fructose, or artificial color, flavor, or fragrance.

>

> Ok thanks for the help!

>

> H, mom to 3 yrs, PDD; and 23 months

>

>

> (Here is the ingredient list for those with inquiring minds: Melatonin 1

mg per 1 cc. deionized water, propylene glycol, sorbitol, natural orange

flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and

propylparaben.)

>

>

>

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I used Meletonin with my son who is 4 and he did well with it. I was also

worried about the possibility of him becoming dependant on it, but it turned out

not to be the case. After a while, I started giving it to him every other night

and then only periodicaly. And now, I havent had to give it to him in a few

months. I dont know how hard it is to get your child to sleep, but it was just

awful here. My upmost sympathies are with you. It is a very difficult thing to

deal with. Good luck!!!

(Matt's

Mom)

Melatonin question

Hi there! Our developmental ped. recommended melatonin for to help her

(and us!) sleep. It works well...in a much lower dose than she recommended.

Main question: have your kids seemed hooked on it? Now we are beginning to

think she can't get to sleep without it. we tried to go without it Last night

and she hardly slept. Is it safe to use every night? How good can that be!?

We use if before a big day...therapy, etc.

it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast,

dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or

artificial color, flavor, or fragrance.

Ok thanks for the help!

H, mom to 3 yrs, PDD; and 23 months

(Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per

1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor,

vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.)

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I used Meletonin with my son who is 4 and he did well with it. I was also

worried about the possibility of him becoming dependant on it, but it turned out

not to be the case. After a while, I started giving it to him every other night

and then only periodicaly. And now, I havent had to give it to him in a few

months. I dont know how hard it is to get your child to sleep, but it was just

awful here. My upmost sympathies are with you. It is a very difficult thing to

deal with. Good luck!!!

(Matt's

Mom)

Melatonin question

Hi there! Our developmental ped. recommended melatonin for to help her

(and us!) sleep. It works well...in a much lower dose than she recommended.

Main question: have your kids seemed hooked on it? Now we are beginning to

think she can't get to sleep without it. we tried to go without it Last night

and she hardly slept. Is it safe to use every night? How good can that be!?

We use if before a big day...therapy, etc.

it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast,

dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or

artificial color, flavor, or fragrance.

Ok thanks for the help!

H, mom to 3 yrs, PDD; and 23 months

(Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per

1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor,

vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.)

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In a message dated 4/19/01 10:04:33 AM Eastern Standard Time,

yesmar4@... writes:

> Main question: have your kids seemed hooked on it? Now we are beginning to

> think she can't get to sleep without it. we tried to go without it Last

> night and she hardly slept. Is it safe to use every night? How good can

> that be!? We use if before a big day...therapy, etc.

>

My neurologist said that anytime you use something to sleep, eventually, the

effects begin to wear off. He did NOT say that you could ever get addicted

to Melatonin. I don't think you can. Mainly, we have used it to regulate

sleep. For example, we might have a rough night and then my son--and we--

will sleep late the next morning. Then I will give him some melatonin to

sleep that night. I have used Clonodine the same way. It seems to work as

long as their is an obvious reason for him not to sleep--like sleeping late

or napping the day before or being too excited, etc--but it does not work for

those freak nights when he should be really exhausted and just isn't.

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I don't know if it's an addiction, but my five year old seemed to be

dependent on it. He was using it nightly for several months- and couldn't

get to sleep without it. So I started weaning him from it. Giving it to him

later (after being in bed about an hour), and rocking him to sleep rather

than giving it to him. It took about a week (wasn't real rough). Now I give

it to him only on occasion.

Lolita

>Main question: have your kids seemed hooked on it? Now we are beginning to

> > think she can't get to sleep without it. we tried to go without it Last

> > night and she hardly slept. Is it safe to use every night? How good can

> > that be!? We use if before a big day...therapy, etc.

