Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 In a message dated 04/17/2001 2:24:38 PM Eastern Daylight Time, harder@... writes: Suitable for vegetarians does not mean it is gfcf: If your child is allergic to corn they should not take this since Sorbitol is a corn derivitive. Also, I have a problem with the alcohol content, this is not gfcf. When I talked to my child's developmental ped. and our HFS they told me if you are on the gfcf diet do not use this product. The old saying goes if there are five doctors in the room and you asked a question, you will get five different answers. I would really like to hear other parents comments on this product. Thanks. > (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg > per 1 cc. deionized water, propylene glycol, sorbitol, natural orange > flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and > propylparaben.) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Hi there! Our developmental ped. recommended melatonin for to help her (and us!) sleep. It works well...in a much lower dose than she recommended. Main question: have your kids seemed hooked on it? Now we are beginning to think she can't get to sleep without it. we tried to go without it Last night and she hardly slept. Is it safe to use every night? How good can that be!? We use if before a big day...therapy, etc. it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast, dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or artificial color, flavor, or fragrance. Ok thanks for the help! H, mom to 3 yrs, PDD; and 23 months (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per 1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Personally the " propylene glycol " would steer me away from it -- they use that stuff to de-ice airplanes! Re: Melatonin question > In a message dated 04/17/2001 2:24:38 PM Eastern Daylight Time, > harder@... writes: > > Suitable for vegetarians does not mean it is gfcf: > If your child is allergic to corn they should not take this since Sorbitol is > a corn derivitive. > Also, I have a problem with the alcohol content, this is not gfcf. When I > talked to my child's developmental ped. and our HFS they told me if you are > on the gfcf diet do not use this product. > The old saying goes if there are five doctors in the room and you asked a > question, you will get five different answers. > I would really like to hear other parents comments on this product. > Thanks. > > (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg > > per 1 cc. deionized water, propylene glycol, sorbitol, natural orange > > flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and > > propylparaben.) > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 We use melatonin, at forst we used it every night then his sleep cycles started to regulate themselves. I have only ound one article expressing concern with melatonin and all it said was it has not been studied to determine the effects on puberty. We still give it to him on occasion when he needs it. I think he benefited from using it greatly. Also you can get a gf/cf kind from kirkmans and that is the brand I use. We have no adverse effects from it. F Melatonin question > Hi there! Our developmental ped. recommended melatonin for to help her (and us!) sleep. It works well...in a much lower dose than she recommended. > > Main question: have your kids seemed hooked on it? Now we are beginning to think she can't get to sleep without it. we tried to go without it Last night and she hardly slept. Is it safe to use every night? How good can that be!? We use if before a big day...therapy, etc. > > it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast, dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or artificial color, flavor, or fragrance. > > Ok thanks for the help! > > H, mom to 3 yrs, PDD; and 23 months > > > (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per 1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 I used Meletonin with my son who is 4 and he did well with it. I was also worried about the possibility of him becoming dependant on it, but it turned out not to be the case. After a while, I started giving it to him every other night and then only periodicaly. And now, I havent had to give it to him in a few months. I dont know how hard it is to get your child to sleep, but it was just awful here. My upmost sympathies are with you. It is a very difficult thing to deal with. Good luck!!! (Matt's Mom) Melatonin question Hi there! Our developmental ped. recommended melatonin for to help her (and us!) sleep. It works well...in a much lower dose than she recommended. Main question: have your kids seemed hooked on it? Now we are beginning to think she can't get to sleep without it. we tried to go without it Last night and she hardly slept. Is it safe to use every night? How good can that be!? We use if before a big day...therapy, etc. it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast, dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or artificial color, flavor, or fragrance. Ok thanks for the help! H, mom to 3 yrs, PDD; and 23 months (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per 1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 I used Meletonin with my son who is 4 and he did well with it. I was also worried about the possibility of him becoming dependant on it, but it turned out not to be the case. After a