Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Can this condition show up as a change in blood pressure? Or could one's blood pressure be fine and this condition still exist? Thanks, RH > > , > > I have not been diagnosed with a mitochondrial disorder, but I have > something similar to CFS. It has been discovered within the past few > years that all severely ill CFS patients have diastolic cardiomyopathy. > The field of diastology is only a few years old. Diastolic cardiomyopathy > is diagnosed via impedance cardiography and echocardiography with GE's > Vivid 7 machine. In diastolic cardiomyopathy, the ventricle contracts and > ejects just fine, but it does not expand enough to fill with blood. So > the end result is that cardiac output is compromised just as badly as if > there were an ejection fraction, i.e. systolic, problem. As I understand > it, the atrium can enlarge in diastolic cardiomyopathy in an attempt to > force more blood to fill the ventricle. > > Tim > ----------------------------------------------------------------- > I am curious if any of you have been diagnosed with cardiomyopathy. My > ejection fraction is 45% with left atrial enlargement and decreased > left systolic function. My cardiologist says he will not worry about > this unless my ef drops below 30%. I spoke with another doctor who > would diagnose this as cardiomyopathy and would start some type of beta > blocker. I do not want to be on unnecessary meds but this worries me.I > have bouts of tachycardia,palpitations along with shortness of breath > but it's hard to tell if the shortness of breath is related to my weak > respiratory muscles or cardiac as well. Any thoughts would be > appreciated. > Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 , when I was first diagnosed in 1994 I was told I had cardiomyopathy. I was refferres to a wonderful MD at s hopkins (now at Brigham womens in boston), I started on coq10 and am aon a beta blocker but my last few echos they have told me heart is normal size again but I do have some mild left wall thickening. Good luck Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Martha, I'm happy to hear that your heart is improving after all these years. Mostly I'm glad for you, but it gives me some personal hope, too. I'm in the process of being tested for cardiomyopathy--and naturally hoping I don't have it. Are you also on carnitor? I wondered if my low carnitine had something to do with my heart issues since I know that more serious deficiencies than mine can create life-threatening cardiac problems. You seem to be saying that the CoQ10 might have influenced your improvement? Best, Shayna > > , when I was first diagnosed in 1994 I was told I had cardiomyopathy. I > was refferres to a wonderful MD at s hopkins (now at Brigham womens in > boston), I started on coq10 and am aon a beta blocker but my last few echos they > have told me heart is normal size again but I do have some mild left wall > thickening. Good luck > Martha > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2005 Report Share Posted November 12, 2005 Shayna, CoQ10 has been used for years for cardiac issues in the general population too. And yes, carnitine plays a large role in cardiac function too. shaynapearl wrote: >Martha, >I'm happy to hear that your heart is improving after all these >years. Mostly I'm glad for you, but it gives me some personal hope, >too. I'm in the process of being tested for cardiomyopathy--and >naturally hoping I don't have it. Are you also on carnitor? I >wondered if my low carnitine had something to do with my heart >issues since I know that more serious deficiencies than mine can >create life-threatening cardiac problems. You seem to be saying >that the CoQ10 might have influenced your improvement? >Best, >Shayna > > > > > >>, when I was first diagnosed in 1994 I was told I had >> >> >cardiomyopathy. I > > >>was refferres to a wonderful MD at s hopkins (now at Brigham >> >> >womens in > > >>boston), I started on coq10 and am aon a beta blocker but my last >> >> >few echos they > > >>have told me heart is normal size again but I do have some mild >> >> >left wall > > >>thickening. Good luck >>Martha >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2005 Report Share Posted November 12, 2005 Just wanted to chime in on the cardiac/carnitor connection. When I started Carnitor in 1988, my angina completely resolved. Yes, I do have a documented carnitine deficiency. Even with supplements, my esterified fraction of carnitine (the part that has been oxidized and actually used) remains quite low even though free and total carnitine normalized. I still have minor cardiac issues, but definitely got cardiac benefit from Carnitor, in spite of the fact that the carnitine pathway remains partially blocked. Barbara > CoQ10 has been used for years for cardiac issues in the general > population too. And yes, carnitine plays a large role in cardiac > function too. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2005 Report Share Posted November 13, 2005 shayna, I do not have a carnitine def. They did put me on Carnitor for about 6 months when I was first diagnosed, but it really did nothing for me (except run up my bills). I personnaly think coq10 has worked wonders on me and if I don't take for a few days I can feel the change in energy level! Cardia research has shown some substanial benefit to coq10. Good Luck Martha Quote Link to comment Share on other sites More sharing options...
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