Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi everyone, When Tommy was born I kept telling myself that it was only clubfoot and fixable. To this day I still consider myself so lucky for having such a small burden to bear. I sometimes check the babycenter(babies with birth defects) message board to see if anyone is looking for help with clubfoot and always thank God that I am not dealing with the life threatening illnesses some of those babies have. One Mom lost her son recently when his trach came out during a nap and he suffocated. I was crying reading the posts and actually feel lucky to have a baby with clubfoot. There are so many things that could have gone wrong while he was cooking in my belly and if wearing these shoes with a bar is the hardest thing he will ever have to get through then...thank God. Jsut wanted to share. Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 - I completely agree 100%!!! I've often told new mom's who come to the board in a panic, to relax and thank god it is ONLY clubfoot. When I was first overwhelmed with my son's unilateral clubfoot at birth my aunt said, don't worry thank god he has all his parts, one just needs a little adjustment. At that point I thought about all that could of been wrong with him and thanked god right there all I was dealing with was clubfoot. > > Hi everyone, > When Tommy was born I kept telling myself that it was only clubfoot > and fixable. To this day I still consider myself so lucky for having > such a small burden to bear. I sometimes check the babycenter (babies > with birth defects) message board to see if anyone is looking for > help with clubfoot and always thank God that I am not dealing with > the life threatening illnesses some of those babies have. One Mom > lost her son recently when his trach came out during a nap and he > suffocated. I was crying reading the posts and actually feel lucky > to have a baby with clubfoot. There are so many things that could > have gone wrong while he was cooking in my belly and if wearing these > shoes with a bar is the hardest thing he will ever have to get > through then...thank God. > Jsut wanted to share. > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 I couldn't agree more!!! Being pregnant now, I'm a little nervous about having a baby without clubfeet. Weird huh?? -------------- Original message -------------- Hi everyone, When Tommy was born I kept telling myself that it was only clubfoot and fixable. To this day I still consider myself so lucky for having such a small burden to bear. I sometimes check the babycenter(babies with birth defects) message board to see if anyone is looking for help with clubfoot and always thank God that I am not dealing with the life threatening illnesses some of those babies have. One Mom lost her son recently when his trach came out during a nap and he suffocated. I was crying reading the posts and actually feel lucky to have a baby with clubfoot. There are so many things that could have gone wrong while he was cooking in my belly and if wearing these shoes with a bar is the hardest thing he will ever have to get through then...thank God. Jsut wanted to share. Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Our son was born 6 and half weeks early and when they told us about his feet, I considered us very lucky that this was his only obstacle. Even with our recent problems with the DDB, treating clubfoot is easy compared to what could have been. My husband is a job coach for DD adults so we are well-aware of all of the possible problems children can be born with. Clubfoot is so minor compared to the 'clients' my husbands works with on a daily basis! And if that wasn't enough, we also have friends who recently had a baby boy (born when Aleksander was due!) who was born with imperforate anus and is undergoing several surgeries to connect things properly. He also has nerves that are growing around his spine and needs constant evaluations and procedures to prevent that from recurring. > > > > Hi everyone, > > When Tommy was born I kept telling myself that it was only > clubfoot > > and fixable. To this day I still consider myself so lucky for > having > > such a small burden to bear. I sometimes check the babycenter > (babies > > with birth defects) message board to see if anyone is looking for > > help with clubfoot and always thank God that I am not dealing with > > the life threatening illnesses some of those babies have. One Mom > > lost her son recently when his trach came out during a nap and he > > suffocated. I was crying reading the posts and actually feel > lucky > > to have a baby with clubfoot. There are so many things that could > > have gone wrong while he was cooking in my belly and if wearing > these > > shoes with a bar is the hardest thing he will ever have to get > > through then...thank God. > > Jsut wanted to share. > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 , I say this to myself every day. One of my dearest friends had a full term infant die the day after he was born because of a heart defect that was not diagnosed by ultrasound so they had no warning. After experiencing that with her, Kurt and I are very grateful that despite the challenges we have faced with, we have a beautiful, perfect, healthy daughter. Sometimes I do lose site of all of this and get caught up in those challanges and all I have to do is think of Ethan and it brings it all back into perspective for me. Jenni --- giannasmommy2002 nannylulu@...