Re: Thanks and more ?s on muscle pain

[Guest guest]

Be careful of too much B6, that can cause nerve issues and damage.

adamm4321 wrote:

>Hi,

>

>Thanks for all the responses..keeping the typing brief. I was

>noticing tonight, as pain increased as the evening wore on...some of

>the pain is in areas I would not suspect is muscle. I suspect it

>might be nerve endings as well as muscle pain? If some of it is nerve

>ending pain, what about B vitamins, does that have any beneficial

>effect?

>

>Has anyone tried massage? Are there any rub on creams that help with

>the pain?

>

>Thanks very much..

>Adam

>

>

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Adam-

Some people have had success using lavender body lotion. I know when I

have light to moderate pain in my legs and arms-it does help..don't

know why it works...

Also massage can help relieve cramps in muscles. In the past, I have

tried a shiatsu handheld massager by homedics-runs about $48.00 retail

in the store once. I didn't have the money to buy it, and when I went

back to the store-they were sold out. Here's a link:

http://www.homedics.com/prod/detail.aspx?ID=74

I am waiting for them to re-stock, so I can buy it. It really did help!

when I wasn't it this amount of pain.

Good luck.

Ann

>

> Hi,

>

> Thanks for all the responses..keeping the typing brief. I was

> noticing tonight, as pain increased as the evening wore on...some of

> the pain is in areas I would not suspect is muscle. I suspect it

> might be nerve endings as well as muscle pain? If some of it is nerve

> ending pain, what about B vitamins, does that have any beneficial

> effect?

>

> Has anyone tried massage? Are there any rub on creams that help with

> the pain?

>

> Thanks very much..

> Adam

>

[Guest guest]

Hi ,

I was sure I'd read that same thing some place before, but my psych. Dr. has put

me on a very high dose of Vit. B-12. They are lozenges that melt under your

tongue, and the strength is 500 mcg., which is 8,333% of our daily value. We

only need about 15 mcg. I asked him about that when he told me to buy these

tablets, and he said " no, it's impossible to get too much of it. It won't hurt

you no matter how much you take. " He thought it would help my neuropathy.

Well, it hasn't done anything for the neuropathy, but it has given me a little

more energy, at least. It doesn't seem to be making things any worse though,

but the neuropathy has steadilly worsened the past several months for me. And,

it's particularly so tonight, as I've been cleaning for three days in a row

(spacing it out, a little each day), to be ready for our apartment inspection.

Whenever I'm on my feet for a long time, that will increase the pain, of course.

So I am sure it's not from the B-12, as it's no worse than usual for being on my

feet a great deal. But if someone has the reference on this, that says that

high doses of B-12 will cause problems, please let me know, so I can chew my

psych. Dr. out . Why not, it looks like I won't be able to see him any more,

anyways, as our Governer has cut out all funding for Community Mental Health,

except for those who are severely mentally ill, those in crisis, and for the

developmentally disabled. Trying to save a few bucks... but, use your head,

G'vner... A person in crisis costs thousands of dollars PER DAY to treat,

whereas one not in crisis, costs maybe a couple hundered dollars a month. A

years total is less than one day in the hospital. The average stay in a psych

hospital is what? Probably at least a week, most stay two or more weeks. OK,

off my soap box now LOL. That's not even supposed to be part of this email, but

it crossed my mind when I started typing on the subject LOL.

Take care,

Cin

Re: Thanks and more ?s on muscle pain

Be careful of too much B6, that can cause nerve issues and damage.

adamm4321 wrote:

>Hi,

>

>Thanks for all the responses..keeping the typing brief. I was

>noticing tonight, as pain increased as the evening wore on...some of

>the pain is in areas I would not suspect is muscle. I suspect it

>might be nerve endings as well as muscle pain? If some of it is nerve

>ending pain, what about B vitamins, does that have any beneficial

>effect?

>

>Has anyone tried massage? Are there any rub on creams that help with

>the pain?

>

>Thanks very much..

