Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 1. S. 2. Manhattan Beach, CA (southern california on the beach just south of Los Angeles) 3. , age 8 (January) RSS; 52lbs and about 52 inches tall and Tyler, age 7 non-RSS (don't know but 75%'tile in height and 25%'tile in weight) 4. Born 1/13/96 at 39 weeks gestation, 5lb 2 oz and 17.5 inches long. They had estimated her prior to be more than 7lbs. Doctor was obviously clueless.... 5. started GH and Periactin in Oct '00 when she was 37 " and 27lbs or so. Added Zantac and Prevacid along the way, and most recently Miralax for constipation. Except for infancy prior to meds for reflux, she has always been a great eater -- just can't get enough calories into her to grow without Periactin. She currently takes in more than 1,800 calories A DAY!!!!! 6. Peds Endo -- Dr. Madeleine Harbison in New York (yes, we fly there every 3 months) -- Mitch Geffner at CHLA when we can't get to NY; Geneticist: Rena Falk at Cedar Sinai (awesome); Peds GI -- Fred Watanabe at CHLA (incredible); Orthopedics - Skaggs, Chief at CHLA; 7. Diagnosed at about 2 years of age by Genetics at Yale Children's Hospital; confirmed at 3 years of age by Genetics at Cedar Sinai in LA; and then again at 4 1/2 years of age by Dr. Harbison (whew, if someone had changed their mind I would have gone crazy) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Can anyone tell me what Dr. H recommends as far as the weigh to height ratio for a child to begin GH therapy? Is it 25% or less? Cindy F. [Cindy Funk] Re: Roll Call - S. 1. S. 2. Manhattan Beach, CA (southern california on the beach just south of Los Angeles) 3. , age 8 (January) RSS; 52lbs and about 52 inches tall and Tyler, age 7 non-RSS (don't know but 75%'tile in height and 25%'tile in weight) 4. Born 1/13/96 at 39 weeks gestation, 5lb 2 oz and 17.5 inches long. They had estimated her prior to be more than 7lbs. Doctor was obviously clueless.... 5. started GH and Periactin in Oct '00 when she was 37 " and 27lbs or so. Added Zantac and Prevacid along the way, and most recently Miralax for constipation. Except for infancy prior to meds for reflux, she has always been a great eater -- just can't get enough calories into her to grow without Periactin. She currently takes in more than 1,800 calories A DAY!!!!! 6. Peds Endo -- Dr. Madeleine Harbison in New York (yes, we fly there every 3 months) -- Mitch Geffner at CHLA when we can't get to NY; Geneticist: Rena Falk at Cedar Sinai (awesome); Peds GI -- Fred Watanabe at CHLA (incredible); Orthopedics - Skaggs, Chief at CHLA; 7. Diagnosed at about 2 years of age by Genetics at Yale Children's Hospital; confirmed at 3 years of age by Genetics at Cedar Sinai in LA; and then again at 4 1/2 years of age by Dr. Harbison (whew, if someone had changed their mind I would have gone crazy) _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Hi Cindy, Yes, Dr H currently recommends not more than 25% weight to height ratio in general (although she is very happy with 10-15%). She did not tell us that needed to be in that ratio for GH, just that due to insulin issues, she doesn't want him going over that percentage. Judith, Steve, (RSS) and (non RSS) 4 year old twins Quote Link to comment Share on other sites More sharing options...
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