> wrote: > > Hi everyone, > When Tommy was born I kept telling myself that it > was only clubfoot > and fixable. To this day I still consider myself so > lucky for having > such a small burden to bear. I sometimes check the > babycenter(babies > with birth defects) message board to see if anyone > is looking for > help with clubfoot and always thank God that I am > not dealing with > the life threatening illnesses some of those babies > have. One Mom > lost her son recently when his trach came out during > a nap and he > suffocated. I was crying reading the posts and > actually feel lucky > to have a baby with clubfoot. There are so many > things that could > have gone wrong while he was cooking in my belly and > if wearing these > shoes with a bar is the hardest thing he will ever > have to get > through then...thank God. > Jsut wanted to share. > > > Tommy Lee 4/23/04 > > > > Jenni- Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for left clubfoot. __________________________________ Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web http://birthday.yahoo.com/netrospective/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 i can almost say that i understand how you feel... i almost don't know what i would do to have a child that was " normal " ... and not having to have the surgeries and dr appts and all that... and never think of a bath as a special milestone... but it puts those small things into perspective... i have never known anyone that lost a child and don't know how that would feel... but i know that even one night without grace in that next room makes my skin crawl.. and to think of anything more than that one night makes my stomach lurch... so i am thankful every day that i have my little angel and that she's healthy.. and i am very sorry for anyone who isn't as lucky... mommy to Grace 12-03-03 BCF DBB 23/7 poohismybb@... wrote: I couldn't agree more!!! Being pregnant now, I'm a little nervous about having a baby without clubfeet. Weird huh?? lisa --------------------------------- Celebrate Yahoo!'s 10th Birthday! Yahoo! Netrospective: 100 Moments of the Web Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 Hi, I just wanted to say that this is such a good perspective to have. I know this probably sounds strange but I think that most people who do not have a perfectly typical child is blessed in a way. Haven't we all learned something from this...or even a lot from this. My son has numerous medical issues....kidney problems, a small brain (he'll most likely be mentally handicapped, low muscle tone, etc.), we've been told he may never speak, etc. etc. I have learned so much from my son...so much more than I would have learned from a typical child. He is so determined to do things even with so much going against him. I remember watching him pull-up the first few times and I was amazed. Due to his clubfeet and low muscle tone, he only used his arms to pull himself up; he dragged his legs like they were sand-bags. Now he uses his legs but it took him awhile to get there. I use to take so much for granted before I had my sweet boy and now I don't. Sorry I didn't mean to ramble but I wanted to say that I also know of children worse off than and I thank God for everything he has. I remember when was in the hospital for not eating and the little baby across the room was in her exersaucer receiving her chemo...All I could think was thank God that's not . was also tested for Cystic Fibrosis and after reading about it I prayed he didn't have it. He doesn't.....These things are what made me realize that even though we may have it rough at times with all of 's medical issues, there is always somebody worse off. Thanks, Before I made you in the womb, I knew you....God. 20 months old, microcephaly, bilateral ptosis (repaired 1/04), GERD (and associated eating challenges), bilateral club feet (tenatomy 11/03 & 12/04), heart murmur, left kidney: hydronephrosis due to Grade V reflux, right kidney: low functioning due to cysts on upper 20%, undescended testes (corrected 9/04), possible milk allergy, low muscle tone, global delays, undiagnosed syndrome... > > Hi everyone, > When Tommy was born I kept telling myself