Collin needs the taylor spatial frame

[Guest guest]

Well we went to Dr. H Friday and he still feels Collin needs the

taylor spatial frame. He said to call to make the appoinment for the

begining phase when we are ready to decide when. He will first go in

to casts for 4 weeks (2 different casts), then surgery with the frame

I belive for 10-12 weeks, then surgery to remove it, then casts

again, then a KAFO (Knee Ankly Foot Orthotic) for about a year. If

we start by September 2005 right after he turns 4, I figure we can be

done right before he starts school hopefully in 2006. He's is 3.5

years old now. We already have a shore house for August 27 - Sept.

3rd and I really want to wait to let him have that week of fun on the

beach with his cousins, etc. It is the first time we will ever have

a house on the beach so I just want to wait and let him go since we

already rented it and committed to it. When it rains it just

poors!!!! I am just getting ready to go back to work on Monday, I

was sick and out for 6 weeks. I had emergency abdominal surgery for

what I though was a benign cyst, but recently I found out it may be

some type of ovarian cancer, I'm in the process of going for a second

opinion, etc. but if we plan to have more children we have to start

right away, etc. I feel so much stress about going back to work

Monday then saying I need to leave again for Collin's surgery, then

again so I can have a baby which would be a c-section so thats

another 6-10 weeks out of work, and for lots of doctors appoinments

between Collin and me. I will still work during the first 4 weeks of

casts but will need to be with him for at least the first 4-8 weeks

of the device. I feel like my head is going to explode!!!!!!! We

just bought our first home in June and its so hard because we need

both incomes to pay our mortgage, etc... I think if we do his casting

in September, surgery in October, then he would have it removed

around December. I'm hoping to become pregnant and give birth around

December or January so I just don't know how to do this all money

wise. But we really don't have a choice, if we want more kids we have

to do it right away before we can't. If money weren't an issue it

would be much easier, I envy the rich right now!!!! We would have

been fine probably in a few years from now, but its hard because we

are young and still starting out, we haven't really finished

establishing ourselves yet. I feel so bad that Collin needs this

surgery, that was stress enough for us then all this came along.

Sorry I just needed to vent. If anyone has any info. they could pass

on to us about their experience with the taylor spatial frame " super

cast " we would love to hear it. Our e-mail is chele323232@...

Michele

Collin's story at http://www.geocities.com/chele323232

[Guest guest]

Michele,

I don't have any info about the frame, but I just wanted to say how

sorry I am that you're going through all this right now. It sounds

like you're really having a tough time, and anytime you need to vent

we're all here for you. The surgery/frame thing sounds like it's

going to be rough, and the cancer scare can't help. But all I can

say is, " this too shall pass " . I know it's not very helpful, but

whenever I feel overwhelmed, I just think about 10, 15, 20 years

from now (heck, even 1 or 2 years sometimes!) when all this is a

distant memory...think about Collin with his perfect little feetsies

5 years from now as an almost 9 year old on a baseball team, being

cheered on by his almost 5 year old little brother or sister (also

with perfect tootsies!)...hey, while we're at it, imagine your 2nd

opinion comes back great and you're there nice & preggy with baby

#3! I'm feeling for ya babe!!!

, mommy of:

Guinevere, on, Ava 8/4/04 RCF DBB 16-18/7

>

> Well we went to Dr. H Friday and he still feels Collin needs the

> taylor spatial frame. He said to call to make the appoinment for

the

> begining phase when we are ready to decide when. He will first go

in

> to casts for 4 weeks (2 different casts), then surgery with the

frame

> I belive for 10-12 weeks, then surgery to remove it, then casts

> again, then a KAFO (Knee Ankly Foot Orthotic) for about a year.

If

> we start by September 2005 right after he turns 4, I figure we can

be

> done right before he starts school hopefully in 2006. He's is 3.5

> years old now. We already have a shore house for August 27 -

Sept.