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In a message dated 4/19/01 3:04:59 PM Eastern Daylight Time, lita@...

writes:

> I don't know if it's an addiction, but my five year old seemed to be

> dependent on it. He was using it nightly for several months- and couldn't

> get to sleep without it. So I started weaning him from it. Giving it to him

> later (after being in bed about an hour), and rocking him to sleep rather

> than giving it to him. It took about a week (wasn't real rough). Now I give

> it to him only on occasion.

>

> Lolita

>

>

>

My question is...it seems that everyone seems to be giving this to get them

to sleep. My son has no trouble whatsoever falling asleep. He would just

wake up in the middle of the night between 1 and 3am and just talk for over

an hour or more and then finally go back to sleep. Or at my moms he woke up

at 3am and never went back to sleep. I just started him on melatonin. Will

it help for the middle of the night wake ups or is it only to get to sleep?

thanks

Debbie

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Debbie,

For us melatnoin has just helped the falling asleep. She still is up from

1 - 3, singing and talking and now that her tummy muscles are stronger

JUMPING ON THE BED!!!. Must admit when she sings " Gillian jumping on the

bed " to the tune of 3 little monkeys(her therapist taught her that one) it

makes me grin. We stopped the melatonin for a few weeks cause when on it

she would wake up screaming, like a night terror. Our doc suggested

Taurine, and amino acid. Don't know if it helps all kids with staying

asleep or if our profile meets the criteria. He says it should help.

Tonight is night #1...we'll see. I have seen a bit of improvement since we

started cranial sacral therapy last week. When she is sleeping, she is more

sound. And she is sleeping on her back more (usually sleeps folded in

half!!)

Re: Re:Melatonin question

>In a message dated 4/19/01 3:04:59 PM Eastern Daylight Time,

lita@...

>writes:

>

>

>> I don't know if it's an addiction, but my five year old seemed to be

>> dependent on it. He was using it nightly for several months- and couldn't

>> get to sleep without it. So I started weaning him from it. Giving it to

him

>> later (after being in bed about an hour), and rocking him to sleep rather

>> than giving it to him. It took about a week (wasn't real rough). Now I

give

>> it to him only on occasion.

>>

>> Lolita

>>

>>

>>

>

>My question is...it seems that everyone seems to be giving this to get them

>to sleep. My son has no trouble whatsoever falling asleep. He would just

>wake up in the middle of the night between 1 and 3am and just talk for over

>an hour or more and then finally go back to sleep. Or at my moms he woke

up

>at 3am and never went back to sleep. I just started him on melatonin.

Will

>it help for the middle of the night wake ups or is it only to get to sleep?

>thanks

>Debbie

>

>

>

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, did you ever try adding magnesium to the melatonin? I found the

melatonin would put Evan to sleep but he would be awake in about 4 hours. The

magnesium helped keep him asleep. He does not need it every night but if he is

still awake after 9 pm on a school night, I will give it to him.

I use Kirkman's brand now. They have it in combination. I used to use the

local store brand of melatonin and another bottle of magnesium. Kirkman's in a

small capsule that I can open and mix with a little juice. No crushing tablets.

Betty

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I have been giving Ebony Melatonin and extra Magnesium, but I am going to

stop those two starting tonight. She is not sleeping at all. Like your

child, she falls asleep allright, but then she is up from 2:30 or 3:00 until

5:30 or 6:00. Then she has to get up for school at the latest by 7:30.

Plus I have a two week old infant getting up periodically. I think we are

seeing a reaction to yeast die-off, but I still think that the melatonin and

magnesium are not helping in the way that they should to be effective. It

is my understanding that the melatonin is meant to get the kids to sleep and

the magnesium is supposed to keep them asleep. We are giving a lot of

magnesium and not seeing these positive effects. Each kid is different,

though. Good Luck! Tamara

>From: Ethrybr@...

