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It's a Kind of Magic

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Howdy Folks!

Kearns and family here in little ole' Lynchburg.

Well, we had our fundriaser on Friday night. And, to use the words

of the 300 people who attended - " Wow, what a night! "

For the last 3 months I have been selling ads, putting thousands of

miles on my van and soliciting publicity for the Magic Foundation.

Well, it paid off. Literally.

At this moment, sitting in our cash box, we have $3,700.00 raised

for the RSS family scholarships for this year's convention.

Drum Roll Please.....YEEEEEEEHAAAAAWWWWWWW!!!!!!

I'm waiting on some checks from Oregon to come in. My step-dad is a

journalist in THe Dalles, Oregon, and he ran a story also. Thus,

some of my home town folks are sending money too.

I am simply shocked, amazed, overwhelmed, estatic and jazzed by what

happened on Friday. I was told that the line circled the block to

get in for pancakes. People were parking two blocks away to get

in. The price for a ticket was only 7.50 but many people dropped in

$20.00 and said, " Keep the change. " I can honestly say that

Lynchburg has a detailed education on RSS.

Now for the Thank You's.

Maloy and Tori - thank you for traveling so far to support the fund

raiser. Many people were touched by Tori's beauty and spark. It

meant so much to me to have other RSS families present. You all are

the best.

Thank you Salem for your wonderful advice. You helped me

take this fund raiser to a higher level than I ever envisioned.

Thank you Magic Foundation, especially s for not

taking " no " as an answer and teaching us all the same thing -

advocate for your precious child.

Thank you to all the people on the list serve who sent in pictures

of your children. We filled two triple sided diplay boards when all

was said and done. Our children are gorgeous and should be on the

cover of Vogue - EVEN WITH THE G-TUBES IN PLACE!

Thank you to all the private emailers who encouraged me when I was

down, especially on bad fund raising days where the doors were

slammed in my face and I felt like giving up. Well, persistence

paid off.

And now, finally for the greatest piece of news yet. After our

story was published in the local paper I received two phone calls.

Both were from families whose children had RSS BUT DIDN'T KNOW ABOUT

EACH OTHER OR THE MAGIC FOUNDATION! I am not alone in central

Virginia. What a blessing.

One family came to the pancake supper. Gretchen is 24 and is 4'5.

She missed out on the different therapies that our children are

receiving today. Gretchen also has Cebral Palsy. However, she is a

live wire. Witty. Outspoken and just wonderful to be with. How

touched I was to have her and her family present. Unfortunately,

the other family couldn't attend, but I have offered them the

opportunity to go to convention with the money we raised. Their

daughter is 7 yrs old. She is on growth hormone and is doing well.

Her RSS characteristics are double asymmetry in arms and legs. She

was fortunate not to have the gut motility issues that many of our

kids have. Pray that her family is receptive to the help we are

extending.

Honestly, I am exhausted but in a happy, yippee sort of way.

You'll be hearing more from us now that life has settled down a bit.

Grace and Peace to all,

Kearns

Mom to Graham 7; Cameron 4; Connor 17 months - SGA/RSS, Periactin,

Zantac, asymmetry in the left leg.

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Guest guest

Hello,

I just wanted to say thank you to and her family for the hard efforts put

forth. And the rest of her support team

It was wonderful to be a part and present for the fundraiser. The people were

awesome and very support and interest in what is RSS.

The display board was great. Tori looked at one of the pictures lifted up her

shirt and said " mom they have a button just like I do, it matches " . " And there

is me mom "

Gretchen was very nice and pictures were taken of the group.

Thanks again for everyone who helped pull this off.

Maloy mom to Tori

It's a Kind of Magic

Howdy Folks!

Kearns and family here in little ole' Lynchburg.

Well, we had our fundriaser on Friday night. And, to use the words

of the 300 people who attended - " Wow, what a night! "

For the last 3 months I have been selling ads, putting thousands of

miles on my van and soliciting publicity for the Magic Foundation.

Well, it paid off. Literally.

At this moment, sitting in our cash box, we have $3,700.00 raised

for the RSS family scholarships for this year's convention.

Drum Roll Please.....YEEEEEEEHAAAAAWWWWWWW!!!!!!

I'm waiting on some checks from Oregon to come in. My step-dad is a

journalist in THe Dalles, Oregon, and he ran a story also. Thus,

some of my home town folks are sending money too.

I am simply shocked, amazed, overwhelmed, estatic and jazzed by what

happened on Friday. I was told that the line circled the block to

get in for pancakes. People were parking two blocks away to get

in. The price for a ticket was only 7.50 but many people dropped in

$20.00 and said, " Keep the change. " I can honestly say that

Lynchburg has a detailed education on RSS.

Now for the Thank You's.

Maloy and Tori - thank you for traveling so far to support the fund

raiser. Many people were touched by Tori's beauty and spark. It

meant so much to me to have other RSS families present. You all are

the best.

Thank you Salem for your wonderful advice. You helped me

take this fund raiser to a higher level than I ever envisioned.

Thank you Magic Foundation, especially s for not

taking " no " as an answer and teaching us all the same thing -

advocate for your precious child.

Thank you to all the people on the list serve who sent in pictures

of your children. We filled two triple sided diplay boards when all

was said and done. Our children are gorgeous and should be on the

cover of Vogue - EVEN WITH THE G-TUBES IN PLACE!

Thank you to all the private emailers who encouraged me when I was

down, especially on bad fund raising days where the doors were

slammed in my face and I felt like giving up. Well, persistence

paid off.

And now, finally for the greatest piece of news yet. After our

story was published in the local paper I received two phone calls.

Both were from families whose children had RSS BUT DIDN'T KNOW ABOUT

EACH OTHER OR THE MAGIC FOUNDATION! I am not alone in central

Virginia. What a blessing.

