Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Dear Jan, thanks for the Edges quote! Welcome to the list :-) Um, the archives are paradoxically lengthy and sketchy on the topic of paranoia, nevertheless we have been visited from time to time by operatives with web pages against Dr. , posing as newbies... We'd like to think they're all gone, never to return, so that newcomers like yourself can obtain what they seek more easily. But perhaps its true that freedom is what is won over adversity... . Its the simple things, that make life simple ---Marvin Ratchford I think that the important part of Dr. 's teachings are that she is giving us the awareness we need about our bodies and our environment to live a healthy life. But the key here is balance--to use that knowledge to stay healthy, without being PARANOID about it all. If I have to go around using napkins to open restroom doors, I will go live in the wilderness! I have had a zapper for three years and try to use it regularly, have done two liver cleanses, and have read A Cure For All Diseases, but I don't have the time or the money to do everything she suggests. We did buy a house with a big Black Walnut tree in the back yard, so I'll be trying the extra strength tincture soon! No, we can't all go live in paradise, but then we can't all go live in New York City either! If you listen to your inner guidance, you'll be led to where you're supposed to be. And speaking of paranoia, this is the first list I've been on where new people are welcomed with a-- AND WHO ARE YOU? Jan Yancerrevjan@...When we walk to the edge of all the light we haveAnd take the step into the darkness of the unknown,We must believe one of two things will happen....There will be something solid for us to stand on,Or we will be taught how to fly. Overton quoted in " Edges " by Clair Marvin wrote:>It is okay to speak as an authority on every subject, from toxins toreligions ;-)But really, how much does anyone really know about anything? It issurely easier to say everything is bad, than to accept the world as is,i.e. essentially undiscovered.Religious zealots say God has told us everything. Scientific zealots saythere is no such God. Health enthusiast say we all must follow protocolsor perish. Long lived smokers and drinkers laugh in everyone's faces....True, you don't need proof for every new idea, nor do you need to be aconfirmed optimist. Of course, Minimalist and Reductionist conclude wedon't need much of anything at all ;-) But the world is not flat (how'd we EVER find that out?) And the earthis NOT the center of the universe. Indeed, our landlord is not a GOD! Wehave microscopes (unlike the Hunzas) and telescopes and the knowledge ofhealth (something I suppose even Eden was forbidden to have!)So, the world is full of toxins except for locations x,y and z, right?And all those living in locations a,b, and c should go to x, y, and z,right?All 6 billion of us, right? (And of course someone will [of necessity]find yet another exclusive paradise ax, by and cz!) Or, all those who know about health should live away from those who needit the most, right? Can anything be learned from living in a world desperate for compassionand understanding and truth? Dr. provides a gift to the world.Perhaps this is a very good example of what it means to live in thisworld... .Its okay to run away from all dangers.Its enlightening to face them, and grow from them.Its the simple things, that make life simple---Marvin Ratchford Learn more from: http://home.online.no/~dusan/ http://www.geocities.com/~mycleanse/ http://home.online.no/~huldakli/ http://www..net/ http://home.online.no/~dusan/gallstones/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 Thanks Marvin, I've been on the list for a few weeks and have enjoyed your posts and everyone's sharing their experiences. I know about your problems with Dr.Quack's group. Trouble is, there are a lot of people out there who don't know about Dr. 's protocol who will be dropping in on the list with curiosity and skepticism, and I think we have to welcome them warmly, not with a " AND WHO ARE YOU? " Jan Yancerrevjan@...When we walk to the edge of all the light we haveAnd take the step into the darkness of the unknown,We must believe one of two things will happen....There will be something solid for us to stand on,Or we will be taught how to fly. Overton quoted in " Edges " by Clair Marvin wrote: >Dear Jan,thanks for the Edges quote! Welcome to the list :-)Um, the archives are paradoxically lengthy and sketchy on the topic ofparanoia, nevertheless we have been visited from time to time byoperatives with web pages against Dr. , posing as newbies... We'd like to think they're all gone, never to return, so that newcomerslike yourself can obtain what they seek more easily. But perhaps its true that freedom is what is won over adversity... .Its the simple things, that make life simple---Marvin Ratchford Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Thanks Liz, for the heads-up on this program. I found out about it too late to catch it on TV but thanks to the link from Tracey, I'll still be able to tune in : ) Take Care, Georgina Thought you'd all like to know that the CBS Early Show just did a segment onjuvenile arthritis. It aired at about 7:45 here (east coast), so maybe someof you on the West coast can still catch it.Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 I am getting annoyed at the thought of so many kids not getting what they need, particularly because so many moms know way earlier than the professionals what this is. I decided to drop Oprah a line. Who knows if they'll take it seriously but I am now thinking I'll just keep bugging them. What will it cost me? A few emails time or some stamps. If anyone wants to join me in bugging Harpo Productions about this please do. I think each of us can describe the effects of this disease on our kids, our familes, differently. We can also describe this group as Oprah seems to love community stuff, especially women banding together for a common cause. Yes, I know this is likely cheesy, as most things are that you have to do to get publicity for a worthy cause but hey, I think there is no worthier cause than our children. It may even seem hopeless but if I have gotten anything from this experience and particularly this group, it is hope. We could do a form letter but it might be better if we do individual requests (even if it is the same one) repeatedly so they take us seriously, see various sides of the story to decide what angle they want to take, etc. If this is too much for some folks I so get it. Please know my heart is in the right place. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 Somehow I did not think with all the warriors in this group this thought was original. I do think persistence is key though. Perhaps if we bug then so much they give in.... Martha McCabe wrote: >We did this a while ago when Tony Braxton was talking about her autistic son's apraxia and incorrectly described it. We got nothing from Harpo but it certainly can't hurt to keep trying. > >Martha > >Liz <lizlaw@...> wrote: I am getting annoyed at the thought of so many kids not getting what > they need, particularly because so many moms know way earlier than the > professionals what this is. I decided to drop Oprah a line. Who knows if > they'll take it seriously but I am now thinking I'll just keep bugging > them. What will it cost me? A few emails time or some stamps. If anyone > wants to join me in bugging Harpo Productions about this please do. I > think each of us can describe the effects of this disease on our kids, > our familes, differently. We can also describe this group as Oprah seems > to love community stuff, especially women banding together for a common > cause. Yes, I know this is likely cheesy, as most things are that you > have to do to get publicity for a worthy cause but hey, I think there is > no worthier cause than our children. It may even seem hopeless but if I > have gotten anything from this experience and particularly this group, > it is hope. > > We could do a form letter but it might be better if we do individual > requests (even if it is the same one) repeatedly so they take us > seriously, see various sides of the story to decide what angle they want > to take, etc. > > If this is too much for some folks I so get it. Please know my heart is > in the right place. > > > Liz > > > > > > >--------------------------------- >Looking for earth-friendly autos? > Browse Top Cars by " Green Rating " at Autos' Green Center. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2007 Report Share Posted July 13, 2007 I wonder too if, sadly, using autism in connection with apraxia is a mistake with these folks. The last autism show she did ws OK but the vaccine question and were very limited. Yes the issue was brought up but did not get broad attention. Severely edited as I recall. Also, a recent autism show makes them think they have cob=vered it. Lastly, apparently Oprah's all big friends with Travolta whom many believe has an autistic son but won;t admit it or get him help...I have often wondered if that is why Oprah goes very light on autism stuff. Liz Martha McCabe wrote: >We did this a while ago when Tony Braxton was talking about her autistic son's apraxia and incorrectly described it. We got nothing from Harpo but it certainly can't hurt to keep trying. > >Martha > >Liz <lizlaw@...