>Adam

>

>

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Hi, this is for anyone/everyone! I was taking 100 mg of B-6 daily until I read

in a health magazine at the beauty shop that it can cause nerve damage so I

immediately stopped taking it and I am so glad that I did since I read this, so

Buyer Beware I guess. Thanks for reiterating what I had read and my B-6 is for

sure going down the drain tonight. Dolores

dgregori dgregori@...> wrote:Be careful of too much B6, that can

cause nerve issues and damage.

adamm4321 wrote:

>Hi,

>

>Thanks for all the responses..keeping the typing brief. I was

>noticing tonight, as pain increased as the evening wore on...some of

>the pain is in areas I would not suspect is muscle. I suspect it

>might be nerve endings as well as muscle pain? If some of it is nerve

>ending pain, what about B vitamins, does that have any beneficial

>effect?

>

>Has anyone tried massage? Are there any rub on creams that help with

>the pain?

>

>Thanks very much..

>Adam

>

>

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Cin

Many of the mito docs recommend either a B-50 (50 mg. of each B

vitamin) or a B-100. I split my dose into two B-50s per day.

Nerve pain and neuropathy is common in mito. Mine varies at different

times of the day, but that in my feet which was getting worse seems to

be caused by my bulging disk as it went away after my first epidural,

but is now back.

laurie

> Hi ,

> I was sure I'd read that same thing some place before, but my psych. Dr. has

put me on a very high dose of Vit. B-12. They are lozenges that melt under your

tongue, and the strength is 500 mcg.,

[Guest guest]

Hi, to all: They have had me on B-12 shots monthly for several months now and

I'm still not sure what they are trying to accomplish but my neuropathy is

sooo-sooo but I also do feel that the shots have helped my energy level. Do any

of you have any idea what kinds of info I should ask the MDA clinic at KU next

month?? I am getting all my records together and they also said they will need

the info from Research Hospital from when I had the Gamma-Knife for my brain

tumors in 1991. It's my understanding that Dr. Welch (my neuro) will get the

records needed from my hospitalization in July and they want a letter from Dr.

Baker (my ortho) who discovered that I didn't have Parkinsons. Also I am having

lots of trouble sleeping again??Enough for tonight. Dolores

Cindy Trumble ctrumble@...> wrote:

Hi ,

I was sure I'd read that same thing some place before, but my psych. Dr. has put

me on a very high dose of Vit. B-12. They are lozenges that melt under your

tongue, and the strength is 500 mcg., which is 8,333% of our daily value. We

only need about 15 mcg. I asked him about that when he told me to buy these

tablets, and he said " no, it's impossible to get too much of it. It won't hurt

you no matter how much you take. " He thought it would help my neuropathy.

Well, it hasn't done anything for the neuropathy, but it has given me a little

more energy, at least. It doesn't seem to be making things any worse though,

but the neuropathy has steadilly worsened the past several months for me. And,

it's particularly so tonight, as I've been cleaning for three days in a row

(spacing it out, a little each day), to be ready for our apartment inspection.

Whenever I'm on my feet for a long time, that will increase the pain, of course.

So I am sure it's not from the B-12, as it's no worse

than usual for being on my feet a great deal. But if someone has the reference

on this, that says that high doses of B-12 will cause problems, please let me

know, so I can chew my psych. Dr. out . Why not, it looks like I won't be

able to see him any more, anyways, as our Governer has cut out all funding for

Community Mental Health, except for those who are severely mentally ill, those

in crisis, and for the developmentally disabled. Trying to save a few bucks...

but, use your head, G'vner... A person in crisis costs thousands of dollars PER

DAY to treat, whereas one not in crisis, costs maybe a couple hundered dollars a

month. A years total is less than one day in the hospital. The average stay in

a psych hospital is what? Probably at least a week, most stay two or more

weeks. OK, off my soap box now LOL. That's not even supposed to be part of

this email, but it crossed my mind when I started typing on the subject LO! L.

