Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Hi there again folks 1. S 2. Melbourne, Australia 3. Two children, with Bastian aged 5 with RSS 4. Prem @ 36 wks 5. No medication for anything now and stopped feed tubing @ 2yrs 6. He has been through all the experts, incl geneticists, endocronologists, doctors & surgeons. 7. He was diagnosed at 1YO 8. Major difficulty is a severe speech problem. He is highly intelligent and his learned vocabulary is far, far wider than his expressive vocab as he just can't say the consonants with any degree of clarity. It is so frustrating for him and he is inclined to withdraw when not understood. He gets some speech therapy at school but it is not enough and he uses what we call in Australia a Dynamo, but that computerised devise, although almost unlimited in capacity cannot help if you do not know the context of what Bastian is trying to tell you. Good luck to you all in US and remember that we were/are a member of the coalition of the willing and friends of your President in these troubled times. For a bit of respite you should try and tune in to our football game called Australian Football, which resumes this week after our summer break. Kindest regards Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.