>Reply-To: GFCFKids

>To: GFCFKids

>Subject: Re: Re:Melatonin question

>Date: Thu, 19 Apr 2001 21:09:11 EDT

>

>In a message dated 4/19/01 3:04:59 PM Eastern Daylight Time,

>lita@...

>writes:

>

>

> > I don't know if it's an addiction, but my five year old seemed to be

> > dependent on it. He was using it nightly for several months- and

>couldn't

> > get to sleep without it. So I started weaning him from it. Giving it to

>him

> > later (after being in bed about an hour), and rocking him to sleep

>rather

> > than giving it to him. It took about a week (wasn't real rough). Now I

>give

> > it to him only on occasion.

> >

> > Lolita

> >

> >

> >

>

>My question is...it seems that everyone seems to be giving this to get them

>to sleep. My son has no trouble whatsoever falling asleep. He would just

>wake up in the middle of the night between 1 and 3am and just talk for over

>an hour or more and then finally go back to sleep. Or at my moms he woke

>up

>at 3am and never went back to sleep. I just started him on melatonin.

>Will

>it help for the middle of the night wake ups or is it only to get to sleep?

>thanks

>Debbie

>

>

>

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In a message dated 4/20/01 3:28:50 PM Eastern Daylight Time,

tamara_b73@... writes:

> . It

> is my understanding that the melatonin is meant to get the kids to sleep

> and

> the magnesium is supposed to keep them asleep. We are giving a lot of

> magnesium and not seeing these positive effects. Each kid is different,

> though. Good Luck! Tamara

>

>

Thanks for the info. I am going to see a DAN registered dietitian this Mon.

and I can't wait so I can get started on some supplimentation. I am just

entering this world and it seems most of you know alot more then I do! I

didn't know anything about the magnesium. Last night was tough. He went to

sleep fine as usual but was up in the middle of the night again. Since he

just talks alot I turn the monitor down low and go back to sleep.(Lord help

me the day I take the child proof knob off his door!) He was yawning by

noon and now his preschool handicapped class is at 12:45 so no more naps for

him. The poor little guy fell asleep at the dinner table after eating half

his meal at 5:15! I carried him up to bed and will have to see how long he

sleeps tonight.

He did this at my parent's house for Easter. He didn't sleep at night and

then LITERALLY fell asleep while leaning over the couch with one of his legs

up sort of like the way a male dog goes pee, it was resting sideways on this

marble stone, the other one standing on the floor and then his belly over the

handrest with head on the seat of the couch!

I just know if I can help him sleep more he will be better able to cope with

everyday requests made of him.

Debbie

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Betty,

Yep, we use Kirkman's mel plus mag...not too successfully here.

Re: Re:Melatonin question

>, did you ever try adding magnesium to the melatonin? I found the

melatonin would put Evan to sleep but he would be awake in about 4 hours.

The magnesium helped keep him asleep. He does not need it every night but

if he is still awake after 9 pm on a school night, I will give it to him.

>

>I use Kirkman's brand now. They have it in combination. I used to use the

local store brand of melatonin and another bottle of magnesium. Kirkman's

in a small capsule that I can open and mix with a little juice. No crushing

tablets.

>

>Betty

>

>

>

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Have you tried zinc at night. It also is suppose to help with sleep although

mine hate the taste of it. We were successful with melatonin before we tried

Kirkmans so we already knew that it would work for us. We used to be able to

get a sublingual brand of melatonin. Now that was an easy one to use and no one

put up a squeak about it but Puritan Pride quit carrying it.

Betty

Re: Re:Melatonin question

Betty,

Yep, we use Kirkman's mel plus mag...not too successfully here.

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Wow, thanks everyone for your responses to my question! We have found much the

same as everyone else...ususally it makes her go to sleep but then seh will

oftne wake up singing and talking (delayed echo) in the middle of the night. So

now I'm going to try magnesium after all of your posts! I guess I won't worry

too much about addiction for now and will try to get her into the habit of going

to sleep at night. Then we can wean her off of it.

