Jodi Z - Having a difficult time

[Guest guest]

Hi Jodi

Do you ever keep the extension line attached to Max's button. I know

its not ideal, but, you could drain into a cup or something before a

feed, to clear the line of anything that has been sitting in it, and

it wouldnt go all over his clothes. Then clamp the line to attach his

feed.

Hope this helps, thinking of you guys.

Jody

PS I know those extra loads of washing can be the last straw!!

[Guest guest]

Jody,

It's a good idea, but Max does not have the button yet. He has to

wait a month to have it placed. Right now there is just the tubing

and there is no valve to stop the fluid from leaking out. He had

another disaster at school this morning. Just when I think we have

it figured out...

Jodi Z.

[Guest guest]

Hi Jodi

Is there enough line for Max to kink it over before he connects?

Working in haemodialysis, we often do this to the blood lines when we

cant find a clamp, we use small sissor like clamps that occlude the

line when we are running patients on and off. Do you have a stoma

nurse who may be able to give you something to occlude the line when

you open it.

How frustrating!!

Are you on the gastrostomy support site with yahoo? Maybe someone

there can help.

Hope you find an answer

Jody

> Jody,

>

> It's a good idea, but Max does not have the button yet. He has to

> wait a month to have it placed. Right now there is just the tubing

> and there is no valve to stop the fluid from leaking out. He had

> another disaster at school this morning. Just when I think we have

> it figured out...

>

> Jodi Z.

[Guest guest]

Jody,

We do kink the tube before we open it. But there is fluid leaking

out when we are not using it. It makes a mess, and Max just hates

getting his clothes wet. I don't blame him.

I did not know there is a gastrostomy support group listserve. I

will look into it now.

Jodi Z.