> wrote: I am getting annoyed at the thought of so many kids not getting what > they need, particularly because so many moms know way earlier than the > professionals what this is. I decided to drop Oprah a line. Who knows if > they'll take it seriously but I am now thinking I'll just keep bugging > them. What will it cost me? A few emails time or some stamps. If anyone > wants to join me in bugging Harpo Productions about this please do. I > think each of us can describe the effects of this disease on our kids, > our familes, differently. We can also describe this group as Oprah seems > to love community stuff, especially women banding together for a common > cause. Yes, I know this is likely cheesy, as most things are that you > have to do to get publicity for a worthy cause but hey, I think there is > no worthier cause than our children. It may even seem hopeless but if I > have gotten anything from this experience and particularly this group, > it is hope. > > We could do a form letter but it might be better if we do individual > requests (even if it is the same one) repeatedly so they take us > seriously, see various sides of the story to decide what angle they want > to take, etc. > > If this is too much for some folks I so get it. Please know my heart is > in the right place. > > > Liz > > > > > > >--------------------------------- >Looking for earth-friendly autos? > Browse Top Cars by " Green Rating " at Autos' Green Center. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 How far are you from boulder. ________________________________ From: medicaid medicaid Sent: Wed Oct 14 17:58:25 2009 Subject: [ ] awareness Bill, please do add our community to the list... is there anything I can do for our town, to let them be aware? Like could I put up an paper advertisement of the NBIRR treating brain injured vets, with the contact info? anything to get the word out? It took me a good searching to find HBOT for brain injury...stephani ________________________________ From: Duncan <wduncan@... <mailto:wduncan%40dc-strategy.com> > medicaid <mailto:medicaid%40> Sent: Wednesday, October 14, 2009 5:00:03 PM Subject: [ ] NBIRR Site Locations We have a number of sites at various stages in Texas. Donna's closest site in Dallas will probably be approved in the next round of approvals in 3 weeks. We have a San facility, where you son was probably treated, who is expected to join the effort. Because the basic principle of NBIRR is to treat people within 1 hour of home, we do have rural health care provisions. I did rural health care in Congress for 10 years, and am very familiar with the challenges. Even though you have a center next to your home, if they will not treat your case, you can be thousands of miles. Remember, I had to go from Virginia, with 10 hospital based HBOT clinics within driving distance of my home, to New Orleans, all because of political, not scientific, decisions by the UHMS regarding neurological treatment with HBOT. So, for example, when I go to New Mexico next month, I am going to a rural city of 10,000 people. We are doing a feasibility project there. This NBIRR site will be under direction of Dr. Stoller, with a local site PI. It is 150 miles from the nearest HBOT of any kind. We are looking at bringing a 3 chamber medical-grade trailer to the site which will permit them to treat NBIRR patients, diabetic foot wound patients, etc. It is expected the trailer will remain on station for 60 days (the length for the first 40 NBIRR treatments) and be moved to a second location for 60 days, to return the following 60 days for NBIRR round 2. There will be an attending nurse practitioner and medical doctor supervising the site in the town. That has already been discussed with the Governor's office in Texas and with the State VA in California, who would likely purchase these mobile HBOT units from State/Federal funds to permit their veterans to be treated, as well as the others who need biological repair of their (name the injury.) So, Stephani, if you would like to have your community on that list, we will work to make sure we get a mobile facility to you as quickly as possible. This first feasibility study will be key. After that, we will begin building these as quickly as funds permit. It takes 4 months to complete one, about the same amount of time as a build out in a building. However, they are up and running within 1 hour of arrival at a site, and not subject to building code rules. (They are subject to fire safety and oxygen/medgas rules). The goal is to put HBOT into every community health center, satellite veterans clinic, rural hospital, etc. Then the access problem will be largely solved. There are proper uses of portable chambers as well, with pressure dictated by medical condition, not FDA-fiat. In the next NBIRR protocol under development, the condition requires HBOT for the rest of the patient's life, after they have been stabilized. This will create a justification for a home-health- care payment by a third party payer for a chamber as an item of durable medical equipment. It is also feasible to have a portable chamber capable of achieving study pressure, used under NBIRR, (Air with O2 by mask) when there is no other treatment modality possible. This is not ideal, however, as the need for patient supervision during that first 80 treatments is demonstrated by well-known side effects as outlined in the patient disclosure form. This also depends upon state law, physician comfort, and other similar factors. This is just to point out that there are indeed legitimate uses for home-based systems, especially when there are chronic medical conditions that justify it (Chronic CO poisoning, MS, Parkinsons, COPD, just to name a few.) Bill Duncan DR. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 Are you asking me how far we are from boulder? i checked mapquest i do not see any town named boulder in texas.. was this question for someone else? stephani ________________________________ From: Duncan <wduncan@...> medicaid Sent: Wednesday, October 14, 2009 6:28:55 PM Subject: Re: [ ] awareness How far are you from boulder. ____________ _________ _________ __ From: medicaid medicaid Sent: Wed Oct 14 17:58:25 2009 Subject: [ ] awareness Bill, please do add our community to the list... is there anything I can do for our town, to let them be aware? Like could I put up an paper advertisement of the NBIRR treating brain injured vets, with the contact info? anything to get the word out? It took me a good searching to find HBOT for brain injury...stephani ____________ _________ _________ __ From: Duncan <wduncan@dc-strategy .com <mailto:wduncan% 40dc-strategy. com> > medicaid <mailto:medicaidfor hbot%40grou ps.com> Sent: Wednesday, October 14, 2009 5:00:03 PM Subject: [ ] NBIRR Site Locations We have a number of sites at various stages in Texas. Donna's closest site in Dallas will probably be approved in the next round of approvals in 3 weeks. We have a San facility, where you son was probably treated, who is expected to join the effort. Because the basic principle of NBIRR is to treat people within 1 hour of home, we do have rural health care provisions. I did rural health care in Congress for 10 years, and am very familiar with the challenges. Even though you have a center next to your home, if they will not treat your case, you can be thousands of miles. Remember, I had to go from Virginia, with 10 hospital based HBOT clinics within driving distance of my home, to New Orleans, all because of political, not scientific, decisions by the UHMS regarding neurological treatment with HBOT. So, for example, when I go to New Mexico next month, I am going to a rural city of 10,000 people. We are doing a feasibility project there. This NBIRR site will be under direction of Dr. Stoller, with a local site PI. It is 150 miles from the nearest HBOT of any kind. We are looking at bringing a 3 chamber medical-grade trailer to the site which will permit them to treat NBIRR patients, diabetic foot wound patients, etc. It is expected the trailer will remain on station for 60 days (the length for the first 40 NBIRR treatments) and be moved to a second location for 60 days, to return the following 60 days for NBIRR round 2. There will be an attending nurse practitioner and medical doctor supervising the site in the town. That has already been discussed with the Governor's office in Texas and with the State VA in California, who would likely purchase these mobile HBOT units from State/Federal funds to permit their veterans to be treated, as well as the others who need biological repair of their (name the injury.) So, Stephani, if you would like to have your community on that list, we will work to make sure we get a mobile facility to you as quickly as possible. This first feasibility study will be key. After that, we will begin building these as quickly as funds permit. It takes 4 months to complete one, about the same amount of time as a build out in a building. However, they are up and running within 1 hour of arrival at a site, and not subject to building code rules. (They are subject to fire safety and oxygen/medgas rules). The goal is to put HBOT into every community health center, satellite veterans clinic, rural hospital, etc. Then the access problem will be largely solved. There are proper uses of portable chambers as well, with pressure dictated by medical condition, not FDA-fiat. In the next NBIRR protocol under development, the condition requires HBOT for the rest of the patient's life, after they have been stabilized. This will create a justification for a home-health- care payment by a third party payer for a chamber as an item of durable medical equipment. It is also feasible to have a portable chamber capable of achieving study pressure, used under NBIRR, (Air with O2 by mask) when there is no other treatment modality possible. This is not ideal, however, as the need for patient supervision during that first 80 treatments is demonstrated by well-known side effects as outlined in the patient disclosure form. This also depends upon state law, physician comfort, and other similar factors. This is just to point out that there are indeed legitimate uses for home-based systems, especially when there are chronic medical conditions that justify it (Chronic CO poisoning, MS, Parkinsons, COPD, just to name a few.) Bill Duncan DR. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 Bill, we live in Buna, Texas 77612- steph ________________________________ From: Duncan <wduncan@...