> 3rd and I really want to wait to let him have that week of fun on

the

> beach with his cousins, etc. It is the first time we will ever

have

> a house on the beach so I just want to wait and let him go since

we

> already rented it and committed to it. When it rains it just

> poors!!!! I am just getting ready to go back to work on Monday, I

> was sick and out for 6 weeks. I had emergency abdominal surgery

for

> what I though was a benign cyst, but recently I found out it may

be

> some type of ovarian cancer, I'm in the process of going for a

second

> opinion, etc. but if we plan to have more children we have to

start

> right away, etc. I feel so much stress about going back to work

> Monday then saying I need to leave again for Collin's surgery,

then

> again so I can have a baby which would be a c-section so thats

> another 6-10 weeks out of work, and for lots of doctors

appoinments

> between Collin and me. I will still work during the first 4 weeks

of

> casts but will need to be with him for at least the first 4-8

weeks

> of the device. I feel like my head is going to explode!!!!!!! We

> just bought our first home in June and its so hard because we need

> both incomes to pay our mortgage, etc... I think if we do his

casting

> in September, surgery in October, then he would have it removed

> around December. I'm hoping to become pregnant and give birth

around

> December or January so I just don't know how to do this all money

> wise. But we really don't have a choice, if we want more kids we

have

> to do it right away before we can't. If money weren't an issue it

> would be much easier, I envy the rich right now!!!! We would have

> been fine probably in a few years from now, but its hard because

we

> are young and still starting out, we haven't really finished

> establishing ourselves yet. I feel so bad that Collin needs this

> surgery, that was stress enough for us then all this came along.

> Sorry I just needed to vent. If anyone has any info. they could

pass

> on to us about their experience with the taylor spatial

frame " super

> cast " we would love to hear it. Our e-mail is chele323232@y...

> Michele

> Collin's story at http://www.geocities.com/chele323232

[Guest guest]

Oh Michele, I can't believe all that is happening at once. I know you will

get through this and be all the more stronger for having done so. I am sure

you know that you can utilize the Family Leave Act if your employer has more

than 40 employees (I believe its 40). I know that won't help with paying

the mortgage but at least you'll know you still have a job to go back to.

Also, I don't know how large Collin's medical bills will be mounting to but

there is also a fund in New Jersey that will pay 100% of his medical if it

reaches a certain percentage of your annual income.

Our thoughts and prayers are with you and your family.

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB (nights only)

Collin needs the taylor spatial frame

Well we went to Dr. H Friday and he still feels Collin needs the

taylor spatial frame. He said to call to make the appoinment for the

begining phase when we are ready to decide when. He will first go in

to casts for 4 weeks (2 different casts), then surgery with the frame

I belive for 10-12 weeks, then surgery to remove it, then casts

again, then a KAFO (Knee Ankly Foot Orthotic) for about a year. If

we start by September 2005 right after he turns 4, I figure we can be

done right before he starts school hopefully in 2006. He's is 3.5

years old now. We already have a shore house for August 27 - Sept.

3rd and I really want to wait to let him have that week of fun on the

beach with his cousins, etc. It is the first time we will ever have

a house on the beach so I just want to wait and let him go since we

already rented it and committed to it. When it rains it just

poors!!!! I am just getting ready to go back to work on Monday, I

was sick and out for 6 weeks. I had emergency abdominal surgery for

what I though was a benign cyst, but recently I found out it may be

some type of ovarian cancer, I'm in the process of going for a second

opinion, etc. but if we plan to have more children we have to start

right away, etc. I feel so much stress about going back to work

Monday then saying I need to leave again for Collin's surgery, then

again so I can have a baby which would be a c-section so thats

another 6-10 weeks out of work, and for lots of doctors appoinments

between Collin and me. I will still work during the first 4 weeks of

casts but will need to be with him for at least the first 4-8 weeks

of the device. I feel like my head is going to explode!!!!!!! We

just bought our first home in June and its so hard because we need

both incomes to pay our mortgage, etc... I think if we do his casting

in September, surgery in October, then he would have it removed

around December. I'm hoping to become pregnant and give birth around

December or January so I just don't know how to do this all money

wise. But we really don't have a choice, if we want more kids we have

to do it right away before we can't. If money weren't an issue it

would be much easier, I envy the rich right now!!!! We would have

been fine probably in a few years from now, but its hard because we

are young and still starting out, we haven't really finished

establishing ourselves yet. I feel so bad that Collin needs this

surgery, that was stress enough for us then all this came along.