Take care,

Cin

Re: Thanks and more ?s on muscle pain

Be careful of too much B6, that can cause nerve issues and damage.

adamm4321 wrote:

>Hi,

>

>Thanks for all the responses..keeping the typing brief. I was

>noticing tonight, as pain increased as the evening wore on...some of

>the pain is in areas I would not suspect is muscle. I suspect it

>might be nerve endings as well as muscle pain? If some of it is nerve

>ending pain, what about B vitamins, does that have any beneficial

>effect?

>

>Has anyone tried massage? Are there any rub on creams that help with

>the pain?

>

>Thanks very much..

>Adam

>

>

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

One more time: I had been wondering if my scolosis of the spine has been

causing part of my problems with the neuropathy in my feet now I feel that

perhaps that is part of the problem as I have so much pain in my back and down

my legs. I dug around and found some old nylon dress socks that had been my

husbands and lately I have been wearing them and it may be mind over matter but

I do think they are helping me a bit. I still use the Antodyne machine at least

once a week but between my breathing treatments and new physical therapy plan

that Dr. Baker is trying home and for a couple of weeks at the PT area in his

bldg. Has anyone ever heard of mito causing a person's voice to start going? I

go tomorrow for a voice eval to see if they think they can salvage what is left

of my voice and then they may try some voice treatments? Good Night to one and

all, Dolores

Laurie Fitzgerald laurie.fitzgerald@...> wrote:Cin

Many of the mito docs recommend either a B-50 (50 mg. of each B

vitamin) or a B-100. I split my dose into two B-50s per day.

Nerve pain and neuropathy is common in mito. Mine varies at different

times of the day, but that in my feet which was getting worse seems to

be caused by my bulging disk as it went away after my first epidural,

but is now back.

laurie

> Hi ,

> I was sure I'd read that same thing some place before, but my psych. Dr. has

put me on a very high dose of Vit. B-12. They are lozenges that melt under your

tongue, and the strength is 500 mcg.,

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

[Guest guest]

I turned 38 yesterday and my voice is going per mito. I get raspy

after talking awhile, then go to no sound. My pulmo and internal med

dr feels it is due to respiratory weakness. I cannot even read aloud

a children's book at times. It hurts when you so desperately want to

read your child a bedtime story and can't. So I have been put on

oxygen and that seems to help to some extent.

Good luck..

Ann

> > Hi ,

> > I was sure I'd read that same thing some place before, but my

psych. Dr. has put me on a very high dose of Vit. B-12. They are

lozenges that melt under your tongue, and the strength is 500 mcg.,

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

>

[Guest guest]

Dolores,

B-12 shots can be used for some types of severe anemian (mainly

those deficient in B-12). I have heard from many people that it does

help their energy level, but they can tell when it is time for another

shot.

Smiles,

a

On Wed, 12 Oct 2005 20:20:33 -0700 (PDT) Dolores

doloresskeet@...> writes:

Hi, to all: They have had me on B-12 shots monthly for several months

now and I'm still not sure what they are trying to accomplish but my

neuropathy is sooo-sooo but I also do feel that the shots have helped my

energy level. Do any of you have any idea what kinds of info I should

ask the MDA clinic at KU next month?? I am getting all my records

together and they also said they will need the info from Research

Hospital from when I had the Gamma-Knife for my brain tumors in 1991.

It's my understanding that Dr. Welch (my neuro) will get the records

needed from my hospitalization in July and they want a letter from Dr.

Baker (my ortho) who discovered that I didn't have Parkinsons. Also I am

having lots of trouble sleeping again??Enough for tonight. Dolores

[Guest guest]

Dear Adam,

For me, the way I usually know the difference between muscle and nerve

pain is that my nerve pain is a burning, electrical sort of sensation

and the muscle pain is more of an aching type pain. Don't know if

everyone would concur on that but it's been my primary issue for

decades. Also, massage for me has felt good at the time but the

results didn't last long. In the end, I couldn't afford a treatment

that had such brief results. But again, we're all different.

Best,

Shayna

>

> Hi,

>

> Thanks for all the responses..keeping the typing brief. I was

> noticing tonight, as pain increased as the evening wore on...some of

> the pain is in areas I would not suspect is muscle. I suspect it

> might be nerve endings as well as muscle pain? If some of it is

nerve

> ending pain, what about B vitamins, does that have any beneficial

> effect?