that it was only clubfoot > and fixable. To this day I still consider myself so lucky for having > such a small burden to bear. I sometimes check the babycenter (babies > with birth defects) message board to see if anyone is looking for > help with clubfoot and always thank God that I am not dealing with > the life threatening illnesses some of those babies have. One Mom > lost her son recently when his trach came out during a nap and he > suffocated. I was crying reading the posts and actually feel lucky > to have a baby with clubfoot. There are so many things that could > have gone wrong while he was cooking in my belly and if wearing these > shoes with a bar is the hardest thing he will ever have to get > through then...thank God. > Jsut wanted to share. > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I just had to comment on this - I remember when I found out that Zach was going to be born with clubfoot. I really was devestated. I remember the kicks that I felt after finding out he was going to be born with an " abnormality " weren't as joyous as they once were, instead they were a reminder to me that something was wrong. After I did research on clubfoot, and found that it was easily treated (I still kind of laugh at the word - " easily " - although in relation to other problems that could have existed, it really is easy) and having fed myself with so much information, the kicks slowly became happy reminders that I would soon hold this baby. It wasn't until we stayed at the Mc House in IC during our treatment that I realized how much WORSE it really could have been. It was at that moment that I counted my blessings and realized that what every doctor was saying to me " Of any birth defect, this is one you want " they were right. Holly Zachary 7/27/02 Right C/F Treated By Dr. Ponseti DBB Nights Only > > > > Hi everyone, > > When Tommy was born I kept telling myself that it was only > clubfoot > > and fixable. To this day I still consider myself so lucky for > having > > such a small burden to bear. I sometimes check the babycenter > (babies > > with birth defects) message board to see if anyone is looking for > > help with clubfoot and always thank God that I am not dealing with > > the life threatening illnesses some of those babies have. One Mom > > lost her son recently when his trach came out during a nap and he > > suffocated. I was crying reading the posts and actually feel > lucky > > to have a baby with clubfoot. There are so many things that could > > have gone wrong while he was cooking in my belly and if wearing > these > > shoes with a bar is the hardest thing he will ever have to get > > through then...thank God. > > Jsut wanted to share. > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 My first trip to the Mc house, was just nearly 2 years old - and silly me, I was expecting a bunch of other kids to be there with him..... for several days I thought it weird he was the only kid there. Then it dawned on me....all the other kids were in the hospital. I felt so sad for those other parents who couldn't stay with their children. I also noticed parents leaving out at 4 or 5 in the morning, to go to the hospital to spend the day with their babies...so on Mother's Day, and I stayed up real late baking muffins, etc., making pitchers of juice, and a big poster we colored together saying Happy Mother's Day. About 3 o'clock in the morning I put on the coffee pots and set out the food with the poster. I felt pretty bad I was a momma spending a day with my child " normally " when all the other momma's there were spending the day in the hospital with their child. s. Re: Thank God it's only clubfoot! I just had to comment on this - I remember when I found out that Zach was going to be born with clubfoot. I really was devestated. I remember the kicks that I felt after finding out he was going to be born with an " abnormality " weren't as joyous as they once were, instead they were a reminder to me that something was wrong. After I did research on clubfoot, and found that it was easily treated (I still kind of laugh at the word - " easily " - although in relation to other problems that could have existed, it really is easy) and having fed myself with so much information, the kicks slowly became happy reminders that I would soon hold this baby. It wasn't until we stayed at the Mc House in IC during our treatment that I realized how much WORSE it really could have been. It was at that moment that I counted my blessings and realized that what every doctor was saying to me " Of any birth defect, this is one you want " they were right. Holly Zachary 7/27/02 Right C/F Treated By Dr. Ponseti DBB Nights Only > > > > Hi everyone, > > When Tommy was born I kept telling myself that it was only > clubfoot > > and fixable. To this day I still consider myself so