Sorry I just needed to vent. If anyone has any info. they could pass

on to us about their experience with the taylor spatial frame " super

cast " we would love to hear it. Our e-mail is chele323232@...

Michele

Collin's story at http://www.geocities.com/chele323232

[Guest guest]

Wow, sounds like you have a lot of lemon-ade to make! And if all else

fails, all these lemons life is giving your right now will give you lots of

pucker power.... plenty of kisses to go around.

Hang in there - take it one step at a time. If there is absolutely nothing you

can do about something today, then don't waste that day stressing and worrying

about it. If there is something you can do, then do it and move forward. Sure

there is a certain amount of grief involved, and you need to grieve, but be

careful it doesn't consume you or your husband, be a rock for each other.

Someone else said, and I agree, this too shall pass and someday it'll be a

distant memory. Keep telling yourself that. One step at a time, don't let all

this rob the joy from you life. Keep us posted on how things are going, OK?

s.

Collin needs the taylor spatial frame

Well we went to Dr. H Friday and he still feels Collin needs the

taylor spatial frame. He said to call to make the appoinment for the

begining phase when we are ready to decide when. He will first go in

to casts for 4 weeks (2 different casts), then surgery with the frame

I belive for 10-12 weeks, then surgery to remove it, then casts

again, then a KAFO (Knee Ankly Foot Orthotic) for about a year. If

we start by September 2005 right after he turns 4, I figure we can be

done right before he starts school hopefully in 2006. He's is 3.5

years old now. We already have a shore house for August 27 - Sept.

3rd and I really want to wait to let him have that week of fun on the

beach with his cousins, etc. It is the first time we will ever have

a house on the beach so I just want to wait and let him go since we

already rented it and committed to it. When it rains it just

poors!!!! I am just getting ready to go back to work on Monday, I

was sick and out for 6 weeks. I had emergency abdominal surgery for

what I though was a benign cyst, but recently I found out it may be

some type of ovarian cancer, I'm in the process of going for a second

opinion, etc. but if we plan to have more children we have to start

right away, etc. I feel so much stress about going back to work

Monday then saying I need to leave again for Collin's surgery, then

again so I can have a baby which would be a c-section so thats

another 6-10 weeks out of work, and for lots of doctors appoinments

between Collin and me. I will still work during the first 4 weeks of

casts but will need to be with him for at least the first 4-8 weeks

of the device. I feel like my head is going to explode!!!!!!! We

just bought our first home in June and its so hard because we need

both incomes to pay our mortgage, etc... I think if we do his casting

in September, surgery in October, then he would have it removed

around December. I'm hoping to become pregnant and give birth around

December or January so I just don't know how to do this all money

wise. But we really don't have a choice, if we want more kids we have

to do it right away before we can't. If money weren't an issue it

would be much easier, I envy the rich right now!!!! We would have

been fine probably in a few years from now, but its hard because we

are young and still starting out, we haven't really finished

establishing ourselves yet. I feel so bad that Collin needs this

surgery, that was stress enough for us then all this came along.

Sorry I just needed to vent. If anyone has any info. they could pass

on to us about their experience with the taylor spatial frame " super

cast " we would love to hear it. Our e-mail is chele323232@...