>

> Has anyone tried massage? Are there any rub on creams that help with

> the pain?

>

> Thanks very much..

> Adam

>

[Guest guest]

Sorry about your back and leg pain. I had bad sciatica due to a disk

injury, and spinal arthritis because of the resulting surgery. I've

found that sometimes I am paralyzed from the waist down (cannot move

at all) in the morning due to stiffening of my spine.

I find that sleeping with a pillow (folded-up) under my knees keeps

my spine aligned well enough not to be paralyzed in the AM, and also

I take the supplement methyl sulfonyl methane (MSM) which provides

sulfur to help the joint proteins. Two of my older (over 80)

relatives take it as well, and swear that their hair is thicker and

less grey too

Take care,

RH

> > Hi ,

> > I was sure I'd read that same thing some place before, but my

psych. Dr. has put me on a very high dose of Vit. B-12. They are

lozenges that melt under your tongue, and the strength is 500 mcg.,

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

>

[Guest guest]

Shayna

I get several weird pains that I was told were also neuropathy -

things like an ice pick being driven into my body, feeling like a bug

is biting, feeling like water is running down my arm or leg and

itching after the ice pick pain. It is really embarressing to be

swating at a bug that doesn't exist.

laurie

> Dear Adam,

> For me, the way I usually know the difference between muscle and nerve

> pain is that my nerve pain is a burning, electrical sort of sensation

> and the muscle pain is more of an aching type pain. Don't know if

> everyone would concur on that but it's been my primary issue for

> decades. Also, massage for me has felt good at the time but the

> results didn't last long. In the end, I couldn't afford a treatment

> that had such brief results. But again, we're all different.

> Best,

> Shayna

>

>

>

> >

> > Hi,

> >

> > Thanks for all the responses..keeping the typing brief. I was

> > noticing tonight, as pain increased as the evening wore on...some of

> > the pain is in areas I would not suspect is muscle. I suspect it

> > might be nerve endings as well as muscle pain? If some of it is

> nerve

> > ending pain, what about B vitamins, does that have any beneficial

> > effect?

> >

> > Has anyone tried massage? Are there any rub on creams that help with

> > the pain?

> >

> > Thanks very much..

> > Adam

> >

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Have you gone to a speech pathologist? My mom lost her voice after

an operation to get a colostomy, they never figured out why and since

she had other issues they didn't pursue it. I was thinking of asking

her to go to either a speech pathologist or an ENT to figure out if

it is muscle weakness or something else.

My voice gets weak during my worst episodes, but my cognitive issues

with speaking and holding conversations are worse for me. I am a

year younger than you

Maybe you could help your child through a Leap Pad story or similar?

It reads the story aloud with a special pen. It's not the same, but

just a thought. My son is almost 5, and I usually start the story

and he finishes it (the three little pigs or other common story). My

kids are very used to filling in words for me by now...

I've even heard of therapy that teaches different speaking

techniques, here are a few web pages that may be of interest:

http://www.fcvh.com/problems.htm

http://www.voiceproblem.org/disorders/nproblems/parkinsons.asp

(on parkinson's disease, but applicable to other neuro disorders;

this website, www.voiceproblem.org, seems very good in general)

Take care,

RH

> > > Hi ,

> > > I was sure I'd read that same thing some place before, but my

> psych. Dr. has put me on a very high dose of Vit. B-12. They are

> lozenges that melt under your tongue, and the strength is 500 mcg.,

> >

> >

> > Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list moderators.

> The author of this e mail is entirely responsible for its content.

> List members are reminded of their responsibility to evaluate the

> content of the postings and consult with their physicians regarding

> changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends

> one is automatically moderated or removed depending on the severity

> of the attack.

> >

> >

> >

> >

> >

[Guest guest]

Yes, I've had the bug-type feeling too. But for me it's just

occasional whereas the burning is daily.