lucky for > having > > such a small burden to bear. I sometimes check the babycenter > (babies > > with birth defects) message board to see if anyone is looking for > > help with clubfoot and always thank God that I am not dealing with > > the life threatening illnesses some of those babies have. One Mom > > lost her son recently when his trach came out during a nap and he > > suffocated. I was crying reading the posts and actually feel > lucky > > to have a baby with clubfoot. There are so many things that could > > have gone wrong while he was cooking in my belly and if wearing > these > > shoes with a bar is the hardest thing he will ever have to get > > through then...thank God. > > Jsut wanted to share. > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 This is a good perspective. When Ava was born, my mom really took it hard. She called my aunt (her sister) to tell her, and got upset when she was telling her about the CF. My aunt was like " ARE YOU KIDDING ME??? " Then proceeded to tell her about a friend who's kid had CF & how cute she thought his feet were, and another friend who's kid had cleft palate, and how awful that was and all the surgeries he had to have and all...But at the same time, I feel ALOT more nervous now. It's like, you know you're not *perfect*, and that anytime you're pg something could happen, but after 2 healthy kids, I didn't hardly even worry. Now that Ava has the CF, I feel like I've lost that " innocence " ...or I guess I should say " ignorance " ! I find myself examining my other kids, or friend's kids for signs of something that might be *wrong*...not that the club foot changes anything for them...I'm not sure I'm explaining myself correctly! But yesterday my older daughter had a checkup, and when he checked her spine I was thinking " Oh no, I'll bet she has scoliosis " whereas before I'd have been thinking " my what a cute little back she has " . I caught myself thinking that, and I try to stop it. Right now I have 4 good friends who are pg (including my SIL) and I feel like I have to constantly make a conscious effort to not tell them all the statistics about club foot and Amniotic Banding...and blah blah blah...because I don't want to cause them to worry. But it's like I keep waiting for the proverbial " other shoe to drop " ...like what else is going to happen now? Oh well, sorry this rambled on and on... , mommy of: Guinevere, on, Ava 8/4/04 RCF DBB 16-18/7 > > > > Hi everyone, > > When Tommy was born I kept telling myself that it was only > clubfoot > > and fixable. To this day I still consider myself so lucky for > having > > such a small burden to bear. I sometimes check the babycenter > (babies > > with birth defects) message board to see if anyone is looking for > > help with clubfoot and always thank God that I am not dealing with > > the life threatening illnesses some of those babies have. One Mom > > lost her son recently when his trach came out during a nap and he > > suffocated. I was crying reading the posts and actually feel > lucky > > to have a baby with clubfoot. There are so many things that could > > have gone wrong while he was cooking in my belly and if wearing > these > > shoes with a bar is the hardest thing he will ever have to get > > through then...thank God. > > Jsut wanted to share. > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 We are lucky! I consider myself lucky (most of the time), and my son has had to deal with other things as well. He had surgery for an imperforated anus 16 hours after he was born. Talk about nervous. Then he had trouble breathing and his heart rate dropped really low(While I was holding him!). They took him to the OR again to look at his airway and dilated it. He is still faced with 2 more surgeries for hypospadias and chordee, but shouldn't have any problems. We are just worried he will have trouble breathing. With all of this and the clubfeet, we still feel blessed that everything will be fixed when he is young, and he won't have much to deal with as he gets older! 11/19/04 Re: Thank God it's only clubfoot! Our son was born 6 and half weeks early and when they told us about his feet, I considered us very lucky that this was his only obstacle. Even with our recent problems with the DDB, treating clubfoot is easy compared to what could have been. My husband is a job coach for DD adults so we are well-aware of all of the possible problems children can be born with. Clubfoot is so minor compared to the 'clients' my husbands works with on a daily basis! And if that wasn't enough, we also have friends who recently had a baby boy (born when Aleksander was due!) who was born with imperforate anus and is undergoing several surgeries to connect things properly. He also has nerves that are growing around his spine and needs constant evaluations and procedures to prevent