while, I started giving it to him every other night and then only periodicaly. And now, I havent had to give it to him in a few months. I dont know how hard it is to get your child to sleep, but it was just awful here. My upmost sympathies are with you. It is a very difficult thing to deal with. Good luck!!! (Matt's Mom) Melatonin question Hi there! Our developmental ped. recommended melatonin for to help her (and us!) sleep. It works well...in a much lower dose than she recommended. Main question: have your kids seemed hooked on it? Now we are beginning to think she can't get to sleep without it. we tried to go without it Last night and she hardly slept. Is it safe to use every night? How good can that be!? We use if before a big day...therapy, etc. it is gfcf : it says right on it " Suitable for vegetarians. Contains no yeast, dairy, egg, gluten, soy or wheat. Contains no sugar, sucrose, fructose, or artificial color, flavor, or fragrance. Ok thanks for the help! H, mom to 3 yrs, PDD; and 23 months (Here is the ingredient list for those with inquiring minds: Melatonin 1 mg per 1 cc. deionized water, propylene glycol, sorbitol, natural orange flavor, vegetable glycerin, citric acid, alcohol (6%), methylparaben and propylparaben.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/19/01 10:04:33 AM Eastern Standard Time, yesmar4@... writes: > Main question: have your kids seemed hooked on it? Now we are beginning to > think she can't get to sleep without it. we tried to go without it Last > night and she hardly slept. Is it safe to use every night? How good can > that be!? We use if before a big day...therapy, etc. > My neurologist said that anytime you use something to sleep, eventually, the effects begin to wear off. He did NOT say that you could ever get addicted to Melatonin. I don't think you can. Mainly, we have used it to regulate sleep. For example, we might have a rough night and then my son--and we-- will sleep late the next morning. Then I will give him some melatonin to sleep that night. I have used Clonodine the same way. It seems to work as long as their is an obvious reason for him not to sleep--like sleeping late or napping the day before or being too excited, etc--but it does not work for those freak nights when he should be really exhausted and just isn't. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 I don't know if it's an addiction, but my five year old seemed to be dependent on it. He was using it nightly for several months- and couldn't get to sleep without it. So I started weaning him from it. Giving it to him later (after being in bed about an hour), and rocking him to sleep rather than giving it to him. It took about a week (wasn't real rough). Now I give it to him only on occasion. Lolita >Main question: have your kids seemed hooked on it? Now we are beginning to > > think she can't get to sleep without it. we tried to go without it Last > > night and she hardly slept. Is it safe to use every night? How good can > > that be!? We use if before a big day...therapy, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 In a message dated 4/19/01 3:04:59 PM Eastern Daylight Time, lita@... writes: > I don't know if it's an addiction, but my five year old seemed to be > dependent on it. He was using it nightly for several months- and couldn't > get to sleep without it. So I started weaning him from it. Giving it to him > later (after being in bed about an hour), and rocking him to sleep rather > than giving it to him. It took about a week (wasn't real rough). Now I give > it to him only on occasion. > > Lolita > > > My question is...it seems that everyone seems to be giving this to get them to sleep. My son has no trouble whatsoever falling asleep. He would just wake up in the middle of the night between 1 and 3am and just talk for over an hour or more and then finally go back to sleep. Or at my moms he woke up at 3am and never went back to sleep. I just started him on melatonin. Will it help for the middle of the night wake ups or is it only to get to sleep? thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 Debbie, For us melatnoin has just helped the falling asleep. She still is up from 1 - 3, singing and talking and now that her tummy muscles are stronger JUMPING ON THE BED!!!. Must admit when she sings " Gillian jumping on the bed " to the tune of 3 little monkeys(her therapist taught her that one) it makes me grin. We stopped the melatonin for a few weeks cause when on it she would wake up screaming, like a night terror. Our doc suggested Taurine, and amino acid. Don't know if it helps all kids with staying asleep or if our profile meets the criteria. He says it should help. Tonight is night #1...we'll see. I have seen a bit of improvement since we started cranial sacral therapy last week. When she is sleeping, she is more sound. And she is sleeping on her back more (usually sleeps folded in half!!) Re: Re:Melatonin question >In a message dated 4/19/01 3:04:59 PM Eastern Daylight Time, lita@... >writes: > > >> I don't know if it's an addiction, but my five year old seemed to be >> dependent on it. He was using it nightly for several months- and couldn't >> get to sleep without it. So I started weaning him from it. Giving it to him >> later (after being in bed about an hour), and rocking him to sleep rather >> than giving it to him. It took about a week (wasn't real rough). Now I give >> it to him only