Re: Low-Grade Fevers and Mito?/Laurie

[Guest guest]

Laurie,

I agree with you. I know that my body is a good indicator as to how I

feel. I never used to

use a thermometer but now that I have a PICC line and a J tube when I

get sick or just not feeling right the first thing my doctors ask

me is " what is your temperature.? " I can't very well say " I don't

know, but I know I am sick and I know I have a fever "

And I can say that everytime I don't feel well and take my

temperature it confirms what my body is telling me.

If you are sick and call your doctor and he/she asks you what your

temperature is, what do you say? Most of us know our bodies better

than anyone or any thermometer but when

dealing with doctors that doesn't always fly. hehehe!!!

Have a good day!!

Hugs,

Ann-Marie

At 03:18 PM 10/27/2005, you wrote:

>Shayna and Ann-Marie

>

>Body temperature is regulated by the autonomic nervous system which is

>often affected by mito. It can be high or low. I threw my thermometer

>away as it was not a good indicator of illness for me. I go by how I

>feel instead. Of course, this doesn't apply to everyone.

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[Guest guest]

Ann Marie

I just tell that my temperature fluctuates because of dysautonomia and

therefore I haven't taken it. If they push further, I tell them I

don't have a thermometer.

If I had tubes coming in and out of me as you do, I would probably try

to keep better track of it.

laurie

>

>

> Laurie,

>

> I agree with you. I know that my body is a good indicator as to how I

> feel. I never used to

> use a thermometer but now that I have a PICC line and a J tube when I

> get sick or just not feeling right the first thing my doctors ask

> me is " what is your temperature.? " I can't very well say " I don't

> know, but I know I am sick and I know I have a fever "

>

> And I can say that everytime I don't feel well and take my

> temperature it confirms what my body is telling me.

>

> If you are sick and call your doctor and he/she asks you what your

> temperature is, what do you say? Most of us know our bodies better

> than anyone or any thermometer but when

> dealing with doctors that doesn't always fly. hehehe!!!

>

> Have a good day!!

> Hugs,

> Ann-Marie

>

>

>

>

> At 03:18 PM 10/27/2005, you wrote:

> >Shayna and Ann-Marie

> >

> >Body temperature is regulated by the autonomic nervous system which is

> >often affected by mito. It can be high or low. I threw my thermometer

> >away as it was not a good indicator of illness for me. I go by how I

> >feel instead. Of course, this doesn't apply to everyone.

>

>

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[Guest guest]

My temperature and my kids' temperatures run around 97 F normally.

Even 99 F feels like a fever for us. The other interesting thing is

that we have all had infections (sinus infections, bronchitis,

pneumonia, and ear infections, to name a few) without running a fever

(not above 98 F). Some doctors think that automatically means no

infection, but it's not the case for us. At one point, my daughter

had many streaks show up on her lung xray, but had a 97 F temp in the

ER. Luckily they didn't rule out pneumonia because of her " low "

temp, her only symptom was rapid breathing but was happy as a baby

gets.

Although IMHO a temp above 100 F should be a concern, just because it

is below 100 F doesn't mean nothing is happening infection or

otherwise. I'm not a medical doctor, etc.

Take care,

RH

>

> Ann Marie

>

> I just tell that my temperature fluctuates because of dysautonomia

and

> therefore I haven't taken it. If they push further, I tell them I

> don't have a thermometer.

>

> If I had tubes coming in and out of me as you do, I would probably

try

> to keep better track of it.

>

> laurie

[Guest guest]

Mito patients often have autonomic dysfunction. This

may make it difficult for your body to control body

temperature. So, you can have a fever and not be sick

and be really sick without a fever at all.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

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[Guest guest]

Hi RH,

My temperature also runs around 97 F So when my temperature is 99 F

or above I know I am sick or on my way to becoming sick.

You are so right having a temperature of 100 F should be a concern

but one that is lower shouldn't be disregarded. Everyone's body

reacts differently when sick.

Ann-Marie

At 10:07 PM 10/27/2005, you wrote:

>My temperature and my kids' temperatures run around 97 F normally.

>Even 99 F feels like a fever for us. The other interesting thing is

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