One family came to the pancake supper. Gretchen is 24 and is 4'5.

She missed out on the different therapies that our children are

receiving today. Gretchen also has Cebral Palsy. However, she is a

live wire. Witty. Outspoken and just wonderful to be with. How

touched I was to have her and her family present. Unfortunately,

the other family couldn't attend, but I have offered them the

opportunity to go to convention with the money we raised. Their

daughter is 7 yrs old. She is on growth hormone and is doing well.

Her RSS characteristics are double asymmetry in arms and legs. She

was fortunate not to have the gut motility issues that many of our

kids have. Pray that her family is receptive to the help we are

extending.

Honestly, I am exhausted but in a happy, yippee sort of way.

You'll be hearing more from us now that life has settled down a bit.

Grace and Peace to all,

Kearns

Mom to Graham 7; Cameron 4; Connor 17 months - SGA/RSS, Periactin,

Zantac, asymmetry in the left leg.

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Congratulations! Wow! You are such an inspiration! :-) I am so glad

to hear your event was such a success. You are truly an amazing and

gifted individual. May God richly bless you for all your hard work

and generosity.

Mom to - 8.5 months, 9lbs 6oz

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CONGRATES !!!

wow what a great feeling it must be for you to know that you are

helping so many families get to the convention with your hard work

and determination!!! and to think you also helped two families that

have rss and didnt know that there were such support resourses out

there for them!! i applaud you!!! i am in the process of fundraising

for my families trip and hope i have the same results. next year i

too am going to see about doing something on a larger scale to help

out more families beside my own. thanks once again for the

inspiration!!!

jodie

(nicholas-5 nonrss, christopher-3 rss 23lbs 33 " ght genotropin.6,

johnathon-9m nonrss)

I

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Way to go, !!!!

I just wanted to say what an inspiration you are to all of us! I only wish I

had the guts to try something on that scale! LOL

Keep up the good work!

Pat (g-ma to , RSS, 27 months, 20# 1oz, 29.9 " , Prevacid, Singulair,

GT)

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Guest guest

Hi ,

Personally, Thank-you for all your hard work. Because of your work

many people will benefit greatly from your efforts. Truely, this is

something to be very proud of.

Have you considered this as a career? It sounds like you have a

talent for it and you now have something to put on a resume.

Anyway, Thanks for helping a lot of people you may never meet.

GREAT WORK !!

Ken M

:)

> Howdy Folks!

>

> Kearns and family here in little ole' Lynchburg.

>

> Well, we had our fundriaser on Friday night. And, to use the words

> of the 300 people who attended - " Wow, what a night! "

>

> For the last 3 months I have been selling ads, putting thousands of

> miles on my van and soliciting publicity for the Magic Foundation.

> Well, it paid off. Literally.

>

> At this moment, sitting in our cash box, we have $3,700.00 raised

> for the RSS family scholarships for this year's convention.

>

> Drum Roll Please.....YEEEEEEEHAAAAAWWWWWWW!!!!!!

>

> I'm waiting on some checks from Oregon to come in. My step-dad is

a

> journalist in THe Dalles, Oregon, and he ran a story also. Thus,

> some of my home town folks are sending money too.

>

> I am simply shocked, amazed, overwhelmed, estatic and jazzed by

what

> happened on Friday. I was told that the line circled the block to

> get in for pancakes. People were parking two blocks away to get

> in. The price for a ticket was only 7.50 but many people dropped

in

> $20.00 and said, " Keep the change. " I can honestly say that

> Lynchburg has a detailed education on RSS.

>

> Now for the Thank You's.

>

> Maloy and Tori - thank you for traveling so far to support the fund

> raiser. Many people were touched by Tori's beauty and spark. It

> meant so much to me to have other RSS families present. You all

are

> the best.

>

> Thank you Salem for your wonderful advice. You helped me

> take this fund raiser to a higher level than I ever envisioned.

>

> Thank you Magic Foundation, especially s for not

> taking " no " as an answer and teaching us all the same thing -

> advocate for your precious child.

>

> Thank you to all the people on the list serve who sent in pictures

> of your children. We filled two triple sided diplay boards when

all

> was said and done. Our children are gorgeous and should be on the

> cover of Vogue - EVEN WITH THE G-TUBES IN PLACE!

>

> Thank you to all the private emailers who encouraged me when I was

> down, especially on bad fund raising days where the doors were

> slammed in my face and I felt like giving up. Well, persistence

> paid off.

>

> And now, finally for the greatest piece of news yet. After our

> story was published in the local paper I received two phone calls.

> Both were from families whose children had RSS BUT DIDN'T KNOW

ABOUT

> EACH OTHER OR THE MAGIC FOUNDATION! I am not alone in central

> Virginia. What a blessing.

>

> One family came to the pancake supper. Gretchen is 24 and is 4'5.

> She missed out on the different therapies that our children are

> receiving today. Gretchen also has Cebral Palsy. However, she is

a

> live wire. Witty. Outspoken and just wonderful to be with. How

> touched I was to have her and her family present. Unfortunately,

> the other family couldn't attend, but I have offered them the

> opportunity to go to convention with the money we raised. Their

> daughter is 7 yrs old. She is on growth hormone and is doing

well.

> Her RSS characteristics are double asymmetry in arms and legs. She

> was fortunate not to have the gut motility issues that many of our

> kids have. Pray that her family is receptive to the help we are

> extending.

>

> Honestly, I am exhausted but in a happy, yippee sort of way.

>

> You'll be hearing more from us now that life has settled down a bit.

>

> Grace and Peace to all,

>

> Kearns

> Mom to Graham 7; Cameron 4; Connor 17 months - SGA/RSS, Periactin,

> Zantac, asymmetry in the left leg.

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