that from recurring. > > > > Hi everyone, > > When Tommy was born I kept telling myself that it was only > clubfoot > > and fixable. To this day I still consider myself so lucky for > having > > such a small burden to bear. I sometimes check the babycenter > (babies > > with birth defects) message board to see if anyone is looking for > > help with clubfoot and always thank God that I am not dealing with > > the life threatening illnesses some of those babies have. One Mom > > lost her son recently when his trach came out during a nap and he > > suffocated. I was crying reading the posts and actually feel > lucky > > to have a baby with clubfoot. There are so many things that could > > have gone wrong while he was cooking in my belly and if wearing > these > > shoes with a bar is the hardest thing he will ever have to get > > through then...thank God. > > Jsut wanted to share. > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Like everyone is saying, yes it could have been a lot worse and I am also thankful that is wasn't. But now, after Christian has been treated and we are on the road to keeping his perfect little feet I find myself thinking (as crazy as this sounds) that one day my kids are going to be married and when they tell me that their wives are pregnant I know the first thing that will go through my mind is they both have a higher risk of having a baby with clubfoot. Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB (nights only) Re: Thank God it's only clubfoot! This is a good perspective. When Ava was born, my mom really took it hard. She called my aunt (her sister) to tell her, and got upset when she was telling her about the CF. My aunt was like " ARE YOU KIDDING ME??? " Then proceeded to tell her about a friend who's kid had CF & how cute she thought his feet were, and another friend who's kid had cleft palate, and how awful that was and all the surgeries he had to have and all...But at the same time, I feel ALOT more nervous now. It's like, you know you're not *perfect*, and that anytime you're pg something could happen, but after 2 healthy kids, I didn't hardly even worry. Now that Ava has the CF, I feel like I've lost that " innocence " ...or I guess I should say " ignorance " ! I find myself examining my other kids, or friend's kids for signs of something that might be *wrong*...not that the club foot changes anything for them...I'm not sure I'm explaining myself correctly! But yesterday my older daughter had a checkup, and when he checked her spine I was thinking " Oh no, I'll bet she has scoliosis " whereas before I'd have been thinking " my what a cute little back she has " . I caught myself thinking that, and I try to stop it. Right now I have 4 good friends who are pg (including my SIL) and I feel like I have to constantly make a conscious effort to not tell them all the statistics about club foot and Amniotic Banding...and blah blah blah...because I don't want to cause them to worry. But it's like I keep waiting for the proverbial " other shoe to drop " ...like what else is going to happen now? Oh well, sorry this rambled on and on... , mommy of: Guinevere, on, Ava 8/4/04 RCF DBB 16-18/7 > > > > Hi everyone, > > When Tommy was born I kept telling myself that it was only > clubfoot > > and fixable. To this day I still consider myself so lucky for > having > > such a small burden to bear. I sometimes check the babycenter > (babies > > with birth defects) message board to see if anyone is looking for > > help with clubfoot and always thank God that I am not dealing with > > the life threatening illnesses some of those babies have. One Mom > > lost her son recently when his trach came out during a nap and he > > suffocated. I was crying reading the posts and actually feel > lucky > > to have a baby with clubfoot. There are so many things that could > > have gone wrong while he was cooking in my belly and if wearing > these > > shoes with a bar is the hardest thing he will ever have to get > > through then...thank God. > > Jsut wanted to share. > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 , I think I know what you mean. Since Sammy was born I constantly worry about what I'm going to find wrong w/ Jenna. I am also paranoid about having another baby -- I'm 37 so I think about stuff like, Sammy only had clubfoot, but what could happen with the next one since I'd be even older then...blah, blah, blah... I guess you can talk yourself crazy on just about any topic... > > > > > > Hi everyone, > > > When Tommy was born I kept telling myself that it was only > > clubfoot > > > and fixable. To this day I still consider myself so lucky for > > having > > > such a small burden to bear. I sometimes check the babycenter > > (babies > > > with birth defects) message board to see if anyone is looking > for > > > help with clubfoot and always