Guest guest Posted April 21, 2001 Report Share Posted April 21, 2001 Hello. I'm , and my 13 yr old son has Down Syndrome, and over the last year, I've realized that he has many of the symptoms associated with autism spectrum disorder. I attended a DAN! conference in Portland last year, and have started my son on the gfcf diet. What I'm noticing, and otheres are noticing also!!, is a little better speech -- more effort, and a little more eye contact, so I think I'm on the right track. I have concerns about food rotation being vegetarian (no meat, fish, eggs) Potatoes, millet, legumes and rice, other than veggies are pretty much it!! Also, I'm ready to have some tests done, but don't really know which direction to go here. I live in Oregon, and think I'd like a Dr. to work with -- what do I do??? We can order the tests from Great Smokey Labs, but as far as knowing specifically which tests are needed and whether there are different interpretations for people who have autism--I don't know....and am hoping to get some help from this group and those who have done this and are familiar with what I'm trying to learn. I get absolutely overwhelmed when I go on the internet for information. Does anyone have experience with the light and sound therapy?? Good results?? I think that's enough to start with!! Oops...one more thing that relevant... for blood work, it's vey difficult to get a vein in him because of heart defect issues. I've heard of emla cream, but I've also heard that it constricts the blood vessels as well, so could actually interfere...He's has 5 heart surgeries! so has fear around medical procedures. My lastest thought, and the one that I finally felt comfortable with was to try one poke, and if we don't get it, to leave and try again when enough time has passed. I don't want him to be more traumatized and unco-operative. I have some concerns about how often the blood work needs to be done, and what can be done with finger pricks. He's never been immunized. I noticed after one of his surgeries, around 3 yrs old, that he lost speech -- it was a very difficult time with back to back surgeries, and at that time that's what I thought it was due to. I don't know about the ingredients in anesthesics, and have wondered about getting the list. So suggestions and information are very welcome here too. I'm aware of leaky gut syndrome, (and he's had the antibiotics!)and have been giving him HMF Forte for awhile, (along with other " drainage " remedies) but I'm pretty sure he still has a problem. Sorry for this being so lengthy. Thanks for being here!! Quote Link to comment Share on other sites More sharing options...
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