> > >

> > > Hi,

> > >

> > > Thanks for all the responses..keeping the typing brief. I was

> > > noticing tonight, as pain increased as the evening wore

on...some of

> > > the pain is in areas I would not suspect is muscle. I suspect

it

> > > might be nerve endings as well as muscle pain? If some of it

is

> > nerve

> > > ending pain, what about B vitamins, does that have any

beneficial

> > > effect?

> > >

> > > Has anyone tried massage? Are there any rub on creams that

help with

> > > the pain?

> > >

> > > Thanks very much..

> > > Adam

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is automatically moderated or removed depending on the

severity of the attack.

> >

> >

[Guest guest]

> I turned 38 yesterday and my voice is going per mito. I get raspy

> after talking awhile, then go to no sound. My pulmo and internal med

> dr feels it is due to respiratory weakness. I cannot even read aloud

> a children's book at times. It hurts when you so desperately want to

> read your child a bedtime story and can't. So I have been put on

> oxygen and that seems to help to some extent.

>

> Good luck..

>

> Ann

Ann, Many years ago when my son was young, I had difficulty reading aloud

also. After a few minutes my throat muscles would begin to cramp, and if I

tried to keep going my voice first got raspy, then eventually sounded like I

was strangling. That's the way it felt too, though I knew I wasn't

strangling, of course, it was just that sensation. The voice-giving-out,

reading-aloud problem did vary a lot from day to day, and on better days I

could read longer to him. Time of day also mattered. I could read more in

the daytime and less at bedtime. Because I had been a teacher and believed

so strongly in the importance of reading aloud to children, I did continue

reading to him for short periods of time whenever I could, even if it meant

some hoarseness the rest of the day. Around age 10, my husband took over the

bedtime reading. By then we were reading whole chapters of longer books each

night, and I just couldn't do that. I had the same problem with singing and

with extended conversation. If I'd sing one hymn at church, I was hoarse the

rest of the day. I'd had a double major in voice and piano in college, so

giving up singing was not something I wanted to do. But eventually I decided

that listening to singing was good too, and that in conversations I just

needed to learn to listen more and talk less. In my case, I believe the

problem is primarily muscular weakness in my throat and in the vocal

muscular mechanism, rather than insufficient oxygen. Anyway, just wanted to

encourage you that life can still be good with less talking and more

listening!

Hugs,

Barbara

[Guest guest]

Shayna,

I agree with you, completely. My neuropathy burns, and I get these real sharp

shooting pains that might go only the length of one toe, or they might go the

length of my entire calf. The muscle pains, well, I don't have that too much,

thankfully. But I know when I've overused my muscles in the past, say like for

packing and moving several boxes in one day, or something similar, well, that's

what the muscle aches feel like.

One thing that helps me, is using our local Holiday Inn's whirlpool. Again, I'm

fortunate to have this. Our local Holiday Inn allows us to buy pool passes each

month, and it's now $50 a month. It used to be $35, and this is for one or two

people. For up to 5 people, it's now $100. That might be steep for a family,

but if it's just for one person, and you have a friend that can split the cost,

well, $25 is a good deal. And you can go any time from 6:30 AM to 11:30 PM,

shower, use their towels, etc. If you have a water bill, you know that in

itself is worth it! I get in the pool too, and cool off, and do a few pool

exercises, and then hop in the whirlpool before I leave, to help relax my

muscles. But of course, I can only tolerate about 7 minutes of the whirlpool

before I start sweating like crazy and have to get out. But, if I go back and

forth, from pool to whirlpool, and am able to spend a couple of hours there, my

muscles get a pretty good workout. I pay the full $50 myself, because I have a

ten year old daughter, and of course, there's no way I'm going to leave her home

while I go enjoy the pool every day in the hot summer LOL. So, for those of you

who are able to use a pool and whirlpool, you might want to check around at the

local hotels, or you may even have an indoor college or high school pool that's

available.

