Roll Call

[Guest guest]

Hi everyone,

A couple of weeks ago I set up a poll to ask if we should have a roll

call. The majority of voters voted yes, we should.

So, please report in with:

1). First Name, Last Initial -- we have a lot of Debby's and Jodi's

on the list.

2). Where you live, City and State only.

3). How many children you have & how many with RSS. Please include

ages, heights and weight especially for the children with RSS.

4). Birth height, weight, premature and by how much.

5). Medication(s), feeding tube and how long they have been on it.

6). Doctor or hospital treating your RSS child(ren). This is really

useful for new members.

Optional -- actually the whole thing is optional

7). when diagnosed.

8). Anything else you want to add.

I'll go first.

1).My name is Ken M. -- not too many of those on the list.

2). We live in Hollis, NH about 50 mile north west of Boston.

3). We have one child, and he has RSS. He will be 7 on April

30. He is 43 " tall and weighs 35 lbs.

4). He was born 1 month premature, delivered by C section. He was

4lbs 5 oz and 17 " long at birth. He was fed by a g-tube for 3 weeks

but then ate on his own and came home when he was a month old.

5). He is on growth hormone and has been since July 2002. We just

stopped giving him periactin but it looks like we will need to start

that up again. He does not need a feeding tube but we are always just

one step away from that.

6). is being treated for his RSS by Dr. Alyne Ricker at Joslin

Diabettes Clinc, which is just across the street from Children's

Hospital in Boston.

7). He was diagnosed when he was about a year old by Dr. Ricker. It

was confirmed by a geneticist, Dr. , also of Childrens' hospital.

I hope this covers everything.

Ken M