on occasion. >> >> Lolita >> >> >> > >My question is...it seems that everyone seems to be giving this to get them >to sleep. My son has no trouble whatsoever falling asleep. He would just >wake up in the middle of the night between 1 and 3am and just talk for over >an hour or more and then finally go back to sleep. Or at my moms he woke up >at 3am and never went back to sleep. I just started him on melatonin. Will >it help for the middle of the night wake ups or is it only to get to sleep? >thanks >Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2001 Report Share Posted April 19, 2001 , did you ever try adding magnesium to the melatonin? I found the melatonin would put Evan to sleep but he would be awake in about 4 hours. The magnesium helped keep him asleep. He does not need it every night but if he is still awake after 9 pm on a school night, I will give it to him. I use Kirkman's brand now. They have it in combination. I used to use the local store brand of melatonin and another bottle of magnesium. Kirkman's in a small capsule that I can open and mix with a little juice. No crushing tablets. Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 I have been giving Ebony Melatonin and extra Magnesium, but I am going to stop those two starting tonight. She is not sleeping at all. Like your child, she falls asleep allright, but then she is up from 2:30 or 3:00 until 5:30 or 6:00. Then she has to get up for school at the latest by 7:30. Plus I have a two week old infant getting up periodically. I think we are seeing a reaction to yeast die-off, but I still think that the melatonin and magnesium are not helping in the way that they should to be effective. It is my understanding that the melatonin is meant to get the kids to sleep and the magnesium is supposed to keep them asleep. We are giving a lot of magnesium and not seeing these positive effects. Each kid is different, though. Good Luck! Tamara >From: Ethrybr@... >Reply-To: GFCFKids >To: GFCFKids >Subject: Re: Re:Melatonin question >Date: Thu, 19 Apr 2001 21:09:11 EDT > >In a message dated 4/19/01 3:04:59 PM Eastern Daylight Time, >lita@... >writes: > > > > I don't know if it's an addiction, but my five year old seemed to be > > dependent on it. He was using it nightly for several months- and >couldn't > > get to sleep without it. So I started weaning him from it. Giving it to >him > > later (after being in bed about an hour), and rocking him to sleep >rather > > than giving it to him. It took about a week (wasn't real rough). Now I >give > > it to him only on occasion. > > > > Lolita > > > > > > > >My question is...it seems that everyone seems to be giving this to get them >to sleep. My son has no trouble whatsoever falling asleep. He would just >wake up in the middle of the night between 1 and 3am and just talk for over >an hour or more and then finally go back to sleep. Or at my moms he woke >up >at 3am and never went back to sleep. I just started him on melatonin. >Will >it help for the middle of the night wake ups or is it only to get to sleep? >thanks >Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 In a message dated 4/20/01 3:28:50 PM Eastern Daylight Time, tamara_b73@... writes: > . It > is my understanding that the melatonin is meant to get the kids to sleep > and > the magnesium is supposed to keep them asleep. We are giving a lot of > magnesium and not seeing these positive effects. Each kid is different, > though. Good Luck! Tamara > > Thanks for the info. I am going to see a DAN registered dietitian this Mon. and I can't wait so I can get started on some supplimentation. I am just entering this world and it seems most of you know alot more then I do! I didn't know anything about the magnesium. Last night was tough. He went to sleep fine as usual but was up in the middle of the night again. Since he just talks alot I turn the monitor down low and go back to sleep.(Lord help me the day I take the child proof knob off his door!) He was yawning by noon and now his preschool handicapped class is at 12:45 so no more naps for him. The poor little guy fell asleep at the dinner table after eating half his meal at 5:15! I carried him up to bed and will have to see how long he sleeps tonight. He did this at my parent's house for Easter. He didn't sleep at night and then LITERALLY fell asleep while leaning over the couch with one of his legs up sort of like the way a male dog goes pee, it was resting sideways on this marble stone, the other one standing on the floor and then his belly over the handrest with head on the seat of the couch! I just know if I can help him sleep more he will be better able to cope with everyday requests made of him. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 Betty, Yep, we use Kirkman's mel plus mag...not too successfully here. Re: Re:Melatonin question >, did you ever try adding magnesium to the melatonin? I found the melatonin would put Evan to sleep but he would be awake in about 4 hours. The magnesium helped keep him asleep. He does not need it every night but if he is still awake after 9 pm on a school night, I will give it to him. > >I use Kirkman's brand now. They have it in combination. I used to use the local store brand of melatonin and another bottle of magnesium. Kirkman's in a small capsule that I can open and mix with a little juice. No crushing tablets. > >Betty > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 Have you tried zinc at night. It also is suppose to help with sleep although mine hate the taste of it. We were successful with melatonin before we tried Kirkmans so we already knew that it would work for us. We used to be able to get a sublingual brand of melatonin. Now that was an easy one to use and no one put up a squeak about it but Puritan Pride quit carrying it. Betty Re: Re:Melatonin question Betty, Yep, we use Kirkman's mel plus mag...not too successfully here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Wow, thanks everyone for your responses to my question! We have found much the same as everyone else...ususally it makes her go to sleep but then seh will oftne wake up singing and talking (delayed echo) in the middle of the night. So now I'm going to try magnesium after all of your posts! I guess I won't worry too much about addiction for now and will try to get her into the habit of going to sleep at night. Then we can wean her off of it. Thanks again, H, mom to 3 yrs, PDD; and 23 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Forgive me if this was asked, but I've been away and I'm having a heck of time catching up on e-mail. Does Ebony take any other supplements or vitamins? You've probably covered this, but I thought I would ask. I discoverd early on that I couldn't give any subs or vitamins after 4Pm or was up bouncing between 2 and 4. a > I have been giving Ebony Melatonin and extra Magnesium, but I am going to > stop those two starting tonight. She is not sleeping at all. Like your > child, she falls asleep allright, but then she is up from 2:30 or 3:00 until > 5:30 or 6:00. Then she has to get up for school at the latest by 7:30. > Plus I have a two week old infant getting up periodically. I think we are > seeing a reaction to yeast die-off, but I still think that the melatonin and > magnesium are not helping in the way that they should to be effective. It > is my understanding that the melatonin is meant to get the kids to sleep and > the magnesium is supposed to keep them asleep. We are giving a lot of > magnesium and not seeing these positive effects. Each kid is different, > though. Good Luck! Tamara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 In a message dated 4/21/01 7:17:52 PM Eastern Daylight Time, lisacna@... writes: > . Any one out there who is > sleep deprived I feel for you and truthfully for us rooming in worked better > than any medication out there. I know alot of people dont agree with a child > rooming in but these days I just pass along what ever works. F----- > I don't have a problem with it but for me it is the worst when I have to sleep in the same room as him. When visiting my parent's house we stay in one room together. Right now he wakes at night but just talks/sings whatever but can't get out and I can choose to lower the monitor and go back to sleep. When we are in one room he wakes me up, climbs ALL over me and generally drives me nuts! Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Yes! I'll tell you if I didn't have my youngest beside I would get no sleep. And my five year old comes creeping in a couple of times a week. I have had each of my infants in the room with me, and at some point in the night, in bed with me. I would be more stir crazy than I am if I had tried keeping them off in another room. And btw, I did try doing it the correct way, letting them cry and all. It didn't work for me, I made me a nervous wreck. Lolita >This post is probably going to get me in alot of trouble, but for sleep >purposes we give melatonin when needed but what really works better than >anything else is he sleeps in the room with me. Any one out there who is >sleep deprived I feel for you and truthfully for us rooming in worked better >than any medication out there. I know alot of people dont agree with a child >rooming in but these days I just pass along what ever works Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 That part is hard I will agree, My little one when he wakes comes over and rubs my ears till he falls back asleep, which only takes 5 minutes if he is in the same room, if we seperate he is up for good when he wakes up. Since I work morning shift getting up at 2 am and staying up was way too hard for me. This sleep issue really is a bugger isnt it. I think its one of the hardest parts of ASD to deal with. F Re: Re:Melatonin question > In a message dated 4/21/01 7:17:52 PM Eastern Daylight Time, > lisacna@... writes: > > > > . Any one out there who is > > sleep deprived I feel for you and truthfully for us rooming in worked better > > than any medication out there. I know alot of people dont agree with a child > > rooming in but these days I just pass along what ever works. F----- > > > > I don't have a problem with it but for me it is the worst when I have to > sleep in the same room as him. When visiting my parent's house we stay in > one room together. Right now he wakes at night but just talks/sings whatever > but can't get out and I can choose to lower the monitor and go back to sleep. > When we are in one room he wakes me up, climbs ALL over me and generally > drives me nuts! > Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 Can/should you use melatonin with chlonidine, or should you stick to one or the other? Also, what would be the dosage for a 3 1/2 year old 56lb child (I know, he's HUGE!) Thanks! Kim Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.