----- Original Message -----

From: shaynapearl

Dear Adam,

For me, the way I usually know the difference between muscle and nerve

pain is that my nerve pain is a burning, electrical sort of sensation

and the muscle pain is more of an aching type pain. Don't know if

everyone would concur on that but it's been my primary issue for

decades. Also, massage for me has felt good at the time but the

results didn't last long. In the end, I couldn't afford a treatment

that had such brief results. But again, we're all different.

Best,

Shayna

>

> Hi,

>

> Thanks for all the responses..keeping the typing brief. I was

> noticing tonight, as pain increased as the evening wore on...some of

> the pain is in areas I would not suspect is muscle. I suspect it

> might be nerve endings as well as muscle pain? If some of it is

nerve

> ending pain, what about B vitamins, does that have any beneficial

> effect?

>

> Has anyone tried massage? Are there any rub on creams that help with

> the pain?

>

> Thanks very much..

> Adam

>

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

[Guest guest]

I had another episode or perhaps another mild stroke last night? I was in the

same bldg as my neuro and stopped by this am to talk to his nurse and she said

there was definite weakness in my left arm. When I was hospitalized in July

they saw damage pointing a light stroke on the MRI done then? Same thing as in

July my left arm went completely numb but didn't have that heavy feeling like if

it just went to sleep. The nurse said she would talk to Dr. Welch and give me a

call later today? Big Mystery, Oh Well it could be worse, Dolores

ohgminion rakshasis@...> wrote:Sorry about your back and leg pain. I

had bad sciatica due to a disk

injury, and spinal arthritis because of the resulting surgery. I've

found that sometimes I am paralyzed from the waist down (cannot move

at all) in the morning due to stiffening of my spine.

I find that sleeping with a pillow (folded-up) under my knees keeps

my spine aligned well enough not to be paralyzed in the AM, and also

I take the supplement methyl sulfonyl methane (MSM) which provides

sulfur to help the joint proteins. Two of my older (over 80)

relatives take it as well, and swear that their hair is thicker and

less grey too

Take care,

RH

> > Hi ,

> > I was sure I'd read that same thing some place before, but my

psych. Dr. has put me on a very high dose of Vit. B-12. They are

lozenges that melt under your tongue, and the strength is 500 mcg.,

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

>

[Guest guest]

Shayna

That is the same for me. I will be happy if my additional epidurals

take care of the burning. I can get a script for Neurotin at any time

from my neuro, but hope to avoid it for as long as possible. Pacing

myself and changing positions often helps, as does keeping my feet

elevated in the evening.

laurie

> Yes, I've had the bug-type feeling too. But for me it's just

> occasional whereas the burning is daily.

[Guest guest]

Thanks Barbara. I too majored in voice for awhile and I can get

through 2 songs on a good day. But then the rest of the day is spent

on very little energy.

My new dr gave me a breathing exercise machine to try, thinking this

would be a good course of action. BAD idea. I tried once and went

from feeling ok in one minutes to feeling like I had been hit with a

mack truck. WHAM!!!!!!!!!!!!!!!!!!!! Hit and run. So I was honest and

said, I cannot do the exercise thingie. It uses my energy in

reserves. At least he understood and my pulmo I guess explained why I

couldn't.

I love to sing and try very hard to sing even a chorus, to keep my

diaphram working. But its getting where I hum or mouthed the words...

no more days of carefree singing.......

I appreciate your words of hope.

Have a good rest of the week.

Ann

[Guest guest]

I'm not aware of B-12 being a problem, just B-6.

Cindy Trumble wrote:

>Hi ,

>I was sure I'd read that same thing some place before, but my psych. Dr. has

put me on a very high dose of Vit. B-12. They are lozenges that melt under your

tongue, and the strength is 500 mcg., which is 8,333% of our daily value. We

only need about 15 mcg. I asked him about that when he told me to buy these

tablets, and he said " no, it's impossible to get too much of it. It won't hurt

you no matter how much you take. " He thought it would help my neuropathy.

Well, it hasn't done anything for the neuropathy, but it has given me a little

more energy, at least. It doesn't seem to be making things any worse though,

but the neuropathy has steadilly worsened the past several months for me. And,

it's particularly so tonight, as I've been cleaning for three days in a row

(spacing it out, a little each day), to be ready for our apartment inspection.

