Roll Call - C.

[Guest guest]

Greetings! Thank you all for posting...especially those of you we

don't hear from regularly. That's me too! :-) It's great to learn

who's out there and how close we are in proximity to one another and

how close our kids are in age, etc., etc. Here I go:

1. , C.

2. Antioch, California (that's in the " Bay Area " about 45 miles East

of San Francisco).

3. , 4 1/2 yrs old non-RSS, and 8 1/2 months, 10

lbs. and about 24 inches.

4. Born 7/3/03 at 39 weeks gestation. 3 lbs., 14 oz and 15 5/8

inches. Delivered by c-section due to fetal heart decelerations and

decreased amniotic fluid.

5. Zantac is all he has been prescribed right now. Sees GI doctor

for the first time next week. Seems to be an " eater " , at least for

now..and I'm keeping my fingers crossed. Spent a week in the

hospital last month with RSV.

6. Dr. Garwin Soe, Pediatrician, Kaiser Permanente Antioch, Dr.

Archana Mathur, Ped. Endocrinology - Kaiser Walnut Creek, Dr.

ce Baskin, Ped. Urology, UCSF (for hypospadias), & Dr. Finley -

Ped. Gastroenterology, Kaiser Walnut Creek

7. Diagnosed 3 days after birth by Dr. Baker, Medical Geneticist,

Oakland Kaiser. spent 8 days in the hospital and was released

at 3 lbs 10 oz when the doctors realized he would not gain weight at

a " normal rate " and would probably do better at home. 's

diagnosis was based on typical features or RSS (IUGR/SGA,

clinodactyly, assymetry, carniofacial features, hypospadias, and

syndactyly of toes 2&3)

8. The only other thing I'd like to add is how thankful I am for

this site and for all the people who make it such a supportive

place. Look forward to meeting you at the convention (my first) this

summer!!

God Bless,

C.

[Guest guest]

What a blessing to get such an early diagnosis! Quetzie was in the hospital

over 5 weeks, they were doing little more than watching her grow...painfully

slowly. Finally when we were supposed to take her home, the doc said, well we

would like her to gain a little more first. Thankfully, my husband very

firmly told the doctor " Look, she is our daughter, we love her, we will take

very

good care of her, just let us bring her home. " Hesitantly, the doctor

agreed...we took her home, and she did wonderfully of course:) A diagnosis

earlier

would have saved us weeks of hospital visits and agony, because otherwise whe

was in perfect health.