Texture issues

April 18, 2001

My son has moderate to severe issues with textures, mainly food texture

aversion.. We purchased some GFCF bread from the local Whole Foods store and

while it tastes great, the texture is stopping from eating it.. Today

he took a mouthful of sandwich (which, if he hadn't liked the taste we

wouldn't have gotten that far), chewed it up, but then decided that the

texture wasn't right and spat it out on the floor.. Anyone have any thoughts

or tips on how to get him to eat it? Since this diet is showing that it's

working for him, I don't see any time in the foreseeable future where he

won't be needing this kind of bread. I can't have him doing this all the

time..

I am working with oral stim therapy with him using toothettes. Any

other suggestions?

Thanks in advance..

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

6lb 8 oz and 20 " long at birth

28 lb 8 oz and 38.5 " long on 3/27/01

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

5lb 4oz, 19 " long at birth

24 lb 14 oz, 35 " long on 3/27/01

~~~~~~~~~~~~~~~~~

http://www.butcherfamily.freeservers.comhttp://www.butcherfamily.freeser\

vers.com

April 18, 2001

In a message dated 04/18/2001 11:32:49 AM Eastern Daylight Time,

susan@... writes:

> you mentioned oral stim therapy using something called toothettes ... what

> is that, where do you

> get it, i'm VERY interested in this.

>

Thanks for the ideas.. I'll definitely try them out..

As for the toothette therapy, I learned this from his speech therapist.. The

toothette is a little green sponge on a stick.. I use this to press and rub

on his lips, on the inside of his cheeks, and the roof of his mouth. She

asks me to do his tongue, but as of yet hasn't he tolerated it long enough

for me to do that! LOL.. You can get the toothettes from Home Health Care

suppliers (like Walgreens/Osco Drug) but I know that you can also do this

therapy with a rough washcloth. We do it before each meal.

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

6lb 8 oz and 20 " long at birth

28 lb 8 oz and 38.5 " long on 3/27/01

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

5lb 4oz, 19 " long at birth

24 lb 14 oz, 35 " long on 3/27/01

~~~~~~~~~~~~~~~~~

http://www.butcherfamily.freeservers.comhttp://www.butcherfamily.freeser\

vers.com

April 18, 2001

In a message dated 04/18/2001 12:50:42 PM Eastern Daylight Time,

mamasquash@... writes:

> We use Nuk's for . You can get the set of 3 at Target...in the

> baby section.

I saw those, but wondered how hard it woudl be to get in J's mouth.. He

clenches his jaw and purses his lips and sometimes it's all I can do to get

the little bit of sponge and that narrow stick in his mouth.. Maybe when he

relaxes a little better I'll get that set..

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

6lb 8 oz and 20 " long at birth

28 lb 8 oz and 38.5 " long on 3/27/01

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

5lb 4oz, 19 " long at birth

24 lb 14 oz, 35 " long on 3/27/01

~~~~~~~~~~~~~~~~~

http://www.butcherfamily.freeservers.comhttp://www.butcherfamily.freeser\

vers.com

April 18, 2001

> In a message dated 04/18/2001 11:32:49 AM Eastern Daylight Time,

> susan@w... writes:

>

> > you mentioned oral stim therapy using something called

toothettes ... what

> > is that, where do you

> > get it, i'm VERY interested in this.

> >

>

> Thanks for the ideas.. I'll definitely try them out..

>

> As for the toothette therapy, I learned this from his speech

therapist.. The

> toothette is a little green sponge on a stick.. I use this to press

and rub

> on his lips, on the inside of his cheeks, and the roof of his

mouth. She

> asks me to do his tongue, but as of yet hasn't he tolerated it long

enough

> for me to do that! LOL.. You can get the toothettes from Home

Health Care

> suppliers (like Walgreens/Osco Drug) but I know that you can also

do this

> therapy with a rough washcloth. We do it before each meal.

>

We use Nuk's for . You can get the set of 3 at Target...in the

baby section. We brush his lips, tongue, inside cheeks, etc. We

sometimes put peanut butter on it for a treat....this works really

well for tolerating texture....and in increases his language

range of sounds.

Tricia (Mommy to who is 3 and PDD)

April 18, 2001

heather,

have you tried toasting it? my kid only likes crunchy stuff and toasting has

helped him avoid the

chewed-up spats we used to deal with daily. just a suggestion. i agree that

bread is a staple and

you'll have to figure something out. we also made him french toast with his

bread and that gives

him extra protein too. he likes the syrup dipping thing too.

you mentioned oral stim therapy using something called toothettes ... what is

that, where do you

get it, i'm VERY interested in this.

thanks-

susan abney

(mom of cooper 5.5 PDD-NOS and whit 17months NT)

RT2@... wrote:

> My son has moderate to severe issues with textures, mainly food texture

> aversion.. We purchased some GFCF bread from the local Whole Foods store and

> while it tastes great, the texture is stopping from eating it.. Today

> he took a mouthful of sandwich (which, if he hadn't liked the taste we

> wouldn't have gotten that far), chewed it up, but then decided that the

> texture wasn't right and spat it out on the floor.. Anyone have any thoughts

> or tips on how to get him to eat it? Since this diet is showing that it's

> working for him, I don't see any time in the foreseeable future where he

> won't be needing this kind of bread. I can't have him doing this all the

> time..

> I am working with oral stim therapy with him using toothettes. Any

> other suggestions?

>

> Thanks in advance..

>

> Married to Dan

> Mom to:

> Dana (3/4/98)

> 36 week preemie, now a spirited 3 y/o

> 6lb 8 oz and 20 " long at birth

> 28 lb 8 oz and 38.5 " long on 3/27/01

> ~~~~~and~~~~~~

> (3/26/99)

> 33 week preemie, now a 2 y.o. growing boy!

> 5lb 4oz, 19 " long at birth

> 24 lb 14 oz, 35 " long on 3/27/01

> ~~~~~~~~~~~~~~~~~

> http://www.butcherfamily.freeservers.comhttp://www.butcherfamily.freeser\

vers.com

>

April 19, 2001

heather,

i've been thinking some more about your bread problem ... when i first started

my son on this

diet, i bought a lot of pre-made loaves of bread, most of which were more like

quick-breads in

texture. you know, like banana bread my mom used to make. anyway, i found that

the Ener-G breads

(we like Tapioca Bread and the Brown Rice Bread) were so light and much like the

texture of

regular breads. we use them every day in the lunchbox and every morning for

toast. they also make

great (and pretty) little hamburger buns. closest GFCF thing i've ever seen to

regular white

bread. my kid would never eat the heavy slices of bread, he'd spit the mush out

every time. i

tried them too and love the Ener-G brand breads. i also tried making my own

bread. what a joke!

after he caught me crying in the kitchen over another bread failure, my husband

told me to go buy

loaves of bread and never worry about trying to make a decent loaf of bread

again!

i'll shut up now!