thank God that I am not dealing > with > > > the life threatening illnesses some of those babies have. One > Mom > > > lost her son recently when his trach came out during a nap and > he > > > suffocated. I was crying reading the posts and actually feel > > lucky > > > to have a baby with clubfoot. There are so many things that > could > > > have gone wrong while he was cooking in my belly and if wearing > > these > > > shoes with a bar is the hardest thing he will ever have to get > > > through then...thank God. > > > Jsut wanted to share. > > > > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Ahh... but by time our children have children *hopefully* all the great docs like Dr. Dobbs will have solved the genetic mystery of clubfoot and will be able to prevent it or at least correct it w/out all the stuff our kids are going through... > > > > > > Hi everyone, > > > When Tommy was born I kept telling myself that it was only > > clubfoot > > > and fixable. To this day I still consider myself so lucky for > > having > > > such a small burden to bear. I sometimes check the babycenter > > (babies > > > with birth defects) message board to see if anyone is looking > for > > > help with clubfoot and always thank God that I am not dealing > with > > > the life threatening illnesses some of those babies have. One > Mom > > > lost her son recently when his trach came out during a nap and > he > > > suffocated. I was crying reading the posts and actually feel > > lucky > > > to have a baby with clubfoot. There are so many things that > could > > > have gone wrong while he was cooking in my belly and if wearing > > these > > > shoes with a bar is the hardest thing he will ever have to get > > > through then...thank God. > > > Jsut wanted to share. > > > > > > > > > Tommy Lee 4/23/04 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 , How is your son doing now, with regards to the imperforated anus? A close friend of ours has a son with the same problem. He has the colostomy bag now and has several surgeries ahead of him. I've read that this can involve several surgeries, but like you said, things are generally taken care of while the child is still young. -- > > > > > > Hi everyone, > > > When Tommy was born I kept telling myself that it was only > > clubfoot > > > and fixable. To this day I still consider myself so lucky for > > having > > > such a small burden to bear. I sometimes check the babycenter > > (babies > > > with birth defects) message board to see if anyone is looking for > > > help with clubfoot and always thank God that I am not dealing > with > > > the life threatening illnesses some of those babies have. One > Mom > > > lost her son recently when his trach came out during a nap and he > > > suffocated. I was crying reading the posts and actually feel > > lucky > > > to have a baby with clubfoot. There are so many things that > could > > > have gone wrong while he was cooking in my belly and if wearing > > these > > > shoes with a bar is the hardest thing he will ever have to get > > > through then...thank God. > > > Jsut wanted to share. > > > > > > > > > Tommy Lee 4/23/04 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 , I'm happy to hear your son only needed one surgery. It sounds like our friend's baby will need several. I guess everything is out of whack with his digestive tract and he has the more severe condition. -- > > > > > > > > Hi everyone, > > > > When Tommy was born I kept telling myself that it was only > > > clubfoot > > > > and fixable. To this day I still consider myself so lucky > for > > > having > > > > such a small burden to bear. I sometimes check the babycenter > > > (babies > > > > with birth defects) message board to see if anyone is looking > for > > > > help with clubfoot and always thank God that I am not dealing > > with > > > > the life threatening illnesses some of those babies have. > One > > Mom > > > > lost her son recently when his trach came out during a nap > and he > > > > suffocated. I was crying reading the posts and actually feel > > > lucky > > > > to have a baby with clubfoot. There are so many things that > > could > > > > have gone wrong while he was cooking in my belly and if > wearing > > > these > > > > shoes with a bar is the hardest thing he will ever have to > get > > > > through then...thank God. > > > > Jsut wanted to share. > > > > > > > > > > > > Tommy Lee 4/23/04 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 , There are varying degrees of the condition. My son was lucky to only require one surgery. Everything was in place, he just didn't have an opening, or it was partially opened. According to our surgeon most babies do very well after surgery. He has not had any problems as a result of the surgery. I was hardest on us I believe! Tell your friend good luck, and I am sure everything