Whenever I'm on my feet for a long time, that will increase the pain, of course.

So I am sure it's not from the B-12, as it's no worse than usual for being on my

feet a great deal. But if someone has the reference on this, that says that

high doses of B-12 will cause problems, please let me know, so I can chew my

psych. Dr. out . Why not, it looks like I won't be able to see him any more,

anyways, as our Governer has cut out all funding for Community Mental Health,

except for those who are severely mentally ill, those in crisis, and for the

developmentally disabled. Trying to save a few bucks... but, use your head,

G'vner... A person in crisis costs thousands of dollars PER DAY to treat,

whereas one not in crisis, costs maybe a couple hundered dollars a month. A

years total is less than one day in the hospital. The average stay in a psych

hospital is what? Probably at least a week, most stay two or more weeks. OK,

off my soap box now LOL. That's not even supposed to be part of this email, but

it crossed my mind when I started typing on the subject LOL.

>

>Take care,

>Cin

> Re: Thanks and more ?s on muscle pain

>

>

>Be careful of too much B6, that can cause nerve issues and damage.

>

>

>

>adamm4321 wrote:

>

>

>

>>Hi,

>>

>>Thanks for all the responses..keeping the typing brief. I was

>>noticing tonight, as pain increased as the evening wore on...some of

>>the pain is in areas I would not suspect is muscle. I suspect it

>>might be nerve endings as well as muscle pain? If some of it is nerve

>>ending pain, what about B vitamins, does that have any beneficial

>>effect?

>>

>>Has anyone tried massage? Are there any rub on creams that help with

>>the pain?

>>

>>Thanks very much..

>>Adam

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>>

>>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>>

>>

[Guest guest]

This may sound silly, but you shouldn't really ever put any meds down

the drain or flush them down the toilet as they get into our water

supply that way.

Dolores wrote:

>Hi, this is for anyone/everyone! I was taking 100 mg of B-6 daily until I read

in a health magazine at the beauty shop that it can cause nerve damage so I

immediately stopped taking it and I am so glad that I did since I read this, so

Buyer Beware I guess. Thanks for reiterating what I had read and my B-6 is for

sure going down the drain tonight. Dolores

>

>dgregori dgregori@...> wrote:Be careful of too much B6, that can

cause nerve issues and damage.

>

>

>

>adamm4321 wrote:

>

>

>

>>Hi,

>>

>>Thanks for all the responses..keeping the typing brief. I was

>>noticing tonight, as pain increased as the evening wore on...some of

>>the pain is in areas I would not suspect is muscle. I suspect it

>>might be nerve endings as well as muscle pain? If some of it is nerve

>>ending pain, what about B vitamins, does that have any beneficial

>>effect?

>>

>>Has anyone tried massage? Are there any rub on creams that help with

>>the pain?

>>

>>Thanks very much..

>>Adam

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>>

>>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>>

>>

[Guest guest]

How would one dispose of old medications? A person wouldn't want to have it in

their trash with medication in it and it end up falling out of a dumpster into

the reach of a child or person it would be damaging to, would they? Just

curious, Dolores

dgregori dgregori@...> wrote:

This may sound silly, but you shouldn't really ever put any meds down

the drain or flush them down the toilet as they get into our water

supply that way.

Dolores wrote:

>Hi, this is for anyone/everyone! I was taking 100 mg of B-6 daily until I read

in a health magazine at the beauty shop that it can cause nerve damage so I

immediately stopped taking it and I am so glad that I did since I read this, so

Buyer Beware I guess. Thanks for reiterating what I had read and my B-6 is for

sure going down the drain tonight. Dolores

>

>dgregori dgregori@...> wrote:Be careful of too much B6, that can

cause nerve issues and damage.

>

>

>

>adamm4321 wrote:

>

>

>

>>Hi,

>>

>>Thanks for all the responses..keeping the typing brief. I was

>>noticing tonight, as pain increased as the evening wore on...some of

>>the pain is in areas I would not suspect is muscle. I suspect it

>>might be nerve endings as well as muscle pain? If some of it is nerve

>>ending pain, what about B vitamins, does that have any beneficial

>>effect?

