fresh biopsy in St. Louis?

[Guest guest]

Hi again everyone,

i had my appt. yesterday with the doc who directs the MDA clinic in a

nearby city. he ordered another muscle biopsy to be done at

washington university in st. louis. he said that they do fresh

biopsies there, but i thought the closest place to central IL that

does fresh bx was cleveland. the test request form from wustl does

have places both for hand delivery of fresh specimens and for

" oxidative (mitochondrial) enzymes " . does anyone know which assays

are available from them?

[Guest guest]

--- kent thegaffer23@...> wrote:

.. he ordered another muscle biopsy to be

> done at

> washington university in st. louis. he said that

> they do fresh

> biopsies there, but i thought the closest place to

> central IL that

> does fresh bx was cleveland.

Unless things have changed very recently St. Louis

doesn't do fresh biopsies. In order to do fresh

biopsies, the testing must start immediately. Many

places say they do fresh biopsies when they do testing

on freshly frozen muscle tissue. I'd ask them to

explain what they mean by fresh and how that compares

to Cleveland or Atlanta. We live close to Peoria. I

don't know that I'd trust a MDA doc in our area.

Mom to the two best kids in the world!

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[Guest guest]

> Hi again everyone,

> i had my appt. yesterday with the doc who directs the MDA clinic in a

> nearby city. he ordered another muscle biopsy to be done at

> washington university in st. louis. he said that they do fresh

> biopsies there, but i thought the closest place to central IL that

> does fresh bx was cleveland. the test request form from wustl does

> have places both for hand delivery of fresh specimens and for

> " oxidative (mitochondrial) enzymes " . does anyone know which assays

> are available from them?

Kent, I agree with . Ask what they mean by fresh. " Hand delivery of

fresh specimens " may simply mean someone in a white coat comes down to OR

from the lab to get your freshly snipped tissue and take it back to the lab

for immediate snap freezing. Or it may mean they actually perform the assays

on fresh tissue now.

" Oxidative (mitochondrial) enzymes " would refer to the assays for the

enzymes in complexes I, II, III, IV in the mitochondrial respiratory chain

aka oxidative phosphorylation.

Washington U does have a stellar reputation in general as a medical

facility. I know two CPT patients who have been diagnosed there in years

past.

Barbara

[Guest guest]

,

thanks for the input. btw, i went to a neuro in Peoria for 5 years

and he was unable to get a diagnosis. recently found out he was an

MDA doc, but the whole time he never mentioned that or mito. this new

one, in Champaign, at least knows what mito is and is considering it

for a diagnosis. I do not know if he knows the protocols for the

assays or not. he is looking at IBM at this point, that is the reason

for the mbx.

kent

>

>

>

> I

> don't know that I'd trust a MDA doc in our area.

>

>

>

>

>

>

>

[Guest guest]

Hi Kent,

I agree with . Way too many centers say they do frsh biopsies when, in

reality, all they do is flash freeze the specimen or look at the gross pathology

fresh. Then they send the specimen off frozen to another center for the RTC

assay. Thia is NOT a real fresh biopsy.

kent thegaffer23@...> wrote:

Hi again everyone,

i had my appt. yesterday with the doc who directs the MDA clinic in a

nearby city. he ordered another muscle biopsy to be done at

washington university in st. louis. he said that they do fresh

biopsies there, but i thought the closest place to central IL that

does fresh bx was cleveland. the test request form from wustl does

have places both for hand delivery of fresh specimens and for

" oxidative (mitochondrial) enzymes " . does anyone know which assays

are available from them?

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