will go wonderfully! It is just nerve racking! Re: Thank God it's only clubfoot! , How is your son doing now, with regards to the imperforated anus? A close friend of ours has a son with the same problem. He has the colostomy bag now and has several surgeries ahead of him. I've read that this can involve several surgeries, but like you said, things are generally taken care of while the child is still young. -- > > > > > > Hi everyone, > > > When Tommy was born I kept telling myself that it was only > > clubfoot > > > and fixable. To this day I still consider myself so lucky for > > having > > > such a small burden to bear. I sometimes check the babycenter > > (babies > > > with birth defects) message board to see if anyone is looking for > > > help with clubfoot and always thank God that I am not dealing > with > > > the life threatening illnesses some of those babies have. One > Mom > > > lost her son recently when his trach came out during a nap and he > > > suffocated. I was crying reading the posts and actually feel > > lucky > > > to have a baby with clubfoot. There are so many things that > could > > > have gone wrong while he was cooking in my belly and if wearing > > these > > > shoes with a bar is the hardest thing he will ever have to get > > > through then...thank God. > > > Jsut wanted to share. > > > > > > > > > Tommy Lee 4/23/04 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Sounds good to me ! Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB (nights only) Re: Thank God it's only clubfoot! Ahh... but by time our children have children *hopefully* all the great docs like Dr. Dobbs will have solved the genetic mystery of clubfoot and will be able to prevent it or at least correct it w/out all the stuff our kids are going through... > > > > > > Hi everyone, > > > When Tommy was born I kept telling myself that it was only > > clubfoot > > > and fixable. To this day I still consider myself so lucky for > > having > > > such a small burden to bear. I sometimes check the babycenter > > (babies > > > with birth defects) message board to see if anyone is looking > for > > > help with clubfoot and always thank God that I am not dealing > with > > > the life threatening illnesses some of those babies have. One > Mom > > > lost her son recently when his trach came out during a nap and > he > > > suffocated. I was crying reading the posts and actually feel > > lucky > > > to have a baby with clubfoot. There are so many things that > could > > > have gone wrong while he was cooking in my belly and if wearing > > these > > > shoes with a bar is the hardest thing he will ever have to get > > > through then...thank God. > > > Jsut wanted to share. > > > > > > > > > Tommy Lee 4/23/04 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I know what you mean, I have that book " what to expect (when you are pregnant)- the toddler years " and there is a whole section on common birth defects etc. Some of those numbers are absolutely scary!!!! They list clubfoot as one in 800. & Grace > > > > > > Hi everyone, > > > When Tommy was born I kept telling myself that it was only > > clubfoot > > > and fixable. To this day I still consider myself so lucky for > > having > > > such a small burden to bear. I sometimes check the babycenter > > (babies > > > with birth defects) message board to see if anyone is looking > for > > > help with clubfoot and always thank God that I am not dealing > with > > > the life threatening illnesses some of those babies have. One > Mom > > > lost her son recently when his trach came out during a nap and > he > > > suffocated. I was crying reading the posts and actually feel > > lucky > > > to have a baby with clubfoot. There are so many things that > could > > > have gone wrong while he was cooking in my belly and if wearing > > these > > > shoes with a bar is the hardest thing he will ever have to get > > > through then...thank God. > > > Jsut wanted to share. > > > > > > > > > Tommy Lee 4/23/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2005 Report Share Posted March 11, 2005 , When is your little one due again? To be honest, I forgot you were pregnant. Now that you mentioned it again, I remember talking about it a while back. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2005 Report Share Posted March 13, 2005 He's due June 11th -------------- Original message -------------- , When is your little one due again? To be honest, I forgot you were pregnant. Now that you mentioned it again, I remember talking about it a while back. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2005 Report Share Posted March 14, 2005 Yeah, a summer baby; well I guess technically Spring. I hope your 3rd trimester is a smooth sailin'. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
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