>>

>>Has anyone tried massage? Are there any rub on creams that help with

>>the pain?

>>

>>Thanks very much..

>>Adam

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>>

>>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>>

>>

[Guest guest]

Thanks . I probably read the info on the B-6, thinking it was talking

about B-12. Believe me, it's very easy to confuse this poor soul here LOL.

Take care,

Cin

Re: Thanks and more ?s on muscle pain

>

>

>Be careful of too much B6, that can cause nerve issues and damage.

>

>

>

>adamm4321 wrote:

>

>

>

>>Hi,

>>

>>Thanks for all the responses..keeping the typing brief. I was

>>noticing tonight, as pain increased as the evening wore on...some of

>>the pain is in areas I would not suspect is muscle. I suspect it

>>might be nerve endings as well as muscle pain? If some of it is nerve

>>ending pain, what about B vitamins, does that have any beneficial

>>effect?

>>

>>Has anyone tried massage? Are there any rub on creams that help with

>>the pain?

>>

>>Thanks very much..

>>Adam

>>

>>

>>

>>

>>

>>

>>

>>

>>Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>>

>>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>>

>>

[Guest guest]

Unless you're almost 70 like me, it's OK to swat at " bugs that aren't there " , if

you get a strange look you can always say your were waving at a friend and get

by with it but when you get my age you have to be more careful. I even worry

about laughing out loud sitting here all alone or saying " Oh NO " , when the home

team misses a touchdown and looses the game. Dolores

Laurie Fitzgerald laurie.fitzgerald@...> wrote:Shayna

I get several weird pains that I was told were also neuropathy -

things like an ice pick being driven into my body, feeling like a bug

is biting, feeling like water is running down my arm or leg and

itching after the ice pick pain. It is really embarressing to be

swating at a bug that doesn't exist.

laurie

> Dear Adam,

> For me, the way I usually know the difference between muscle and nerve

> pain is that my nerve pain is a burning, electrical sort of sensation

> and the muscle pain is more of an aching type pain. Don't know if

> everyone would concur on that but it's been my primary issue for

> decades. Also, massage for me has felt good at the time but the

> results didn't last long. In the end, I couldn't afford a treatment

> that had such brief results. But again, we're all different.

> Best,

> Shayna

>

>

>

> >

> > Hi,

> >

> > Thanks for all the responses..keeping the typing brief. I was

> > noticing tonight, as pain increased as the evening wore on...some of

> > the pain is in areas I would not suspect is muscle. I suspect it

> > might be nerve endings as well as muscle pain? If some of it is

> nerve

> > ending pain, what about B vitamins, does that have any beneficial

> > effect?

> >

> > Has anyone tried massage? Are there any rub on creams that help with

> > the pain?

> >

> > Thanks very much..

> > Adam

> >

>

>

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

Dolores,

I thought it was the other way around? Once we reach a certain age, we can get

away with a whole lot more, than we could when we were " young'uns " . I have a

few years to go before I reach 70 (but, not that many, really... I'm 46 now).

Of course, I just blame all my memory lapses, my uncooridination, etc. etc. on

all my meds... I always thought THAT was better than saying " I'm getting old! " .

LOL.

----- Original Message -----

From: Dolores

Unless you're almost 70 like me, it's OK to swat at " bugs that aren't there " , if

you get a strange look you can always say your were waving at a friend and get

by with it but when you get my age you have to be more careful. I even worry

about laughing out loud sitting here all alone or saying " Oh NO " , when the home

team misses a touchdown and looses the game. Dolores

Laurie Fitzgerald laurie.fitzgerald@...> wrote:Shayna

I get several weird pains that I was told were also neuropathy -

things like an ice pick being driven into my body, feeling like a bug

is biting, feeling like water is running down my arm or leg and

itching after the ice pick pain. It is really embarressing to be

swating at a bug that doesn't exist.

laurie