olivia

[Guest guest]

what a great pic of your family. the love in your family really

shows.

[Guest guest]

Oh Leah, I am so glad that she didn't break it! What relief. I hope

she isn't in too much pain. Whew, close one for her!

Take care,

Jodi R.

>

> What a long morning we've had! Olivia's shoulder is NOT broken

> thank goodness! It seems that she's dislocated it though, not much

> we can do for that except for putting it in a sling when it gets

> very painful for her.

>

> As far as tweaking the meds goes we didn't have a whole lot of

> luck, Mirilax isn't available in Canada but there is an exact

> substitute for it. The Dr. wouldn't give me a script for it though

> as something in it worries him, ethelyne or something like that.

So

> for now we're sticking with the Senokot. For the PPI he chose

> Luprin/Lupron... I can't remember what he said now and I can't read

> his writing! He said that's what is used for kids and wouldn't

give

> me the Prevacid that I'd asked for. I'm going to wait and see what

> the Ped. says before I fill the prescription, maybe he'll do the

> Prevacid for me, now it's just a matter of getting into see him in

a

> timely mannor and also booking the tests to be done. We're just so

> happy to have a game plan now and if it all works well Olivia will

> hopefully gain some weight!

>

> Take care all,

> Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs, 33 " , RSS, OI,

> Lactulose, Senokot, Zantac, Tums, Pamidronate IV infusions

[Guest guest]

Hey Leah,

I thought Lupron was one of the drugs used to delay puberty??? The other PPI

that I have heard widely used for smaller kids was Prilosec. You might want

to try asking for that??

Just a thought.

Pat (g-ma to , RSS, 31 months, G-Tube)