Re: Braeden in hospital & blue pamphlet

[Guest guest]

Braeden is in our prayers and we're hoping for a quick recovery. I

am glad that the MAGIC RSS brochure (the blue pamphlet) helps you as

much as it has for me and other families.

For those of you who are new to RSS and to MAGIC, please please

please make sure that you have at least 2 copies of the blue RSS

pamphlet. Keep one in the glove compartment of your car, and the

other at home. In an emergency, this pamphlet gives a very good

description of what RSS is, and also the IV glucose information, and

it also gives Dr. Harbison's name and hospital information.

If you need a copy, you can email MAGIC at mary@ magicfoundation.org

or call tollfree at 800-3MAGIC3.

Salem

> Hi All,

> Just a quick note. I'm sorry I haven't responded to my personal

> emails in the last week. The whole family has been down with a

nasty

> a cold. Of course, it hit Braeden the hardest. I took him to the

> local ER at 5:00am yesterday. I spent 11+ hours in emergency

rooms.

> 4 hours at County, 1 1/2 in the ambulance ride to Children's and

the

> rest at Children's Seattle ER. I think I've only slept 8 hours

> during the last 48 hours. It turns out he has RSV and they are

> concerned about a secondary infection of pneumonia. We even have

had

> Braeden on the monthly Synergis shots to prevent RSV! Although,

one

> of the Doctor's said it could have been much worse if he hadn't

had

> the shots. They could have helped build up his immune system.

>

> Well, we just got a call from the Dr. at Children's and they are

> transferring him to the PICU (He is a little old for the PICU but,

> there is no room in the NICU). The DR.'s want to know if we would

> considering inubating him. We will do what is best for him but,

I'm

> hoping it doesn't come to that. I don't like making decisions when

> I'm so exhausted. Thank goodness for the blue pamphlet! I swear I

> know it word for word but, when your tired and worried and have a

> dozen different people asking you questions, it is easy to forget

> the info. I know the most important thing is the NPO/Dextrose

issues

> but, it helps the doc's see Braeden as a whole child when they

> aren't familiar with RSS. Although, most of the Doc's and nurses

at

> Children's Seattle knew Braeden yesterday. I think it is his red

> hair and smile and this sorry looking washcloth that Braeden loves

> to hold!

>

> Please send prayers and positive vibes our way...

>

> I hope all are well with you and your families and that we get

> through this hospitalization quickly.

>

>

> Saundra, Mom to Braeden (RSS, 18 pounds 28 inches, Prosilic,

> Synergis and G-J, ) and Delaney (Non-rss) 17 month twins