Michele

Collin's story at http://www.geocities.com/chele323232

[Guest guest]

,

I am always so interested in the older kids in the group and what

they are facing as things progress. My son is 4.5, was fully

corrected, but now has femoral torsion causing what looks like a

relapse but really isn't. I read the posts only occasionally so I

apologize if I've missed discussion...but why does Collin need the

Spatial Frame? I looked it up and found pictures but

couldn't find exactly what it treats. I also looked at your website-

-what a sweetie he is!!! I am so sorry this is such a difficult

time for you and him.

Shelley and Evan (8-17-00, bcf, femoral torsion)

>

> Well we went to Dr. H Friday and he still feels Collin needs the

> taylor spatial frame. He said to call to make the appoinment for

the

> begining phase when we are ready to decide when. He will first go

in

> to casts for 4 weeks (2 different casts), then surgery with the

frame

> I belive for 10-12 weeks, then surgery to remove it, then casts

> again, then a KAFO (Knee Ankly Foot Orthotic) for about a year.

If

> we start by September 2005 right after he turns 4, I figure we can

be

> done right before he starts school hopefully in 2006. He's is 3.5

> years old now. We already have a shore house for August 27 -

Sept.

> 3rd and I really want to wait to let him have that week of fun on

the

> beach with his cousins, etc. It is the first time we will ever

have

> a house on the beach so I just want to wait and let him go since

we

> already rented it and committed to it. When it rains it just

> poors!!!! I am just getting ready to go back to work on Monday, I

> was sick and out for 6 weeks. I had emergency abdominal surgery

for

> what I though was a benign cyst, but recently I found out it may

be

> some type of ovarian cancer, I'm in the process of going for a

second

> opinion, etc. but if we plan to have more children we have to

start

> right away, etc. I feel so much stress about going back to work

> Monday then saying I need to leave again for Collin's surgery,

then

> again so I can have a baby which would be a c-section so thats

> another 6-10 weeks out of work, and for lots of doctors

appoinments

> between Collin and me. I will still work during the first 4 weeks

of

> casts but will need to be with him for at least the first 4-8

weeks

> of the device. I feel like my head is going to explode!!!!!!! We

> just bought our first home in June and its so hard because we need

> both incomes to pay our mortgage, etc... I think if we do his

casting

> in September, surgery in October, then he would have it removed

> around December. I'm hoping to become pregnant and give birth

around

> December or January so I just don't know how to do this all money

> wise. But we really don't have a choice, if we want more kids we

have

> to do it right away before we can't. If money weren't an issue it

> would be much easier, I envy the rich right now!!!! We would have

> been fine probably in a few years from now, but its hard because

we

> are young and still starting out, we haven't really finished

> establishing ourselves yet. I feel so bad that Collin needs this

> surgery, that was stress enough for us then all this came along.

> Sorry I just needed to vent. If anyone has any info. they could

pass

> on to us about their experience with the taylor spatial

frame " super

> cast " we would love to hear it. Our e-mail is chele323232@y...

> Michele

> Collin's story at http://www.geocities.com/chele323232

[Guest guest]

Wow Michele, you do have a big load on your mind right now. No wonder you

feel completely overwhelmed. I think you are doing the right thing for

Collin. You have done all the research, looked down all avenues, and

patiently waited to see if it was truly necessary. There is little chance

that you will second guess your final decision. Collin will thank you in

the future when he wins the gold medal for the 100 yard dash! I'm sure it

will be a tough road, but the fact of the matter is, we all thought the

casts and DBB were going to be a tough road. Even though this surgery is

much more extreme and involved, I think day by day, you just do it because

you have to and in the end you may realize it wasn't so bad. Good luck

with it and please remind us as surgery gets closer.

As for the job, pregnancy, money, etc. I really don't have much advice.

Just hope your employer will work with you; and if they don't, they didn't

value you in the first place and it would be their loss. Nobody ever has

enough money..............but somehow it works out. As far as the

pregnancy, my only recommendation is get pregnant when you are good and

ready.

Hang in there. Try not to stress yourself out by thinking about

everything all at once 24/7!

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

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