> medicaid Sent: Wednesday, October 14, 2009 7:03:48 PM Subject: Re: [ ] awareness Sorry this was question for person in colorado. Where is your community. ____________ _________ _________ __ From: medicaid medicaid Sent: Wed Oct 14 18:57:05 2009 Subject: Re: [ ] awareness Are you asking me how far we are from boulder? i checked mapquest i do not see any town named boulder in texas.. was this question for someone else? stephani ____________ _________ _________ __ From: Duncan <wduncan@dc-strategy .com <mailto:wduncan% 40dc-strategy. com> > medicaid <mailto:medicaidfor hbot%40grou ps.com> Sent: Wednesday, October 14, 2009 6:28:55 PM Subject: Re: [ ] awareness How far are you from boulder. ____________ _________ _________ __ From: medicaid medicaid Sent: Wed Oct 14 17:58:25 2009 Subject: [ ] awareness Bill, please do add our community to the list... is there anything I can do for our town, to let them be aware? Like could I put up an paper advertisement of the NBIRR treating brain injured vets, with the contact info? anything to get the word out? It took me a good searching to find HBOT for brain injury...stephani ____________ _________ _________ __ From: Duncan <wduncan@dc- strategy .com <mailto:wduncan% 40dc-strategy. com> > medicaid <mailto:medicaidfor hbot%40grou ps.com> Sent: Wednesday, October 14, 2009 5:00:03 PM Subject: [ ] NBIRR Site Locations We have a number of sites at various stages in Texas. Donna's closest site in Dallas will probably be approved in the next round of approvals in 3 weeks. We have a San facility, where you son was probably treated, who is expected to join the effort. Because the basic principle of NBIRR is to treat people within 1 hour of home, we do have rural health care provisions. I did rural health care in Congress for 10 years, and am very familiar with the challenges. Even though you have a center next to your home, if they will not treat your case, you can be thousands of miles. Remember, I had to go from Virginia, with 10 hospital based HBOT clinics within driving distance of my home, to New Orleans, all because of political, not scientific, decisions by the UHMS regarding neurological treatment with HBOT. So, for example, when I go to New Mexico next month, I am going to a rural city of 10,000 people. We are doing a feasibility project there. This NBIRR site will be under direction of Dr. Stoller, with a local site PI. It is 150 miles from the nearest HBOT of any kind. We are looking at bringing a 3 chamber medical-grade trailer to the site which will permit them to treat NBIRR patients, diabetic foot wound patients, etc. It is expected the trailer will remain on station for 60 days (the length for the first 40 NBIRR treatments) and be moved to a second location for 60 days, to return the following 60 days for NBIRR round 2. There will be an attending nurse practitioner and medical doctor supervising the site in the town. That has already been discussed with the Governor's office in Texas and with the State VA in California, who would likely purchase these mobile HBOT units from State/Federal funds to permit their veterans to be treated, as well as the others who need biological repair of their (name the injury.) So, Stephani, if you would like to have your community on that list, we will work to make sure we get a mobile facility to you as quickly as possible. This first feasibility study will be key. After that, we will begin building these as quickly as funds permit. It takes 4 months to complete one, about the same amount of time as a build out in a building. However, they are up and running within 1 hour of arrival at a site, and not subject to building code rules. (They are subject to fire safety and oxygen/medgas rules). The goal is to put HBOT into every community health center, satellite veterans clinic, rural hospital, etc. Then the access problem will be largely solved. There are proper uses of portable chambers as well, with pressure dictated by medical condition, not FDA-fiat. In the next NBIRR protocol under development, the condition requires HBOT for the rest of the patient's life, after they have been stabilized. This will create a justification for a home-health- care payment by a third party payer for a chamber as an item of durable medical equipment. It is also feasible to have a portable chamber capable of achieving study pressure, used under NBIRR, (Air with O2 by mask) when there is no other treatment modality possible. This is not ideal, however, as the need for patient supervision during that first 80 treatments is demonstrated by well-known side effects as outlined in the patient disclosure form. This also depends upon state law, physician comfort, and other similar factors. This is just to point out that there are indeed legitimate uses for home-based systems, especially when there are chronic medical conditions that justify it (Chronic CO poisoning, MS, Parkinsons, COPD, just to name a few.) Bill Duncan DR. Quote Link to comment Share on other sites More sharing options...
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