Thanks again, H, mom to 3 yrs, PDD; and 23 months

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Forgive me if this was asked, but I've been away and I'm having a heck of

time catching up on e-mail. Does Ebony take any other supplements or

vitamins? You've probably covered this, but I thought I would ask. I

discoverd early on that I couldn't give any subs or vitamins after 4Pm or

was up bouncing between 2 and 4.

a

> I have been giving Ebony Melatonin and extra Magnesium, but I am going to

> stop those two starting tonight. She is not sleeping at all. Like your

> child, she falls asleep allright, but then she is up from 2:30 or 3:00

until

> 5:30 or 6:00. Then she has to get up for school at the latest by 7:30.

> Plus I have a two week old infant getting up periodically. I think we are

> seeing a reaction to yeast die-off, but I still think that the melatonin

and

> magnesium are not helping in the way that they should to be effective. It

> is my understanding that the melatonin is meant to get the kids to sleep

and

> the magnesium is supposed to keep them asleep. We are giving a lot of

> magnesium and not seeing these positive effects. Each kid is different,

> though. Good Luck! Tamara

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In a message dated 4/21/01 7:17:52 PM Eastern Daylight Time,

lisacna@... writes:

> . Any one out there who is

> sleep deprived I feel for you and truthfully for us rooming in worked better

> than any medication out there. I know alot of people dont agree with a child

> rooming in but these days I just pass along what ever works. F-----

>

I don't have a problem with it but for me it is the worst when I have to

sleep in the same room as him. When visiting my parent's house we stay in

one room together. Right now he wakes at night but just talks/sings whatever

but can't get out and I can choose to lower the monitor and go back to sleep.

When we are in one room he wakes me up, climbs ALL over me and generally

drives me nuts!

Debbie

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Yes! I'll tell you if I didn't have my youngest beside I would get no

sleep. And my five year old comes creeping in a couple of times a week. I

have had each of my infants in the room with me, and at some point in the

night, in bed with me. I would be more stir crazy than I am if I had tried

keeping them off in another room. And btw, I did try doing it the correct

way, letting them cry and all. It didn't work for me, I made me a nervous

wreck.

Lolita

>This post is probably going to get me in alot of trouble, but for sleep

>purposes we give melatonin when needed but what really works better than

>anything else is he sleeps in the room with me. Any one out there who is

>sleep deprived I feel for you and truthfully for us rooming in worked better

>than any medication out there. I know alot of people dont agree with a child

>rooming in but these days I just pass along what ever works

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That part is hard I will agree, My little one when he wakes comes over and

rubs my ears till he falls back asleep, which only takes 5 minutes if he is

in the same room, if we seperate he is up for good when he wakes up. Since I

work morning shift getting up at 2 am and staying up was way too hard for

me. This sleep issue really is a bugger isnt it. I think its one of the

hardest parts of ASD to deal with. F

Re: Re:Melatonin question

> In a message dated 4/21/01 7:17:52 PM Eastern Daylight Time,

> lisacna@... writes:

>

>

> > . Any one out there who is

> > sleep deprived I feel for you and truthfully for us rooming in worked

better

> > than any medication out there. I know alot of people dont agree with a

child

> > rooming in but these days I just pass along what ever works. F-----

> >

>

> I don't have a problem with it but for me it is the worst when I have to

> sleep in the same room as him. When visiting my parent's house we stay in

> one room together. Right now he wakes at night but just talks/sings

whatever

> but can't get out and I can choose to lower the monitor and go back to

sleep.

> When we are in one room he wakes me up, climbs ALL over me and generally

> drives me nuts!

> Debbie

>

>

>

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Can/should you use melatonin with chlonidine, or should you stick to one or

the other? Also, what would be the dosage for a 3 1/2 year old 56lb child (I

know, he's HUGE!)

Thanks!

Kim

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